News for hackers. Stuff that matters.
Re:Decades after polio, Martha is among the last to still re... by jasonpeacock on Wednesday October 27, 2021 @11:44AM (#29014802)
Re:Decades after polio, Martha is among the last to still re... by corndoge on Wednesday October 27, 2021 @11:59AM (#29015040)
The amount of insinuations, accusations and anti-American/tech/white/male/journalism sentiments packed into such a small thread is incredible.

It's a news story about a health patient, yet Naomi seems to expect NPR to act as Martha's personal insurer and care advocate. Would it have been better if NPR didn't publish it at all? Then Naomi would never have been given the chance to virtue signal for exposure. Lose-lose.

Re:Decades after polio, Martha is among the last to still re... by dralley on Wednesday October 27, 2021 @12:51PM (#29015822)
Naomi Wu has had poor experiences with western news outlets - Vice news outed her against her will in a piece they wrote on her, and she lives in a country that doesn't have an especially liberal attitude towards homosexuality. So there is understandably some salt on that basis, but also...

In this case plenty of other news outlets have covered her in their articles about Martha: https://www.wired.co.uk/article/iron-lung-maker-community

As far as "tech/white/male", you really only have to read the comments people post in any thread about her on Reddit to figure that one out. I can't even imagine what her inbox must look like.

Re:Decades after polio, Martha is among the last to still re... by junon on Wednesday October 27, 2021 @12:58PM (#29015913)
Especially since for anyone reading the article it's clear why she's (rightfully) annoyed.

> She has only a handful of collars left. "I really am desperate," she says. "That's the most scary thing in my life right now — is not finding anybody that can make those collars."

Naomi does a lot of interesting work and is snubbed quite a lot. She made it quite public that this was happening and yet NPR still snubbed her.

Re:Decades after polio, Martha is among the last to still re... by mrighele on Wednesday October 27, 2021 @03:16PM (#29017758)
She has the right to be annoyed with those that were supposed to deliver and test the collars, not with Martha Lillard or NPR.

From the point of view of M.L., she is maybe one of several that promised to help but could do it (not a fault of Naomi Wu of course, but of those that first contacted her for help and then left things unfinished), so it doesn't surprise me that she was not mentioned.

Re:Decades after polio, Martha is among the last to still re... by junon on Wednesday October 27, 2021 @04:54PM (#29018971)
NPR asserted in their article that help was few and far in between when this wasn't the case. Naomi has certainly gone above and beyond in attempting to help. It should be noted that the difficulty is not in finding help, but in the logistics. It reads very much like a plea to emotion, how NPR worded it.
Re:Decades after polio, Martha is among the last to still re... by morelisp on Wednesday October 27, 2021 @01:14PM (#29016114)
I mean there's also plenty of other options, like the parts didn't fundamentally work and it's easier to just forget about it and write a new article than risk another media blowup by bringing a Twitter personality into a story that's not really about her?
Re:Decades after polio, Martha is among the last to still re... by masklinn on Wednesday October 27, 2021 @01:25PM (#29016261)
That makes absolutely no sense, Wu is in china so some back and forth in order to get the collars to fit correctly is to be expected. Following which you're done because the chinese shop can make the collars to order whenever that's needed.

> bringing a Twitter personality into a story that's not really about her?

Wu was already involved in this. Per her comments she'd already sent packages of collars to be tested and altered / fitted.

Hell, mentioning that there was a volunteer / grassroots effort to produce new collars would have been more honest than the article going "collars where?"

Re:Decades after polio, Martha is among the last to still re... by morelisp on Wednesday October 27, 2021 @01:30PM (#29016340)
It's a light human interest story, not a comprehensive international assessment of iron lungs parts suppliers or formal inventory and provenance check of Martha's stock.
Re:Decades after polio, Martha is among the last to still re... by junon on Thursday October 28, 2021 @02:46PM (#29029855)
> It's a light human interest story

It's NPR. There's no excuse for poor sensationalist journalism even from them.

