- Other common mental health issues like anxiety and depression. I experience both chronically, treating my ADHD is currently the only management I need, nothing else has ever worked.
- Sensory sensitivity including overload, confusion, neurological disorders. Hyperacusis and auditory processing disorder are my main issues. I just learned this past weekend that tinnitus may also be correlated. Other people experience similar sensitivities with some or all other senses.
- Hyperfocus. Seems contradictory but it’s not, we can get stuck on things just as easily as we can’t get motivated.
- Higher than GP rate of overlap with ASD and OCD.
- Higher than GP rate of overlap with gender dysphoria.
- Higher than GP rate of overlap with dyslexia and other learning disabilities.
All of these are true for me, and my ADHD diagnosis has helped me better manage, identify, understand or recognize them all.
Also note to folks who think it’s all about attention: it’s typically diagnosed in children (who also have a higher overlap than GP of ODD diagnosis). The DSM criteria are written entirely for assessing youth, and addressed to observing parties who are likely parents/guardians, teachers and caregivers. They’re geared for “I’m having trouble managing this kid,” not “I’m having trouble managing my life”.
I was a precocious talker and reader, and in many ways a 'gifted' child, but I always struggled to comprehend reading material, or remain engaged with what a teacher was saying. These learning difficulties pretty much negated the value of any 'gift' I may have had. That said, anything related to computing, I was hooked.
It's taken decades to overcome these cognitive challenges, but meditation has been exceptionally helpful to me.
Yes! These are even pretty common symptoms addressed in youth.
And the rest of your comment is pretty much the story of my life give or take a few degrees.
If these are still difficulties for you or if you ever find them to be again, I highly encourage learning more about how ADHD presents in adults. If nothing else you might learn more about how those electric brain meats work.
It's always a small relief to know other people who have/had the same challenges. Thank you.
Edit: also if you do want to reach out and it feels daunting in any way, you can literally just say “HN” or any other recognizable thing and I’ll understand.
Talk about empathy in action. That was a really caring touch.
I find nominal meditation practices exhausting. I find meditative practices that don’t claim to be universal much more accessible.
Navigating the actual difficulties: I’m benefitting from a diagnosis and medicine. Before that it was basically chance and very specific life tools/adaptations.
I struggle with breath meditation as a "chore".
I only reached the discipline for a 2-hour daily habit after immersing myself in 2 vipassana courses. This is probably not suitable for many people, but I was at the end of my tether and I had no choice but to succeed.
https://www.theatlantic.com/education/archive/2015/06/the-s-...
Not sure if you caught this when it front-paged, but here's another theory about why 'gifted' people may fail:
Afaik, those are different brain functions. Early reading is a lot about early development of memory. Comprehending material can be about many different things. Remaining engaged is difficult if you dont understand. But also, it is about attention span.
Xanax has a miracle reputation but like all other benzos it is said to only works temporarily as a hotfix, then you build up tolerance and you go back to your baseline Pre Xanax (or worse). What is very frustrating about such explanations is that I can't tell if it exactly put you back to your pre Xanax era or if after tolerance builds up (for a same dose) you are better than before, just slightly better. If so that would make Xanax slightly useful for long term treatment.
There are also SSRIs but it feels wrong to take SSRIs for someone that just has ADHD and anxiety, not depression.
There are anxyolitics e.g l-theanine pills, ashwaganda, etc Those don't seems to work (on me) and more importantly don't work for a whole day, just a few hours max.
What else?
The right anti-depressant or ssri Might help, even if depression isn't the exact thing you're trying to resolve. As far as I understand, benzos or anxiolytics help manage the Really Bad Moments, the Peaks so to speak. But you cannot rely on them indefinitely. SSRIs and antidepressants are kinda poorly understood. We generally know "okay this drugs tends to hekp helps" and "this drug does x to your brain" but not "this is how doing x to your brain maps to y behavior" (the latter is all theorizing based on empirical testing, but lacks the underlying explanatory rigor physics has).
Anyways, the most useful thing I've found both in my own life and in the experience of friends is: therapy. Often times therapy +some drug to help manage things, but I think therapy forms the basis of any mental health treatment. And it has to be a good therapist who Cares and knows you well (this latter point being something you can develop over time). I think the main battle with mental health is "changing how you think" and that's what therapy + medication is good for. Therapy helps reveal limiting beliefs, shines a light on the corners of your mind that you might be overlooking, and medication helps with implementing what you learn.
I'm not a doctor, and I'm not Your doctor, so grain of salt and all.
For me, finding the right stimulant (first ritalin then vyvanse), then the right dosage (currently 60mg per day), then recognizing I need a little more help when the XR wears off (+10mg adderall as needed) has been the best long term management I’ve ever had.
i personally found that aswagandha helped a lot in reducing my anxiety enough to start to handle it. it also totally destroyed my motovation to do anything (i took too much too often for too long). now i take 500mg ever 2-3 days but i started on 500mg a day.
Theanine + coffee does work for me though.
I’ve been on this regime for about 2 years now, and haven’t noticed any sort of tolerance build up.
You may want to search for "breathing" on Hacker News.
Here are actual extremely informative comments to go through, sorted by most recent (this is important because of COVID-19 as people have been thinking about breathing more): https://hn.algolia.com/?dateRange=all&page=0&prefix=false&qu...
Here are recent links ("stories") posted to Hacker News, sorted by most recent: https://hn.algolia.com/?dateRange=all&page=0&prefix=false&qu...
Here is an overview about breathing:
What I ultimately do is Respiratory Muscle Training (RMT) using 2 separate devices. There are two main forms of RMT: Respiratory Muscle Strength Training (RMST) and Respiratory Muscle Endurance Training (RMET). I do both, and both of which requires separate devices.
For RMST there are two types of training: Inspiratory Muscle Training (IMT) and Expiratory Muscle Training (EMT). Most devices do only IMT. The device I use does both IMT and EMT.
Anyways, I am out-of-shape and there are studies to prove that Respiratory Muscle Endurance Training (RMET) reduces fatigue when exercising. I have benefited tremendously from RMET, both from an exercise and anxiety standpoint. Anyways, RMET is a big deal in countries like Switzerland and Germany.
Books to consult:
There are two books to consult on Respiratory Muscle Training, which you can find on https://libgen.rs
* "Breathe Strong, Perform Better" by Alison McConnell
* "Respiratory Muscle Training: Theory and Practice" by Alison McConnell
This book, Breathology, however, will help you regulate your breathing, and become more aware of it, to reduce anxiety: https://www.breatheology.com/wp-content/uploads/2014/05/INTR...
