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Re:Decades after polio, Martha is among the last to still re... by rootusrootus on Wednesday October 27, 2021 @11:47AM (#29014853)
That twitter thread sure doesn't present a good look for NPR.
Re:Decades after polio, Martha is among the last to still re... by MattGaiser on Wednesday October 27, 2021 @11:52AM (#29014938)
> She has only a handful of collars left. "I really am desperate," she says. "That's the most scary thing in my life right now — is not finding anybody that can make those collars."

How do you fact check whether someone can find something?

Their inability to find something doesn’t mean it doesn’t exist. It just means that she personally can’t find them.

And the collars didn’t necessarily work either. They were shipped, not installed/tested. So the problem doesn’t seem to have been solved.

Re:Decades after polio, Martha is among the last to still re... by masklinn on Wednesday October 27, 2021 @01:28PM (#29016306)
> How do you fact check whether someone can find something?

Looking at the top google hits and previous stories on your subject[0] seems like the bare minimum fact checking to do?

> And the collars didn’t necessarily work either. They were shipped, not installed/tested. So the problem doesn’t seem to have been solved.

Seems pretty logical that they'd have to be refined given they're made and shipped from china with no access to the iron lung or ability to travel back and forth personally. That's something the NPR journo could actually have assisted with.

[0] https://www.wired.co.uk/article/iron-lung-maker-community

Re:Decades after polio, Martha is among the last to still re... by HelloMcFly on Wednesday October 27, 2021 @02:06PM (#29016807)
> That's something the NPR journo could actually have assisted with.

That's not the job of the journalist! Are we to expect our journalists to solve the problems they report on? Should every story also turn the journalist into an advocate - be it legal, healthcare, employment, etc. - that works on their behalf?

I think there's room for critique here though the "assumption of bad faith" runs rampant in this discourse already. Yet critiquing the reporter for not acting as their personal local news network "Problem Solvers" segment isn't the real issue here.

Re:Decades after polio, Martha is among the last to still re... by aeyes on Wednesday October 27, 2021 @04:43PM (#29018853)
> And the collars didn’t necessarily work either. They were shipped, not installed/tested.

Are you sure about that? Look at the pinned comment on the original video from 2 years ago: https://www.youtube.com/watch?v=4VKZTmTP7oY

Re:Decades after polio, Martha is among the last to still re... by benchaney on Wednesday October 27, 2021 @12:51PM (#29015816)
I disagree. That Twitter thread is a terrible look for the people participating, but NPR comes out of it looking fine. They reported the situation from Martha’s perspective. If Martha is worried about being able to find collars why would it matter that some completely unrelated people on Twitter think they already solved the problem? Makes no sense.
Re:Decades after polio, Martha is among the last to still re... by grumple on Wednesday October 27, 2021 @11:59AM (#29015025)
The textilist seems to be accusing NPR of not mentioning her, but Martha herself said she couldn't find anyone to make them. Was @RealSexyCyborg in contact with NPR? Or Martha? If anything, it seems the article itself is meant to encourage someone to provide the help that @RealSexyCyborg admits she needed someone else to do. How many others were contacted by Martha but couldn't produce the product at the end? Does each require an explicit mention?

Then the accusation that this effort was omitted because she wasn't a white tech bro is out of left field and frankly, very unlikely. NPR regularly goes out of its way to provide viewpoints and credit well outside the "white tech bro" sphere.

Re:Decades after polio, Martha is among the last to still re... by themaninthedark on Wednesday October 27, 2021 @12:14PM (#29015277)
I don't know what research was done but it looks like @RealSexyCyborg had made some and shipped them in 2019... as well as making a YouTube video about it.

Seeing as this is a 2021 story, either Martha did not receive the parts, the parts needed a revision or they did no research.

If the parts needed a revision, you would expect the story to say something like 'an entrepreneur has been working with Martha to create replacements but they are having trouble with final fitment.'

The article: She has only a handful of collars left. "I really am desperate," she says. "That's the most scary thing in my life right now — is not finding anybody that can make those collars."

Makes it sound like noone has tried to do anything. So that leaves someone who has tried to help with the feeling that they are being ignored either by malicious or incompetent.

Re:Decades after polio, Martha is among the last to still re... by StevePerkins on Wednesday October 27, 2021 @12:17PM (#29015331)
I don't think that Twitter thread presents a good look for anyone.