Re:Decades after polio, Martha is among the last to still re... by morelisp on Thursday October 28, 2021 @03:47PM (#29030850)
A brief retrospective of iron lungs and the technical difficulties faced by people who still prefer them is among the least sensationalist pieces of writing I can imagine. Where you normally get news that's so sedate by this standard?
Re:Decades after polio, Martha is among the last to still re... by junon on Wednesday October 27, 2021 @01:20PM (#29016193)
That makes absolutely zero sense, though. She's also not a twitter personality. She's a full-blown engineer with a very popular Youtube channel and following and has done these sorts of things quite often.
[dead]
Re:Decades after polio, Martha is among the last to still re... by sho_hn on Wednesday October 27, 2021 @03:20PM (#29017819)
Naomi Wu is not a US citizen (the English name is a pseudonym). The NSPE is a US-only entity.
Re:Decades after polio, Martha is among the last to still re... by vangelis on Wednesday October 27, 2021 @02:22PM (#29017032)
There's a lot of engineers out there who wouldn't count as engineers by that metric.
Re:Decades after polio, Martha is among the last to still re... by brokensegue on Wednesday October 27, 2021 @03:07PM (#29017652)
i'm an engineer and i'm not even sure what "PE cert" stands for. certification means very litte.
Re:Decades after polio, Martha is among the last to still re... by lapetitejort on Wednesday October 27, 2021 @03:48PM (#29018221)
A Professional Engineer certification can mean "We trust you to work on things where human lives may be at stake". Gatekeeping engineers use this to exclude everyone else. If your screw-up doesn't cost human lives then you're not a real engineer.
Re:Decades after polio, Martha is among the last to still re... by junon on Wednesday October 27, 2021 @04:51PM (#29018948)
> If your screw-up doesn't cost human lives then you're not a real engineer.

This is such a ridiculous, asinine, and outright wrong assertion that it warrants no reasoned response.

Re:Decades after polio, Martha is among the last to still re... by dang on Friday October 29, 2021 @02:38PM (#29042081)
In that case please follow the site guidelines, which ask you not to reply.

https://news.ycombinator.com/newsguidelines.html

https://news.ycombinator.com/item?id=29023822 also broke the site guidelines. That's not cool, regardless of how bad other comments are or you feel they are.

Would you please review them and take the intended spirit of this place more to heart? We'd appreciate it.

Re:Decades after polio, Martha is among the last to still re... by sho_hn on Wednesday October 27, 2021 @05:36PM (#29019433)
I'm fairly sure the post you're replying you was interpretative-facetious.
Re:Decades after polio, Martha is among the last to still re... by junon on Wednesday October 27, 2021 @07:36PM (#29020455)
I got that, it was directed towards the engineers who act this way. I've met too many of them as well.
[dead]
Re:Decades after polio, Martha is among the last to still re... by dang on Friday October 29, 2021 @02:40PM (#29042093)
Please do not post in the flamewar style to HN, regardless of how bad another comment is or you feel it is. We've had to ask you this multiple times before. That's not cool.

You also broke the site guidelines by crossing into personal attack below: https://news.ycombinator.com/item?id=29025655

We're trying to avoid this kind of thing here, so if you'd please review https://news.ycombinator.com/newsguidelines.html and take the intended spirit of the site more to heart, we'd be grateful.

Re:Decades after polio, Martha is among the last to still re... by junon on Thursday October 28, 2021 @04:45AM (#29023822)
I also live in Europe. The term Engineer is used in many contexts outside of "what you build could kill people" contexts.

Get off your high horse.

Re:Decades after polio, Martha is among the last to still re... by anthk on Thursday October 28, 2021 @09:11AM (#29025655)
Spaniard here. I doubt it. Maybe in the UK, but in the rest of Europe being an Engineer is not a bragging wannabe title.
Re:Decades after polio, Martha is among the last to still re... by Chris2048 on Wednesday October 27, 2021 @03:25PM (#29017885)
Did Martha herself not reach out to Naomi? It would seem to make more sense to me than NPR doing so..
Re:Decades after polio, Martha is among the last to still re... by nend on Wednesday October 27, 2021 @02:49PM (#29017419)
That article is from a previous donation years ago. Naomi herself says her recent donation wasn't used[1].

Is NPR obligated to mention all failed attempts to acquire new collars? It seems unlikely they excluded this information because of Naomi's gender or race.

It's great that Naomi donated successfully before and has tried to again, but as you noted she's received plenty of positive media from her donations already.