Now to the important stuff regarding breathing and anxiety:
Anyways, sorry for the ramble, but the most useful device I use is the IDIAG P100 (https://www.idiag.ch/en/idiag-p100-en/). There is a site with PDFs on how to train with it here: (https://www.idiag.ch/en/idiag-p100-training/).
It is profoundly useful and anxiety reducing because it has a technology called isocapnic hyperpnea. This means that it always regulates the air you breathe, so that you maintain the same level of carbon dioxide that you exhaled, the whole time you use it.
When I feel tense, I put the IDIAG P100 device into "Free Training" mode, and I just hyperventilate into the mouthpiece to relieve tension. I stop using it once my breathing frequency is about 13-16 breaths per minute and my breathing pattern seems normal. It really helps me relieve tension. I am actually going to use it now.
I just used it, and I actually just accidentally fell asleep using it, while continuing its use. The isocapnic hypernia made all the difference. When I was awake, my tightness in my chest went away. When I was asleep, I noticed that my muscles were not tight at all, and I was sleeping restfully (I have 2 rare immune-mediated neuromuscular diseases affecting my peripheral nervous system,, so such a circumstance is rare and extremely unusual). I also had detailed and amazing dreams. Anyways, I need to make something like this for sleep, utilizing isocapnic hyperpnea.
The IDIAG P100 is both a RMET and RMST device, along with being Respiratory Muscle Sprint-Interval Training (RMSIT) device (which is a new technique superior to both traditional RMET and RMST): https://journals.lww.com/acsm-msse/Fulltext/2019/02000/Effec...)
Anyways, I use the RMET daily, and I train for 30 minutes each day. I breathe 50-80% of my maximum lung capacity, for each breath, at 40-70 breaths per minute. It is really difficult but it pays off when it comes to reducing fatigue and anxiety. About 15 minutes in, even though it is hard, it becomes extremely relaxing, and continues to be throughout the rest of the training. I do this when I wake up in the morning and it drastically reduces my anxiety.
Another tool I use (which I recommend you start off with) is the Airofit, which is a Respiratory Muscle Strength (RMST) training device. Because of it, I am always aware of my breathing and my breathing patterns. It is an essential tool for reducing my anxiety. It is a threshold flow resistive respiratory muscle training device (consult this: https://www.hilarispublisher.com/open-access/a-review-on-res...). This means that you have to blow at a certain level (low threshold, in this case) to activate the device, then its valves restrict the flow of your breathing. You can change the settings (valves) by turning the device, on both the expiratory and insipratory sides.
Anyways, it is a digital device, and it has several training programs. It also has a spirometer within the device, so you can measure your progress. Also, the app is awesome, and so is their customer support! It teaches you things like square and circle breathing in the app which will help you relax. Anyways, you can use the device with YouTube videos (that people recommend in the comments that I linked to on Hacker News). You just open the app, and go to the program "Relaxation: Freedom".
The "Relaxation: Freedom" setting shows a trace (kind of like an EKG) of your breathing. When you are not breathing the trace is in the center of the graph. If you exhale, the trace goes below the center of the graph. If you inhale, the trace goes above the center of the graph.
The graph essentially shows how consistent your flow is when breathing. When I watch YouTube breathing programs, I have the Relaxation: Freedom program open on the Airofit app, either on my iPad (preferred in this setting) or my iPhone. When I watch the YouTube videos, I keep the app in front of me, to make sure that I am breathing consistently and the flow of my breathing is at a consistent rate. Therefore I optimize my breathing using the Airofit app when watching YouTube videos.
Another thing that helps me with anxiety is Virtual Reality. You may cringe at this. However, I either keep an Oculus Quest (modded with FrankenQuest mod--using HTC Deluxe Audio Strap) in my backpack at all times, or my laptop with a PC VR headset with me. I have relaxation apps loaded on my VR headsets, and that is what I primarily use them for. theBlu is like scuba diving in a stationary place and it is very realistic. You can keep it running for hours, too, without any interaction. Anyways, the Steam platform is better for this, but the Oculus Quest works perfectly fine. I find VR to feel like nitrous oxide, without the actual strange sensation of nitrous oxide. It feel exhilarating, relaxing, and disorienting all at the same time. Therefore, it is great for anxiety.
IDIAG (the company that makes the IDIAG P100) just raised the price on their device, likely in the past couple of weeks. I got it for around 650 EUR. I cannot believe that they just about doubled the price. I found that out about a couple of days ago, and it really disappointed me, even though it truly is a remarkable device. There is an older model of this device, that is on sale and specifically does isocapnic hyperpnea (see: https://www.spirotiger.net/en/products/spirotiger-go). You can also find used ones online.
Besides being unfit and needing to lose weight, I also have health conditions that worsen my exercise tolerance. I use the IDIAG P100 to increase my exercise tolerance, and it helps me, tremendously. There are studies to prove the significant increase in endurance, if you search for "isocapnic hyperpnea", "isocapnic hyperpnoea", "normocapnic hyperpnea", or "normocapnic hyperpnoea", on like Google Scholar, for example. You can also try searching for "SpiroTiger" or "Spiro Tiger" (an older model to the successor IDIAG P100) on like Google Scholar to verify.
A byproduct of using the device is that it really calms me down for the rest of the day, when I use it in the morning. I sometimes also do Respiratory Muscle Endurance Training (RMET) about 2 hours before I go to sleep and I sleep a lot more restfully and my sleep quality has improved, because I am calmer. It also helps me wind down at night.
I agree with you that it is extremely steep for an initial ask. The device came out in 2020, also. I would wait for more reviews. This technology is used more in Switzerland and Germany, so you may want to keep this in mind when searching for reviews. You may need to use Google Translate when scoping out info online. But, I would absolutely wait.
The Airofit Pro definitely makes you more aware of your breathing, basically all the time. I started off with that before going to the IDIAG P100. When I benefited from the Airofit Pro, I decided to do more research into Respiratory Muscle Training and I learned about RMET (and isocapnic hyperpnea), and I figured out that it would be a good idea to augment my training with that, as I had already been getting great results with the Airofit Pro. But, isocapnic hyperpnea has helped me the most, overall.
copaiba oil and frankincense oil
As needed under tongue and they seem to help almost immediately.