There is no timeline or context given here. So I don't know who this person is, and what direct interaction they have or haven't had with person in that article. All I can see is that this is a YouTuber, with ~2k Twitter followers and the tagline "It's all about merit until merit has tits". Who is "working on it", but hasn't shipped the parts yet. And who feels that NPR (who probably doesn't know she exists) deliberately cut her out because she's "not a straight white American tech bro".

To me, that thread is Twitter in a nutshell. Off the charts narcism and self-promotion, revolving around race/gender-charged drama. There may be some information that I'm missing here. But if you're starting from a place of NPR being too right-wing or bigoted, then I've seen enough.

Re:Decades after polio, Martha is among the last to still re... by themaninthedark on Wednesday October 27, 2021 @12:29PM (#29015496)
Twitter is a shifty way to present information and to talk.I looked around and found out that she sent some collars in 2019. She also made a YouTube video of what she was doing at the time https://youtu.be/4VKZTmTP7oY the video shows up if you search 'Martha Iron Lung' so it's not like it is hidden...

A 2017 Wired article https://www.wired.co.uk/article/iron-lung-maker-community states that Naomi was spearheading the effort then.

Re:Decades after polio, Martha is among the last to still re... by JPKab on Wednesday October 27, 2021 @12:34PM (#29015571)
You nailed it. Twitter is filled with a lot of interesting content, but the dominant "trending" topics are basically navel-gazing activists masquerading as journalists obsessing about their own identity (if they are in a favored group) or desperately using some sacred cow identity group as a tool to gain status with their peers.

I deleted my account after I simply asked a question one day in a thread with a prominent startup founder who happened to be a Black woman. Someone else on her thread had stated that she was worried about encouraging her daughter to learn to code because she felt that nobody would hire her "due to the extreme racism that was obviously prevalent in tech." I simply stated that my company was trying hard to hire folks like her daughter, and asked what we could do to make people like her feel welcome and understand that it wasn't a problem at our company. Then the veil was pulled back on the performance. The questioner didn't really have a question. She simply posed it as a performance, and then I was mobbed with statements telling me that I needed to "Listen and let Black women speak." These narcissists aren't interested in solutions, only in gaining status in their silly, secular imitation of evangelical fundamentalist churches. Replace "Satan" with "toxic whiteness" and you have Dana Carvey's church lady on SNL in the 90's.

Re:Decades after polio, Martha is among the last to still re... by Cpoll on Wednesday October 27, 2021 @01:51PM (#29016621)
> ~2k Twitter followers

I think you read this wrong. She's following ~2k people, but she has 185.7K followers (and 1.46M subscribers on Youtube).

> There may be some information that I'm missing here.

Other posters have provided a bit more information that might change your interpretation of why Naomi tweeted this: https://news.ycombinator.com/item?id=29015822

> But if you're starting from a place of NPR being too right-wing or bigoted, then I've seen enough.

I agree with your assessment of Twitter being mostly self-promotion and race/gender-charged drama, but no-one said "right-wing." I don't think an accusation that any media outlet cuts out facts that don't fit their narrative can be dismissed out of hand these days, unfortunately. I don't have a strong opinion about NPR, but I can see how Naomi _might_ not fit in the narratives they try to push. But I acknowledge that I'm being a bit intellectually dishonest, I'm not bringing any evidence to bear here either.

Re:Decades after polio, Martha is among the last to still re... by userbinator on Wednesday October 27, 2021 @09:48PM (#29021388)
To me, that thread is Twitter in a nutshell.

Yes, I thought "typical Twitter" when I saw it as well. Small bits of interesting information, with a huge dose of identity politics mixed in.

Re:Decades after polio, Martha is among the last to still re... by SQueeeeeL on Wednesday October 27, 2021 @11:50AM (#29014916)
I thought reporters weren't supposed to interfere? If the patient can't get help, that's still a story...
Re:Decades after polio, Martha is among the last to still re... by gambiting on Wednesday October 27, 2021 @12:14PM (#29015264)
This isn't national geographic and the article isn't about wildlife. Reporters have absolutely no such restriction on them, implied or otherwise.
Re:Decades after polio, Martha is among the last to still re... by Zircom on Wednesday October 27, 2021 @01:00PM (#29015947)
And in the same vein they also have no obligation to solve her problems for her just because they choose to write a story on her.
Re:Decades after polio, Martha is among the last to still re... by spacehome on Wednesday October 27, 2021 @01:23PM (#29016234)
You’re thinking of the Federation.