[1] - "I just could not get anyone to visit her and do final fitting and troubleshooting on the collars I had manufactured for her." - https://twitter.com/RealSexyCyborg/status/145289590785527398...

Re:Decades after polio, Martha is among the last to still re... by reallyagain on Wednesday October 27, 2021 @07:48PM (#29020571)
"Poor experiences" are not an excuse for bigotry against a group of people based on a combination of their race, sexuality, and gender.

It's amazing to me how people will bend their principles because they admire someone.

Re:Decades after polio, Martha is among the last to still re... by sho_hn on Wednesday October 27, 2021 @03:33PM (#29017996)
Beyond the outlets, I think it's useful to be familiar with this episode: https://www.bunniestudios.com/blog/?p=5046

Dale Dougherty later posted an open letter in apology.

[dead]
Re:Decades after polio, Martha is among the last to still re... by vorpalhex on Wednesday October 27, 2021 @01:54PM (#29016652)
Because real hackers are unwashed, unshaved and live in hoodies?

As a community we are not really a suit and tie sort of affair. Whether that means a bikini, a nice cotton henley or your favorite cyberpunk cosplay - who cares?

Re:Decades after polio, Martha is among the last to still re... by fxtentacle on Wednesday October 27, 2021 @02:14PM (#29016920)
The comment that I replied to said that she has a valid point being anti-male because she receives so much unwanted attention. And my reply is that I believe the sexualized attention isn't unwanted but instead it's part of her marketing strategy which includes - among other things - the "sexy cyborg" branding and 18+ videos.

In a similar vein, if I wanted to make a YouTube channel that appeals to true hackers, I might stop shaving and showering for a few days and wear the hoodie. That sounds like a great marketing strategy to stand out from the boring suit & tie crowd ;)

EDIT: Marketing agencies already beat me to it:

https://www.youtube.com/watch?v=FcLsNOMqyD8

https://www.youtube.com/watch?v=9aTGB1KFgII

https://www.youtube.com/watch?v=8M71fnJNNeE

Re:Decades after polio, Martha is among the last to still re... by vorpalhex on Wednesday October 27, 2021 @04:44PM (#29018869)
Wu has been clear that her reasons for her dress style is her interest in women, not attracting the male gaze.

One of the traditional hacker values is personal agency - doing things because you like them, not to fit in or sell.

In general we need to take people at their word and not supply our own beliefs. We diminish ourselves when we minimize the agency of others.

Re:Decades after polio, Martha is among the last to still re... by fxtentacle on Thursday October 28, 2021 @06:30AM (#29024357)
"In general we need to take people at their word and not supply our own beliefs"

You will have a difficult time navigating the real world if you approach public personas with such a trusting approach.

"I just want you to know I’m not a pedophile" Jeffrey Epstein

"I did not have sexual relations with that woman" Bill Clinton

"I'm a benevolent dictator." Harvey Weinstein

In my opinion, Wu is a public persona, too, because the majority of her income directly depends on the public's perception of her. Also, her influencer marketing with the Creality printer brand is probably conditioned on her presenting in a certain way. So regardless of whether she dresses that way for guys or for girls, I'd argue that my point still stands: She made a calculated decision to publicly present herself in that way and given that she appears to be highly intelligent, she was probably aware of the consequences (including male attention) beforehand.

Re:Decades after polio, Martha is among the last to still re... by vorpalhex on Thursday October 28, 2021 @12:45PM (#29028105)
There's a reason I prefaced with the word "generally" but you can replace that with the longer "Lacking evidence to the contrary".

In case this hasn't been explained to you yet: Someones fashion choices are not an excuse to behave inappropriately or give them unwanted advances. If she wants to dress that way and someone behaves inappropriately towards her, the issue isn't with her.

Re:Decades after polio, Martha is among the last to still re... by whimsicalism on Wednesday October 27, 2021 @01:18PM (#29016165)
Explain what you mean. I'm not able to connect the threads unless you're just making a bad pass at discrediting her.
Re:Decades after polio, Martha is among the last to still re... by Jiro on Wednesday October 27, 2021 @02:10PM (#29016858)
Having that name and wearing the bikini means that much of her popularity will be because of sex appeal, with relatively little being because of the merits of her actions or her writings. As this is Hacker News, not Virtual Idol News, this absolutely means that anything about her that is related to her actions or her writings should be viewed with the utmost skepticism.