Worth checking out.
Also magnesium pills help too but affects me the same way as benedryl and makes me very sleepy so I try to take that only if I have time for a nap or bed.
There are massive risks with Ritalin/methylphenidate. How to you ever stop taking it? Does it impair health over the long run? Will you abuse it, sell it, or smoke it? Ideally it could be used like training wheels, briefly, until the person got into the habit of not being socially anxious,and then kicked to the curb. I cannot say I recommend any psychiatric drugs. When people "try" them, they should be aware that it is easier to enter drugworld than it is to leave it.
Optional: If you observed Scott Staph's (Creed singer) 2014 or '15 meltdown, you already know what a bad result on stimulants prescribed for ADHD can look like. It was hard to piece his story together because it's a story of harm by pharma. Most mainstream stories left out the part about an antidepressant making him feel like hell and his attempt to feel better on Adderall instead. In childhood he'd had an ADHD diagnosis and was prescribed a stimulant for it. ABC had the details: https://abcnews.go.com/Entertainment/creed-frontman-scott-st...
Unfortunately he got sucked into the BS "bipolar" fantasy world after that. The drugs prescribed generally do not work and each class of drugs has a way of making life exquisitely hellish. When I read that he was going for treatment, I figured that was it for his career. People can't function on those drugs. If only he could just get away from it all for a while... https://abcnews.go.com/Entertainment/creed-frontman-scott-st...
I didn't know this was associated with ADHD but have struggled with this my whole life. Is there anything at all that can be done about this? If I go to a concert or sometimes even just riding a motorcycle, earplugs are not quite enough
- Being unable to maintain good habits (e.g. gym) because it feels like you're nearly a completely different person at different points because your desires/wants change from day to day to hour to hour to minute to minute
- Forgetting literally everything due to getting distracted
- Not remembering important stuff someone was telling you as your brain went off on a tangent while they were speaking
- Absolutely zero ability to act based on deferred gratification for any extended period of time (do I want this banana outfit now or maybe a holiday later if I stop buying banana outfits etc)
- Difficulty in monogamous relationships (being distracted by other people very easily because they are stimulating/exciting)
- People getting frustated as they don't keep up with how you dance between things
- Self discipline is basically on nightmare mode
- Ooh yes one more Sunday pint. Oh wait, what's that, I fucked up Monday yet again and now I am fired again??
- Working at 1000% speed but only 10% of the time
- Having to constantly remind self to calm down and be more careful with code/changes/deployment
This is interesting, I always thought that was just me. I've never been unfaithful, but I've always felt that "something different" appeals to me in relationships more than it does for other people. I've tried ethical non-monogamy once, and ended up in the same spot I'm usually in with my projects: trying to do too many at once, and end up half-assing or half-finishing them all.
> - Ooh yes one more Sunday pint. Oh wait, what's that, I fucked up Monday yet again and now I am fired again??
I feel that one too. Fortunately, my inability to sit still means I end up distracting myself with a bajillion things until I forget my head hurts. Never been fired for it, but it's a fine line to walk. The lack of impulse control also makes it difficult to avoid the situation (karaoke on a Tuesday night? Of course I'm in).
Fwiw, I find that my mind is looking for something to slow it down and let it cool off for a while more than it is for alcohol specifically. Marijuana doesn't really help me with that, but my shrink suggested L-Theanine (OTC, they should have it in the supplements section) and I've found that it ticks the box fairly well without the horrid side effects of booze.
> - People getting frustated as they don't keep up with how you dance between things
Ah yes, and then pair that with my frustration that I have to keep backtracking to explain how two things are linked in a way that I thought was obvious. I haven't found anything better to do there than forcing myself to ask for acknowledgement that the other person is still with me. I just pepper my conversations with "Does that make sense?" or "Right?" to give them time to interject. I also often find myself speaking quickly, and polite people have a hard time finding a time they can say "hold on, I'm lost".
I feel life is an edge for everybody but having impulsive ADHD turns into a very exciting knife ridge on a mountain with one side sunny, happy and not so dangerous and the other, dark, enticing and dangerous.
It's sort of a two way street... Knowing the expectations, convincing us that the bear minimum is all that's needed.
Just fix the bugs. Keep your head down. Don't rewrite 2k lines of code that's ugly and not broken...
Then I think positive two way communication is good... As the op said we suffer from fear of rejection bad also as a given imposter syndrome so if I get good feedback, I know I'm doing what you want, that you're happy... Etc.
I think part of wanting to reengineer may be wanting to convince the boss in the scenario or ourselves that we aren't just faking it and adding 20 hours to a budgeted 5 hours ends up having the reverse effect.
Tldr: good conversation, praise where due to reinforce good work and constructive criticism when something needs to change.
I was a lot worse in this respect as a junior dev... So that may also be a factor, the more ppl I work with the better I am.
I have ADHD and could be slightly ASD or just overlapping on symptoms which is common. Wasn't diagnosed till 3 years ago, medicine and exercise changed my life.
It's infinitely more difficult with ADHD. I use phone apps to remind myself of everyday things and track my shopping lists. This may sound normal but it's a coping strategy and when it's gone I am unable to function as a normal human being. I cannot go shopping without a shopping list because I will grab things I think I need but that I actually do not need (which is why I have 3 glasses of chocolate spread for bread and 3 packs of cereal, but no bread or milk on most weekdays).
And I will point out that children in Europe are regularly treated for ADHD. I was treated for ADHD. As an adult however, it's impossible to be prescribed ADHD medication (all of which requires a prescription). In a lot of cases, coffee or other stimulants can help but aren't always available and don't fix it all.
Without suffering from ADHD, I'd say it's impossible to even comprehend the mental strain one experiences even for menial everyday tasks like remembering to brush your teeth (I require an app to remind me of doing that when it is not a workday, as my usual routine of going to work and going to bed early for a workday involves it. On weekends or vacation, I do not remember on my own to do basic things like that).
I just started working again (on medication) after a 6month work break and it is so refreshing to be able to focus on work for the full 8 hours in a work day.
Like you said, the medication doesn't really help with all the "other" stuff that comes with ADHD. (forgetting to brush your teeth is a real struggle) but at least it helps me to be productive and have a stable income again.
There were definitely years spent afterwards unrolling maladaptive coping strategies I'd developed, and I've just had six teeth out leaving me with less than half of what I should have, so definitely use reminders to brush, it's super-easy to forget.