Also, calling herself sexy and wearing a bikini is specifically aimed at males, so no defense of her should include the phrase "white male". Of course most people paying attention to anything she does are male--she's doing that deliberately!

Finally, the Halo Effect is a thing. https://en.wikipedia.org/wiki/Halo_effect

Re:Decades after polio, Martha is among the last to still re... by 2muchcoffeeman on Wednesday October 27, 2021 @03:19PM (#29017800)
She’s explained many times how the gay and lesbian scene that she identifies with works in parts of Asia. I think she’s sincere as she’s mentioned her relationships on Twitter. She’s not appealing to males. She’s appealing to specific types of lesbians.

I think this part of her complaint with western media is legit. They all just assume that she’s doing it for the views. Ignore the gay and lesbian scene in Asia entirely to come up with a fake narrative. Completely ignore that she has done some good work just because of the way she looks. Then go on and on about inclusivity and LGBT rights.

Even Adam Savage’s Tested.com seems to have snubbed her. They requested a few CR-30s be sent over for review but then <some shenanigans> And the review never came and I guess they never sent them back to her.

Re:Decades after polio, Martha is among the last to still re... by Jiro on Wednesday October 27, 2021 @07:58PM (#29020674)
>She’s not appealing to males.

Calling yourself "sexy" and dressing in a bikini appeals to males, and males greatly outnumber lesbians, and that will lead to lots of male twitter followers who would not follow her if all she had were her actions and words. She can't not know this stuff.

You can argue that she isn't deliberately appealing to men, but at some point, "in the knowledge that" is indistinguishable from "deliberately" by anyone who can't read minds.

Re:Decades after polio, Martha is among the last to still re... by 2muchcoffeeman on Wednesday October 27, 2021 @08:45PM (#29020973)
I’m sure she knows that her appearance has a massive overlap with male fantasies and that affects her followers.

But what does that have to do with the work she does? And why is that her problem? Given the snubs she’s received, I’d argue that her appearance actually costs her. If she looked more like the western ideal of a female lesbian hacker she’d get more work and sponsorships.

Re:Decades after polio, Martha is among the last to still re... by Jiro on Thursday October 28, 2021 @01:00PM (#29028298)
>But what does that have to do with the work she does?

She's doing something that makes it look like she's gaining fans for reasons unrelated to the quality of her work. People will be skeptical of the work of a person who trades on something other than her work.

Re:Decades after polio, Martha is among the last to still re... by 2muchcoffeeman on Thursday October 28, 2021 @09:49PM (#29034299)
Skepticism is one thing. But it certainly appears that she continually gets snubbed.

After all this time the media, popular personalities, maker communities that espouse inclusivity didn’t once look at her work? Got the first mass produced Infinite Z printer to market - still skeptical? Got Chinese companies to comply to open source licenses - still skeptical? Makes a bunch of stuff - still skeptical?

Naomi certainly does seem right that all these communities are judging her on her appearance.

Re:Decades after polio, Martha is among the last to still re... by klyrs on Wednesday October 27, 2021 @02:25PM (#29017082)
> Also, calling herself sexy and wearing a bikini is specifically aimed at males

Women who are attracted to women exist. It's possible to think that yourself is sexy without desiring external attention. What you're doing here is projecting and victim-blaming.

Re:Decades after polio, Martha is among the last to still re... by sho_hn on Wednesday October 27, 2021 @03:39PM (#29018087)
> Having that name and wearing the bikini means that much of her popularity will be because of sex appeal, with relatively little being because of the merits of her actions or her writings.

I think that honestly underestimates the amount of work that goes into being a consistently successful tech-themed content creator: Wearing a bikini isn't enough to brave competition and short-lived attention spans in that space. Being attractive helps in media, for sure, but you can't go on without putting work into the essential content for very long.

Re:Decades after polio, Martha is among the last to still re... by kaitai on Wednesday October 27, 2021 @07:06PM (#29020138)
Last time I wore a bikini I was at an all-women's conference. I thought I was wearing it because it was hot, I was in Palm Springs, and I was at the pool. Thank you for telling me I have been doing it wrong. No wonder I was underpaid at the time....
Re:Decades after polio, Martha is among the last to still re... by Jiro on Wednesday October 27, 2021 @07:59PM (#29020682)
A pool is a social context in which a bikini is expected. Investigative reporting isn't.
Re:Decades after polio, Martha is among the last to still re... by fxtentacle on Wednesday October 27, 2021 @02:02PM (#29016750)
GP: "The amount of [..] anti-[..]white/male sentiments packed into such a small thread is incredible"

P: "you really only have to read the comments in pretty much every thread about her to figure that one out. I can't even imagine what her inbox must look like."

And to P I'd like to reply that I agree with GP: It appears to me that she has voluntarily joined fighting the anti- white/male fight.

Re:Decades after polio, Martha is among the last to still re... by junon on Wednesday October 27, 2021 @12:58PM (#29015917)
> yet Naomi seems to expect NPR to act as Martha's personal insurer and care advocate.

No. She expects a reputable news outlet to fact check their own story, especially since they covered most of the same information the Wired article did 4 years ago - which, naturally, mentioned Wu.

Re:Decades after polio, Martha is among the last to still re... by nend on Wednesday October 27, 2021 @01:21PM (#29016203)
Fact check doesn't seem to the right phrase here. Naomi donated collars years ago. Each collar lasts "a few months". Martha has a "handful left". Martha hasn't been able to find additional collars. What facts did NPR get wrong in the article?

There could be all sorts of reasons NPR didn't mention Naomi. How did Martha get the collars before Naomi's donation? How many years of collar donations/purchases is NPR obligated to mention in their article? Is there anyone else outraged they didn't get mentioned for providing collars years ago?

Re:Decades after polio, Martha is among the last to still re... by dragonwriter on Wednesday October 27, 2021 @02:24PM (#29017069)
> It's a news story about a health patient, yet Naomi seems to expect NPR to act as Martha's personal insurer and care advocate.

No I think Wu just expects [0] NPR not to ignore relevant facts to construct a misleading narrative.

> Then Naomi would never have been given the chance to virtue signal for exposure.

Naomi Wu is hardly lacking in exposure opportunities or the ability to exploit them, so even if the basic false dichotomy you propose wasn't false, it wouldn't really be lose-lose for NPR and Wu. (NPR and Martha maybe, since the exposure, even starting in the misleading form NPR presented it, does probably make it more likely that her issue gets resolved, but that's where the false dilemma comes into play, since the story didn't actually have to be misleading.)

[0] in the normative, but emphatically not the predictive, sense of the word.

Re:Decades after polio, Martha is among the last to still re... by Pxtl on Wednesday October 27, 2021 @02:56PM (#29017516)
Naomi Wu really hates western journalists and tech-bros, and justifiably so. She's been doxxed, accused of being fake (they think her partner does all the work and she's just his model/actress), etc.

So yeah, she has a humongous chip on her shoulder, and maybe she gets carried away with that anger, but the chip on her shoulder comes from some legitimate grievances.

Regardless, she has a lot of respect in the maker space because she's one of the few people who says "oh yeah, we can jump in and come up with help for this medical/prosthetic problem" and doesn't half-ass it. She's very specific about that - this is one of those cases where Minimum Viable Product is unacceptable, these items need to stand up to real life and 24/7 contact with human skin.

Re:Decades after polio, Martha is among the last to still re... by MattGaiser on Wednesday October 27, 2021 @12:13PM (#29015258)
I am curious how NPR would even have known about her beyond trawling Twitter for anything related to Martha.
Re:Decades after polio, Martha is among the last to still re... by themaninthedark on Wednesday October 27, 2021 @12:45PM (#29015748)
Re:Decades after polio, Martha is among the last to still re... by junon on Wednesday October 27, 2021 @01:00PM (#29015941)
And the Wired article is the first result on Google for "martha iron lung parts".

Even more, Martha herself commented on her video: https://www.youtube.com/watch?v=4VKZTmTP7oY&lc=UgyYG8WsY8fN4...

Re:Decades after polio, Martha is among the last to still re... by kevmo on Wednesday October 27, 2021 @01:03PM (#29015996)
Reviewing other comments, it looks like NPR either didn't do a google search or decided to leave out a lot of relevant parts of this story.