PS. I've been on Ritalin (the Concerta XXL slow-release) for a decade now and it's a life-changer. The first time I woke up in the morning and remembered what it was I'd been thinking I needed to do before I went to bed was amazing.
My personal version of this hell is remembering to take the meds at all: if I don't have the "getting ready for work" routine (which is when I take my meds) ... I usually forget to take my meds. In fact, this just reminded me that I told my doctor I was going to try and download an app to try to remember to take them.
Yay for not being able to remember things!
I drink half-caff double shots (sounds odd but I want a decent amount of flavor but not too much caffeine), making macchiato first thing in the morning, americano later.
People laugh at how I’m always carrying a coffee when I’m working. I tell them I’m just keeping my caffeine at the perfect level, which is true.
Another example, Benadryl makes me insanely hyper. One of my kids is same way.
Telling a doctor results in being labeled a liar.
At least a dozen medications that I respond in weird ways to.
A 4 hour adderall (20mg), lasts me about 30 hours.
Worked better when younger. Now it’s role as a vascular-constrictor is dangerous for me.
I have adult ADHD, and even though I tried to get help when I was turning 20 and started to fail university (I had an average of 1.3 for the classes that I did finnish, I just couldn't commit to anything) it took me 3 years until I got a diagnosis (due to ridiculously long waiting times for doctors appointments).
In the end I only got a doctors appointment because I got diagnosed with multiple sclerosis, and my neurologist, who is also a psychyatrist was like "btw I also think you have ADHD, ever tried to get help for that?".
This is amazing to me. I've never seen as bad of a situation as with neurologists/psychiatrists. I called some a while ago and it was essentially either "we don't do any new patients" or "yeah, we have a wait list, if a spot opens up, we'll call everyone and the first person to answer gets it; expect it to take half a year though". Unless it's an emergency, you just won't even get to see a doctor.
It was amazing for focus and energy. Enough that I could work for a time.
Course it left me in horrific agony most of the time.
If you happen to be from Germany or France, watch this: https://www.arte.tv/en/videos/096295-000-A/psycho-attention-...
If you have more time, watch this: https://www.youtube.com/watch?v=dVDhYtQkuO8
This one is "fun" as well: https://pubmed.ncbi.nlm.nih.gov/30526189/
"Results: Childhood ADHD-C was associated with a 9.5-year reduction in healthy ELE (estimated life expectancy), and a 8.4-year reduction in total ELE relative to control children by adulthood. The persistence of ADHD to adulthood was linked to a 12.7-year reduction in ELE. Several background traits accounted for more than 39% of variation in ELE."
>People thinking it’s not a real condition.
the person you're responding to meant statements like yours:
>Frankly, the symptoms you describe apply to pretty much everybody, and are just the things one deals with in life.
According to the NIH, prevalence of severe ADHD in children is around 4% [1]. This differs by degree from "the things one deals with in life" for most people - it's an extreme version that can be debilitating without treatment.
[1] https://www.nimh.nih.gov/health/statistics/attention-deficit...
Mostly I’m alarmed that so many parents are happy to put their small children on a lifetime supply of medicine for something that’s not immediately life threatening.
I don't think you get it. My son can either be on medicine, or he can fail middle school, and high school and be uneducated. If you're volunteering to sit next to him, and redirect him to his work every 3 minutes, or pay for someone to do it, by all means, let me know. At the same time, he's brilliant, and can solve any problem he puts his mind to, and he can do the actual work, if he can focus on it.
Maybe re-think this without the judgement--good parents aren't happy about doing this. They are just less unhappy than the alternative.
We haven’t had to medicate them yet but the decision would be a very considered one and weighed up to if it would change their lives for the better.
Since the US makes it so hard to get (you have to renew your prescription every month) it's actually very likely you'll stop it.
From TFA: Qelbree "may increase suicidal thoughts and actions in some children with ADHD, especially within the first few months of treatment or when the dose is changed,"
https://www.psychiatryadvisor.com/home/topics/adhd/stronger-...
In this case, medication tends to report silly things as side effects because they report every single thing the patients are experiencing. There's no frequency of reports here, but it could be just a few reports with no causation established.
And here is yet another victim to the 'Europe is a homogenous country-like entity' fallacy. Where in Europe are you talking about, and what age category? Because I can tell you that in the Netherlands this is very much wrong.
1. there is lots of evidence showing that “something” is wrong with lots of peoples executive functions and that this observed problem is hereditary.
2. this is pretty insensitive.
everybody does have these symptoms to some extent as you executive functions can’t be running 100% all the time. just like everyone has varying degrees of sight. it’s only a problem when it negatively impacts your life.
for someone with an executive function disorder the symptoms happen often enough and with enough severity to materially impact their ability to; do work, have friends, be organised etc.
not like, oh i forgot the milk (though, that happens) but like: “oh, i forgot i was brushing my teeth and now i’m searching for rubber gloves to replace the ones with a hole in from the kitchen, where did i leave my tooth brush?”
the meds impact people with an executive function disorder little differently too, they return executive function to normal. so, while you maybe amped up on amphetamines to some degree your head is clear , your ability to pick which questions to answer, which rabbit holes to explore, to maintain more than 1 thing in your head at a time is restored. for 4-8 hours a day you get to be somewhat like your peers.
Looking at the numbers, I'm leaning towards that too. 9.4 percent of children are diagnosed with ADHD, and that's just the confirmed cases, nothing about estimated prevalence. Either we're screwing up the diagnostic criteria and overlabelling people (or worse, we're diagnosing them out of convenience), or we've seriously fucked our own society in ways that aggravate this, and medication is at best a stopgap.
My money is on this option. We have so much more things to cope with, and so much more change in these things to cope with, than we would have had 1000 years ago. I can imagine that this constant information overload would push some people over the edge that would have functioned well in an earlier society.
(Disclaimer: I'm not a specialist in psychiatry or anything like that.)
My gut feeling is that overcoming this is a big part of the true solution.
Basically every child and grandchild has been diagnosed with ADHD, or really needs to get tested.
For example, a lot of parents do not treat their ADHD kids with medication. However getting the diagnoses allows for the kid to get an Individualized Educational Plan setup with their school district that makes exceptions to cater for their needs, like special counseling services. A medical diagnosis of ADHD, especially if untreated, is how you get into these special programs.