I think it's fair to discuss NPR as propaganda here.

Re:Decades after polio, Martha is among the last to still re... by morelisp on Wednesday October 27, 2021 @01:08PM (#29016056)
Propaganda for what, though, in this case?
Re:Decades after polio, Martha is among the last to still re... by kevmo on Wednesday October 27, 2021 @01:16PM (#29016143)
I am inclined to agree with Ms. Wu's assessment:

> And of course- when someone does something, but they aren't the right kind of someone let's pretend her name did not come up at the top of the search when you fact-checked this story right @NPRHealth ? Just say you want a straight white American tech bro to do it.

NPR is rife with bias, if you know how to look for it. I recommend reading Propaganda by Ed Bernays & then thinking about why the people who make huge donations to NPR make those donations (IMO, it's because NPR largely exists to reinforce the existing social structure).

Re:Decades after polio, Martha is among the last to still re... by mikestew on Wednesday October 27, 2021 @02:16PM (#29016945)
NPR is rife with bias, if you know how to look for it.

At which point you're going to have a serious confirmation bias problem. How would I know that I know how to look for it? Easy: I found some.

"If only you'd open your eyes and look for the truth!" is kinda how that comes across to me.

Re:Decades after polio, Martha is among the last to still re... by toomuchtodo on Wednesday October 27, 2021 @02:45PM (#29017367)
> IMO, it's because NPR largely exists to reinforce the existing social structure

Can you expound on this? I have come to a similar observation, but would be interested in hearing what specifically they’re reinforcing.

Re:Decades after polio, Martha is among the last to still re... by morelisp on Wednesday October 27, 2021 @01:21PM (#29016209)
You're making sweeping general claims about the media which I agree with, but I'm asking specifically about this story. To the extent I would classify NPR as propaganda, it's (currently) for a particular half-progressive/half-third-way American liberalism that would love to have a story about a scrappy DIY global supply chain saving someone in Oklahoma.

ETA (since I'm rate-limited...):

> Do tell us more about NPR's liberal bias.

Sure. By telling these kind of fables about how global capitalism is actually good for everybody, they're trying to prevent growing class consciousness that would eventually force fundamental, revolutionary change to how we allocate resources.

Oh wait, you thought I was to the right of NPR? Sorry, no, that probability distribution is barely distinguishable from Nazism at this point. Also no one to the right of NPR would ever use the term "third-way" in criticism of it.

Re:Decades after polio, Martha is among the last to still re... by setpatchaddress on Wednesday October 27, 2021 @01:54PM (#29016655)
Ah, that explains your attitude here. Do tell us more about NPR's liberal bias.
Re:Decades after polio, Martha is among the last to still re... by Loughla on Wednesday October 27, 2021 @04:54PM (#29018972)
>Sure. By telling these kind of fables about how global capitalism is actually good for everybody, they're trying to prevent growing class consciousness that would eventually force fundamental, revolutionary change to how we allocate resources.

YES. I love NPR as a news source, because of the oddball stories they cover. But they are solidly, solidly in the 'bootlicker' camp when it comes to how great and exceptional international businesses are at solving humanities problems.

Re:Decades after polio, Martha is among the last to still re... by kevmo on Wednesday October 27, 2021 @01:00PM (#29015955)
I like NPR as much as the next person, but it is often used as a propaganda tool, so I think it's valid to question the underlying reasons behind publishing stories and the slants they take.

And yeah, it sounds like NPR should have picked up on the maker community here. Articles which precede this one by years bring up Naomi Wu. https://www.wired.co.uk/article/iron-lung-maker-community

Given this, I think it's fair for Ms. Wu to have a hot take on this.

Highly recommend reading Propaganda by Ed Bernays. I saw it recommended on HN years ago, so I bought and read it -- it really helped make me a smarter consumer of news.

Re:Decades after polio, Martha is among the last to still re... by rootusrootus on Wednesday October 27, 2021 @11:47AM (#29014853)
That twitter thread sure doesn't present a good look for NPR.
Re:Decades after polio, Martha is among the last to still re... by MattGaiser on Wednesday October 27, 2021 @11:52AM (#29014938)
> She has only a handful of collars left. "I really am desperate," she says. "That's the most scary thing in my life right now — is not finding anybody that can make those collars."