In Europe acceptance of ADHD has lagged behind the US but you'd expect stronger institutional health-care systems to reduce cultural differences somewhat.
Europeans tend to gasp with horror that the school system is "pushing drugs on kids." But it's really more that through the school system the kids and their families have access to free medical advice and social services. So whereas in Europe you might have to remember to ask your general/family practitioner when you see them once a year, in the US there's a team of professionals working through the school system that are making sure kids have everything they need to succeed. Usually that's things like free food so they're not hungry or school bus transportation, but in ~5-10% of the cases it means ADHD diagnosis and treatment. So while this a bit less than double the percentage of kids that get ADHD diagnosis in Europe, it makes a bit more sense in context.
It might be over-diagnosed in the United States. I sure think so. But that does not make the effects of the disorder any less damaging.
At any rate, perhaps you might consider whether Europe is under diagnosing disorders like ADHD? Or, perhaps your have an incorrect understanding about ADHD diagnoses in the US?
I think this is the main cultural difference, not that its underdiagnosed
Is this because it's looked down on?
Are you able to function perfectly as a normal adult? i.e. all the symptoms from the top posts are in check through habits, etc?
If so, what's your secret? Because just living is very difficult and that's WITH vyvanse+2 energy shots per day with l-tyrosine, taurine, b6, b12, b3 and at least a little l-theanine per day.
I am far from a perfectly normal adult. I never tried getting there tho
I was diagnosed with ADHD, prescribed ritalin. My mother opted me out of being medicated. It wasn't necessary for me, because I shouldn't've been diagnosed with ADHD. This was in early 2000s when ADHD was being applied to any kid with today's spectrum-like behavior
But that doesn't mean others don't have a real struggle with this
I was even diagnosed as a child (very rare back in the day) but all they focused on was the hyperactive part. They made me attend useless therapy sessions, blamed me for everything and labeled a lazy not caring child. No one ever even mentioned medication.
The hyperactive part went away when I was around 13. I was healed or so they thought. Still lazy, still wasting my potential, still couldn't learn to sit quietly in place but not stirring trouble anymore.
My life was a disaster since graduating high school. I dropped from university. Lost contact with most friends, started gambling for living - I was good at math and reasoning and it was easy back then to make living at it. I never had any kind of job nor hold any kind of marketable skill.
And then I met someone who gave stimulants to me. It was night and day difference instantly. My apartment was suddenly clean. My bills were paid. I started learning programming again. I founded a small software company which got very successful. I started a relationship, reconnected with some friends. Started doing sports, stopped missing appointments. I even got officially diagnosed with ADHD in my thirties. It took a while to find about one place in my country that diagnoses adults. Most doctors didn't even want to talk to me as they thought I just want to get stimulants to get high. It's a humiliating experience when you hear a doctor after doctor telling you it doesn't exist, that I just want stimulants or that maybe I should get a calendar and organize my life.
It's still not perfect. The only stimulant I can legally get here is Ritalin which has very unpleasant side effects. I can get Modafinil on black market which is too mild but doesn't have sides and makes things a bit better. Trying to get Adderall can land me in jail. It's usually a mix of small doses of Modafinil and either caffeine or very small Ritalin dose. This way I can get a few productive hours a day. Maybe 4. If I can get 4 I am happy. It was a good day and I don't hate myself after.
I have one thing to say to self righteous moralizing politicians and doctors in Europe. Go fuck yourself. I am lucky to be born with above average IQ and not trusting you much. To do my reading and being able to get stuff on the black market. You still caused my life to be a constant struggle for 2 decades. I know there are people who never realized the change is possible and their suffering is to satisfy your moral convictions.
So why exactly are you horrified? Is there a pleasure in watching people struggle and being able to get help? Is it some kind of God given destiny they have to deal with? Are you horrified when people get insulin to treat Diabetes as well or TRT to treat androgen deficiency? I have heard such comments a lot and all I hear is: "you should suffer your destiny, we don't help people here".
Long story short: Adderall has a side effect of making people lose weight. Didn't took long for Endocrinologists to start to "diagnose" ADHD and give Adderall like candy... Government couldn't find a way to fix that behaviour and decided to just ban it outright.
To be honest, despite the fact I have hypothyroidism alongside ADHD, I hate endocrionologists, I NEVER (really) met one that is 100% honest, they are always doing shady shit, never saw a medical branch so riddled with corruption and shenanigans.
- parents not actually caring for their children. Not putting them through the motions of life. Boundaries, schedules, motions, etc. How many of those have dinner in front of the TV? Don't "eat their vegetables"? You raise a kid on overprocessed food and no exercise, what do you think is going to happen? (not saying absolutely this is the only issue, far from it)
- Overmedicalization, sure, up to a bit. I can sympathize with people that need the medication to feel better and be productive, but how many of those have a legitimate problem and how many of those "just need a nudge". Learn to manage emotions and priorities is also part of growing up.
- "Somebody elses problem", If school is boring is the problem with the school or the kid?
Not saying that ADHD is not a real issue, but if you took a look at all aspects of that person's life, I bet you would find lots of things to fix.
I think that threads from few days ago where basically all Americans found it normal and expected to for 5 years old to learn reading might have to do with that. If you expect too much of kids too soon, a lot of them wont be able to cope. You can then either adjust expectation or claim those kids sick.
The other difference I noted is much less physical freedom Americans give to their kids and much bigger obsession with physical safety. Their kids do a lot of organized sport, but seemingly less of "run around as you please right now on whim". Which might have been related.
"Rejection sensitivity" is not medically accepted; this isn't to say it's being suppressed by big psych, it's just something an ADHD blog made up and everyone thought they were authoritative about it for some reason.
The symptoms of "rejection sensitivity" are just anxiety, which is often comorbid with ADHD.
> - Medication only helps with the attention issue for maybe 8 hours. It doesn’t help with the other 95% of the issues
The non-stimulant medications (Tenex, Strattera) have their issues but they are 24 hour effective. Maybe this one too.
I've previously thought I might have ADHD to some degree (Never been diagnosed though) since pieces like that article felt somewhat familiar to me.
I would say I can relate to most of your list, but they don't really seem to be caused by ADHD to me. Or maybe I do have ADHD and that's why I can relate. I have no clue.