How do you fact check whether someone can find something?

Their inability to find something doesn’t mean it doesn’t exist. It just means that she personally can’t find them.

And the collars didn’t necessarily work either. They were shipped, not installed/tested. So the problem doesn’t seem to have been solved.

Re:Decades after polio, Martha is among the last to still re... by masklinn on Wednesday October 27, 2021 @01:28PM (#29016306)
> How do you fact check whether someone can find something?

Looking at the top google hits and previous stories on your subject[0] seems like the bare minimum fact checking to do?

> And the collars didn’t necessarily work either. They were shipped, not installed/tested. So the problem doesn’t seem to have been solved.

Seems pretty logical that they'd have to be refined given they're made and shipped from china with no access to the iron lung or ability to travel back and forth personally. That's something the NPR journo could actually have assisted with.

[0] https://www.wired.co.uk/article/iron-lung-maker-community

Re:Decades after polio, Martha is among the last to still re... by HelloMcFly on Wednesday October 27, 2021 @02:06PM (#29016807)
> That's something the NPR journo could actually have assisted with.

That's not the job of the journalist! Are we to expect our journalists to solve the problems they report on? Should every story also turn the journalist into an advocate - be it legal, healthcare, employment, etc. - that works on their behalf?

I think there's room for critique here though the "assumption of bad faith" runs rampant in this discourse already. Yet critiquing the reporter for not acting as their personal local news network "Problem Solvers" segment isn't the real issue here.

Re:Decades after polio, Martha is among the last to still re... by aeyes on Wednesday October 27, 2021 @04:43PM (#29018853)
> And the collars didn’t necessarily work either. They were shipped, not installed/tested.

Are you sure about that? Look at the pinned comment on the original video from 2 years ago: https://www.youtube.com/watch?v=4VKZTmTP7oY

Re:Decades after polio, Martha is among the last to still re... by benchaney on Wednesday October 27, 2021 @12:51PM (#29015816)
I disagree. That Twitter thread is a terrible look for the people participating, but NPR comes out of it looking fine. They reported the situation from Martha’s perspective. If Martha is worried about being able to find collars why would it matter that some completely unrelated people on Twitter think they already solved the problem? Makes no sense.
Re:Decades after polio, Martha is among the last to still re... by grumple on Wednesday October 27, 2021 @11:59AM (#29015025)
The textilist seems to be accusing NPR of not mentioning her, but Martha herself said she couldn't find anyone to make them. Was @RealSexyCyborg in contact with NPR? Or Martha? If anything, it seems the article itself is meant to encourage someone to provide the help that @RealSexyCyborg admits she needed someone else to do. How many others were contacted by Martha but couldn't produce the product at the end? Does each require an explicit mention?

Then the accusation that this effort was omitted because she wasn't a white tech bro is out of left field and frankly, very unlikely. NPR regularly goes out of its way to provide viewpoints and credit well outside the "white tech bro" sphere.

Re:Decades after polio, Martha is among the last to still re... by themaninthedark on Wednesday October 27, 2021 @12:14PM (#29015277)
I don't know what research was done but it looks like @RealSexyCyborg had made some and shipped them in 2019... as well as making a YouTube video about it.

Seeing as this is a 2021 story, either Martha did not receive the parts, the parts needed a revision or they did no research.

If the parts needed a revision, you would expect the story to say something like 'an entrepreneur has been working with Martha to create replacements but they are having trouble with final fitment.'

The article: She has only a handful of collars left. "I really am desperate," she says. "That's the most scary thing in my life right now — is not finding anybody that can make those collars."

Makes it sound like noone has tried to do anything. So that leaves someone who has tried to help with the feeling that they are being ignored either by malicious or incompetent.

Re:Decades after polio, Martha is among the last to still re... by StevePerkins on Wednesday October 27, 2021 @12:17PM (#29015331)
I don't think that Twitter thread presents a good look for anyone.

There is no timeline or context given here. So I don't know who this person is, and what direct interaction they have or haven't had with person in that article. All I can see is that this is a YouTuber, with ~2k Twitter followers and the tagline "It's all about merit until merit has tits". Who is "working on it", but hasn't shipped the parts yet. And who feels that NPR (who probably doesn't know she exists) deliberately cut her out because she's "not a straight white American tech bro".