From what I understand, ADHD and other executive function disorders are Defined by having extreme enough of an executive function deficit (relative to peers of a similar age and development) that it has a significant impact on their day-to-day life (because if it didn't, why would you be going to a psych to be diagnosed?). But just because it's relatable also doesn't inherently mean that you have ADHD.
If you think of executive function as being a spectrum, and executive function ability being a normal distribution, the line for adhd is some arbitrary point on that upslope.
Of course, there are people making the argument that phones and social media and the internet and instant gratification might be contributing to executive dysfunction, but this is the kind of thing that's really hard to measure against some objective scale.
It seems to be very poorly defined, and from what I understand being diagnosed is practically still self-diagnosis because the doctor will ask you questions about your behaviour and judge whether you have ADHD or not based on that.
Looking at the CDC website on ADHD [0] and without trying to force things to fit, I easily meet the criteria for inattention. Yet a lot of the things I struggle with like the parent comment listed I don't view as being related to executive function (Ex: rejection sensitivity and maintaining friendships).
This seems pretty par for the course. A doctor asking you questions and then deciding whether or not you meet some threshold based on the answers to those questions is a large part of medicine and a huge portion of psychiatry.
I don't know you well enough to give a decent hypothesis, so I'm just going to guess and babble a bit: Generalizing adhd/executive function as being composed of attention, self-regulation, and motivation. My first thought is that rejection sensitivity could be emotional regulation thing, which might have some interplay with general self-regulation. My followup thought is something along the lines of rejection sensitivity involving paying too much attention to the negative and not enough to the positive. Re: maintaining friendships, I don't have enough information. Personally sometimes I struggle with motivating myself to reach out, make plans, etc. Other times I feel bad because I feel like I have trouble focusing on what my friend is saying or asking them to repeat themselves or otherwise being a bad listener in the moment.
Self-regulation is something improvable without medication, I think meditation is pretty effective. And Self-regulation can play a big part in helping manage attention and motivation issues.
Some of this might resonate, some of it might not. If you'd like support tackling your struggles, you can contact me at me @ my website name (but a good therapist might do a better job xP)
For me this falls under a general "lack of proprioception" in which I'm bad at recognising both bodily and emotional feelings until they hit a certain threshold, at which point they surprise me at full force. It does have some advantages as an adult - I'm very emotionally steady due to not being influenced by every emotion - but on the other hand it means I miss emotional cues that are often better dealt with before they get too serious, makes relationships hard for the same reason and leads to the risk of substance use as a way of compensating for all of this.
Honestly, for me the attention-related symptoms are the easiest to understand and learn to manage, it's this disconnect from body and feelings that causes the most challenging problems to even notice, let alone manage.
One thing that's really helped me is to periodically sit down with a piece of paper in a quiet room and answer the question: "what am I ignoring right now?"
The stuff I write down _always_ surprises me. Always.
Ketamine is an anaesthetic and taking it makes me feel incredibly connected to my body and emotions, probably because it reduces all of that stuff around the edges.
If you don't mind my asking, how often do you take Ketamine? I have no experience with it or anything like it.
It's an incredible experience and a medical tool with a lot of potential, see its recent use for chronic depression and alcohol addiction. Recreational and therapeutic dosages are very different though!
Writing your thoughts in that style is up there with exercise for healthy management of ADHD IMO. Glad you've found such a tool, I've something I've struggled to get back since I stopped writing my diary.
Having said that, a couple of things:
- I think on HN it would be more appropriate to link to medical/scientific resources, instead of personal blog pages like this, which despite being relatable, are dangerous to extrapolate an objective and statistical view on the topic from. I personally found some parts to be too driven by animosity (against "nonbelievers"), and some to show contradictory advice. There are several good parts, but overall I did not find it a high quality piece, and I would advice against proposing that as a flagship piece.
- When I read pieces like these, the question that pops into my mind is: how can we distinguish a person that has a condition and that needs comprehension from a person that is just lazy, that just wants to do what they want all the time, and that lies to you about them being in pain (or maybe even lie to themselves, having built a view of the world in which they thing they are going through something and they are legitimized to act in a certain way, or they built a habit and can't help to act in that way)? I do not ask this with the intent of provoking anybody. It is a serious question, both philosophical (what is lazyness? Is there a thing such as inability to focus with and without malice? Who has the right to judge morally?) and practical/scientific/medical (how can we distinguish an illness from something that would look indistinguishable, when hearing from people claiming it? What are objective methods that we can use to declare that we are witnessing a legitimate impairment in someone? Does a right moment ever come for nudging, scolding, encouraging? Or is it never the right thing to do, with anybody?)
I think, to answer the latter, more statistical surveys would be useful for all of us to share and to read, so that we could avoid the usual anecdote-driven arguments that most of the time plague threads like this one, even on a website like HN, which is full of scientific-minded people.
I am the first one that would like to read more academic literature and less anecdotes on the topic, but I am not very informed. So, if anybody has resources to share that could help the discussion, please do! :)
Progresses are VERY slow but steady (even slower given the lack of will power), but quality of life improves dramatically over years. I even stopped micro-dosing because I didn't need it anymore.
The sooner you start, the better, given the time scale. You don't change something that deep in a few weeks, and you may slack off, give up or back track many times.
I'll advice Vipassana because I have experience with it, it's light on the religious aspects and you have centers to teach it pretty much every where. Anyway, don't try on your own, it's even harder alone.
* Ability to assimilate and process information * Ability to hyperfocus * Shit loads of empathy (can get a bit out of hand thought!) * Creativity
There are lots more things that we're better at than non-ADD people, I just can't think of any at the moment! See Lynn Weiss' book for a more comprehensive list.
I think it's important for ADD people to not play the victim; yeah we're different and yeah, society doesn't favour our way of thinking but it's not all bad.
Because the negatives massively outweigh any positives? I know that there are some authors who are trying to sell the idea of 'ADHD as a superpower' just like there are other authors who are trying to brand autism or even surviving cancer a 'superpower'. But just because an opinion is contrarian doesn't mean it's right. How else would you sell a book in a saturated market?
These 'positives' you mentioned are kind of useless when you can't steer the direction of your attention but tend to hyperfocus on random things that change ever so often.
If you can manage to somehow make a career out of it, more power to you.
Personally, I have tried to learn coding for over 20 years now. By now I have started over for dozens of times (Pascal, Delphi, VB, C, C++, Python, JS, Rust) and still I have zero to show for it.
Well it certainly does not help that ADHD diagnosis is closer to art than Science. There is probably a bunch of disorders that we just call ADHD for the lack of better tools.
Disclaimer: I used to work on drug dev for ADHD
It’s a huge blanket diagnosis.
Comments like this make me angry because it shows how much of a disconnect there is with taking ADHD serious. It's like saying to a depressed person to "just don't be sad and focus on something fun".
Sure everyone struggles, but imagine those struggles cranked up by 20x. You overthink EVERYTHING, you're driven by random impulses that make you focus on something new and shiny, that make you yourself believe that this is not an impulsive, but this time something worth committing to, just to lose interest 2 weeks later.
Small negative things like someone not replying to your message right away can result in dysphoric episodes without medicine and completely crush your motivation for days.
You drop everything to do dumb things like replying to your comment even though I should be working right now, but I can't not do it, my brain just doesn't let go.
My brain always works in extremes without a middle-setting. Either I'm 100% into something, or I am so not interested that doing mundane things that don't have an immediate urgency feel like having a tooth pulled out and I'd rather do anything else instead. Try translating that to more boring tasks at work and you can see how this becomes a problem.
The list goes on and on and on. Living with ADHD is a nightmare and constant struggle.
“Everyone goes through this.” Sure. Once a week. Maaaaybe once a day if they’re treading towards ADHD, but it’s not inhibiting to their lives.
But if you have ADHD: it’s closer to once a minute, sometimes even every ten seconds. A conversation that lasts more than 10-15 seconds? A struggle to follow. A minute, ten minutes, an hour? I’ve lost the tangent so many times I couldn’t count if I tried (you need short term memory to count…)
Summary: https://www.woodburnpediatric.com/blog/adhd-brain-different-...
Paper: https://www.thelancet.com/pdfs/journals/lanpsy/PIIS2215-0366...
https://linkinghub.elsevier.com/retrieve/pii/S22150366173004...
do you believe in the concept if mental health at all?
It takes a long time of not focusing on daily practice and discipline to get to the point where you don’t realize you need to put in at least a few hours of studying per day. If you go years and years of studying the week of or the day before the test, you will become a certain way. I’d wager most Americans do all their major class work last minute since they were kids. Along with that, they spend hours and hours playing video games and watching YouTube/Netflix/social media since childhood. By the time you are 25, you probably have a solid 20 years of insane habits.
What few people will admit here is what they did for most of their life. Okay, so you realized you can’t read a textbook in college. Can you describe to me how you passed the time over the last 18 years? I’m sure you managed to fill the time. You didn’t stare at the wall for 18 years. If you literally stared at the wall, fine, here is a prescription to whatever drug you want.
If you managed to do all of the other bullshit I described above, then please take some responsibility on developing better habits. It’s the intellectual version of becoming obese. You know what you ate for the last several years.
The only part of this I have genuine sympathy for is that life does not wait around for you to take the steps and fix this stuff when reality confronts you. If your 20, life will not wait 5-7 years for you to rehabilitate. Life will pass you by. I understand it, but we aren’t going to propagate confirmation bias, especially when we are teaching the new generation of children even earlier that their habits are conducive to being productive.
The developer community can help in the workplace. Split up work, don’t make everything end-all-be-all project. Everyone’s dealing with burn out or a lifetime of bad habits, drug dependency, etc, and this will compress the timeline needed to begin fixing this. It’s unfortunate, to say the least.
With ADHD meds, I'm suddenly performing like all my potential and desires suggests I should be.
I'm sympathetic to your argument, but I think it falls on deaf ears for those who need to understand it. There is indeed an issue with "normies" who don't have such extreme challenges and can't imagine them in that they tend to set the policies, but the non-normies arguing with you about how drugs are absolutely necessary either ignore or fight by mischaracterizing other non-normies who have experienced such challenges, yes even at extreme levels, and understand, and nevertheless successfully thought their way out of them. Or at least well enough out of them that they have a satisfying life, and sometimes with more "just happened/got older" mystery than conscious thinking. But these two sets of non-normies form multiple crab bucket mentalities which makes communication difficult. The crabs in the bucket create additional obstacles to escaping the bucket and inevitably when one escapes he tends to look down on (if not resent) the ones still in the bucket, while the ones in the bucket have similar negative feelings for the escapee, even to the extent of thinking he can't imagine what it was like inside the bucket. As an analogy for another kind of crab bucket mentality that can happen, i.e. "there's nothing wrong with me/us", look up some deaf people's thoughts on hearing aids.
An attitude of "I thought myself into this way, I should be able to think myself out of it" is hard to internalize and harder to pull off. I'm not sure you can successfully argue it into someone. Especially someone who is using drugs to alleviate their situation has in some sense already given up, and perhaps rationally so -- there are effectively irreversible processes, if your walk into darkness included a fall down a cliff, you can't just "fall" to get back up, and if you get it into you to at least try becoming stronger and climbing back, you may find the cliff is just unclimbable after all. (Though there may be a way around, or a more climbable slope, that can at least get you incrementally closer even if you may never get back to where you were originally.)
I think your highlight on video games / other modern media is misguided, but there is something underlying it, which I'd summarize as simply that society is sick. A healthy society does a lot to alleviate the individual pressures described all over these threads, often preempts the need for individual strategies to deal with them, but a healthy society is not one just like ours but without games/YouTube/social media/normies controlling drug access/skyscrapers/[whatever one's particular axe to grind]. What to do then, to alleviate your pressures? Sometimes it's "nothing", they'll go away on their own. Sometimes you can make a go at changing society in a measurable way (though you'll probably just make things worse if you have any impact at all). And sometimes it's drugs, or an escape into games/studies/work/farming, or therapy, or religion, or crafting your own philosophy... I don't see a universal answer. I dislike it when people suggest there is one without solid data, whether that's "more drugs!" or "just Be Well!". On the other hand it's important to look at data and recognize when highly effective treatments do exist for lots of things -- vaccines for instance, or for an obese person rather than "put the cookie down!" (were it so easy they probably wouldn't have gotten that way) it's more useful to point at keto. (Still a "horse led to water..." effect there that may have to be addressed first, but a less intensive one, as you don't have to feel starved. Calling the effect an "executive function disorder" may be useful in having a fancy label for the phenomenon, I prefer "akrasia", but focusing on the label too much risks conflating the map with the territory.)
not everything is a habit, some behaviours are impulsive or context driven. lets say that habits take time to form though.