To me, that thread is Twitter in a nutshell. Off the charts narcism and self-promotion, revolving around race/gender-charged drama. There may be some information that I'm missing here. But if you're starting from a place of NPR being too right-wing or bigoted, then I've seen enough.

Re:Decades after polio, Martha is among the last to still re... by themaninthedark on Wednesday October 27, 2021 @12:29PM (#29015496)
Twitter is a shifty way to present information and to talk.I looked around and found out that she sent some collars in 2019. She also made a YouTube video of what she was doing at the time https://youtu.be/4VKZTmTP7oY the video shows up if you search 'Martha Iron Lung' so it's not like it is hidden...

A 2017 Wired article https://www.wired.co.uk/article/iron-lung-maker-community states that Naomi was spearheading the effort then.

Re:Decades after polio, Martha is among the last to still re... by JPKab on Wednesday October 27, 2021 @12:34PM (#29015571)
You nailed it. Twitter is filled with a lot of interesting content, but the dominant "trending" topics are basically navel-gazing activists masquerading as journalists obsessing about their own identity (if they are in a favored group) or desperately using some sacred cow identity group as a tool to gain status with their peers.

I deleted my account after I simply asked a question one day in a thread with a prominent startup founder who happened to be a Black woman. Someone else on her thread had stated that she was worried about encouraging her daughter to learn to code because she felt that nobody would hire her "due to the extreme racism that was obviously prevalent in tech." I simply stated that my company was trying hard to hire folks like her daughter, and asked what we could do to make people like her feel welcome and understand that it wasn't a problem at our company. Then the veil was pulled back on the performance. The questioner didn't really have a question. She simply posed it as a performance, and then I was mobbed with statements telling me that I needed to "Listen and let Black women speak." These narcissists aren't interested in solutions, only in gaining status in their silly, secular imitation of evangelical fundamentalist churches. Replace "Satan" with "toxic whiteness" and you have Dana Carvey's church lady on SNL in the 90's.

Re:Decades after polio, Martha is among the last to still re... by Cpoll on Wednesday October 27, 2021 @01:51PM (#29016621)
> ~2k Twitter followers

I think you read this wrong. She's following ~2k people, but she has 185.7K followers (and 1.46M subscribers on Youtube).

> There may be some information that I'm missing here.

Other posters have provided a bit more information that might change your interpretation of why Naomi tweeted this: https://news.ycombinator.com/item?id=29015822

> But if you're starting from a place of NPR being too right-wing or bigoted, then I've seen enough.

I agree with your assessment of Twitter being mostly self-promotion and race/gender-charged drama, but no-one said "right-wing." I don't think an accusation that any media outlet cuts out facts that don't fit their narrative can be dismissed out of hand these days, unfortunately. I don't have a strong opinion about NPR, but I can see how Naomi _might_ not fit in the narratives they try to push. But I acknowledge that I'm being a bit intellectually dishonest, I'm not bringing any evidence to bear here either.

Re:Decades after polio, Martha is among the last to still re... by userbinator on Wednesday October 27, 2021 @09:48PM (#29021388)
To me, that thread is Twitter in a nutshell.

Yes, I thought "typical Twitter" when I saw it as well. Small bits of interesting information, with a huge dose of identity politics mixed in.

Re:Decades after polio, Martha is among the last to still re... by SQueeeeeL on Wednesday October 27, 2021 @11:50AM (#29014916)
I thought reporters weren't supposed to interfere? If the patient can't get help, that's still a story...
Re:Decades after polio, Martha is among the last to still re... by gambiting on Wednesday October 27, 2021 @12:14PM (#29015264)
This isn't national geographic and the article isn't about wildlife. Reporters have absolutely no such restriction on them, implied or otherwise.
Re:Decades after polio, Martha is among the last to still re... by Zircom on Wednesday October 27, 2021 @01:00PM (#29015947)
And in the same vein they also have no obligation to solve her problems for her just because they choose to write a story on her.
Re:Decades after polio, Martha is among the last to still re... by spacehome on Wednesday October 27, 2021 @01:23PM (#29016234)
You’re thinking of the Federation.