> and therefore the way you get out cannot be instant.
this is only true if breaking a habit, is also a habit. i don’t not certain this is always true.
lets ask, what is a habit? since this is an async convo i will answer myself. i think a habit is a behaviour that you repeat based on some trigger (time of day, previous activity etc). based on that we could call a “routine” a series of habits (or habitual behaviours). we do them, one after the other, in sequence (generally).
yeah i agree, these take time to build! how do you maintain them? because i spent 3 years working on running everyday and then i was ill for a week and immediately stopped. i broke my habit (or routine) that took 3 years to build in 1 week. are you wrong or am i broken?
> In other words, the only way out of the darkness is walking backing through the exact path you came from.
more generally i would say, the only way out of “the darkness” (which i will use to mean a period of time in my life where i am incredibly unhappy) is to deal with my trauma and accept all parts of myself (probably with the help of a therapist). i’ve not found ruminating over the past to be a successful strategy for creating light in my life.
> It takes a long time of not focusing on daily practice and discipline to get to the point where you don’t realize you need to put in at least a few hours of studying per day.
i honestly don’t understand this line. is the realisation that small iterative steps are required for study innate? is this your experience? i had to explicitly learn it. is not one of the greatest productivity strategies to break large complex things (passing an exam) into smaller, manageable tasks (a few hours of study a day). i do not buy this line.
> If you go years and years of studying the week of or the day before the test, you will become a certain way.
what certain way is that?
> I’d wager most Americans do all their major class work last minute since they were kids.
it would be interesting to see a survey of this! i won’t join this wager as i don’t like gambling.
> Along with that, they spend hours and hours playing video games and watching YouTube/Netflix/social media since childhood.
what are you claiming video games, youtube and netflix cause here? I’m not saying they each don’t have they negative aspects! especially youtube, just enough dopamine to keep you watching, so easy to waste a bunch of hours.
> By the time you are 25, you probably have a solid 20 years of insane habits.
i too thought i was late all the time because of the template my mum handed down to me(shes late all the time too). you know what else can be handed down though? heritable traits.
i still object to modelling all human behaviour around habits. the scope is much larger and the insanity is often a lack of behaviour (e.g not washing your butt).
> What few people will admit here is what they did for most of their life. Okay, so you realized you can’t read a textbook in college. Can you describe to me how you passed the time over the last 18 years?
read interesting books? played games? made music? rode bikes? went to parties. i’m not sure what you are attempting to get at here.
>I’m sure you managed to fill the time. You didn’t stare at the all for 18 years.
see above.
> If you literally stared at the wall, fine, here is a prescription to whatever drug you want.
so only if i did absolutely nothing in response to not being able to do something else, do i qualify for medication? i guess no one with any executing function disorders should get anything because sitting still is a real pain. sorry we’re not performing disorder well enough for you, i’ll get all the adhd peeps into a workshop perhaps you could join since you know exactly how someone with a disorder would perform. we really need those meds so any help you can offer is welcomed.
> If you managed to do all of the other bullshit I described above, then please take some responsibility on developing better habits.
man, f*k you. i’ve been taking responsibility for my actions for 30 years. you don’t know me.
> It’s the intellectual version of becoming obese. You know what you ate for the last several years.
so we have resorted to fat jokes. well, i’m not sure what i had hoped for tbh.
tl;dr you don’t believe in this ADD-whatever the fuck and people should grow up and act like ever other adult.
idk if you are a boomer but you should get checked out for alzheimers because your ideas are old as fuck.
NOTE: i had a nice, emotional description of my experience but i forgot how people here like to argue (stupid me), so i took responsibility for my actions and took apart the argument line by line instead.
Look, once your life depends on a decision you know was a trade off (you feel entitled to whatever it is you don’t have from not putting in the actual work), it’s going to take intense mental gymnastics to feel sound as a person.
But I can help you, repeat after me. This life wasn’t going great, so I made a decision. It’s better now, and I can live with it and fuck anyone else.
All I’m saying is, don’t you dare sell that confirmation bias back into the zeitgeist. We can be friends, I’ve been there (probably still there). Certainly don’t try to sell it to the person that put in 3 years running, and the only difference between you and that person was an unprovable chemical deficiency. The guy waking up everyday to run never felt like it was never going to amount to anything once, right? They just had it in them, just like you. It’s all in you, like magic, just needs to brought out.
Just own your decision in it’s entirety. No one is a saint here.
Edit:
is not one of the greatest productivity strategies to break large complex things (passing an exam) into smaller, manageable tasks (a few hours of study a day). i do not buy this line.
This retort is a dead give away of entitlement. Everyone breaks down studying like this, Jesus. How special do some of you think you are? This is all supposed come freely to you? Read a chapter a day, and if some of you truly exhibit the impulsivity of dogs (the wind can distract you apparently), then read a page a day, and if you can’t do that, read a word a day. This is how people do it. Bunch of hidden brainiacs think they can just take a book and place it near their forehead and instantly absorb it and then cry foul when it doesn’t happen.
And the last thing I want to add is, you won’t have fun doing any of the above stuff. It’s never going to be fun and it never is fun for anyone. The only joy you’ll get is at the very end when you succeed.
Yep, classical delayed gratification.
Now we get closer to the truth, yeah?
You still haven't understood the perspective of people with ADHD. They know all of this intellectually (and depending on age) they have tried more systems, mental models, techniques, strategies, tricks and hacks than you can ever imagine.
This is not something that you can "tough your way" through, or all of this being harsh on myself would have amounted to something.
Your example, with reading just one word a day and the compound effect of repeating that behaviour regularly, hinges on some "axiom" that one will just stick to a habit. With ADHD you just "forget" to read that one word, no matter how many post-its you stick on the monitor or mirror. At best you cycle back to the "word" every few weeks without making progress, like treading water.
Either I was reckless, or I had no conception of the magnitude of the consequences. Is that a concentration issue?
I think that ingrained bad habits are only the top layer in a life with ADHD.
take some responsibility for yourself.
I've been medicated since the age of about 5ish for ADHD. I've gone med-dry for rediagnosis no fewer than 3 times, because skeptical arseholes drive policies that lead people to believe "there's no way they can be handicapped with how successful they are [on meds]" without "proof". Every last time was an unceasing nightmare for the period of time I had to go without. I can barely keep a thought in my head, I can't get out a coherent sentence, my physical coordination is shot, my own sense of self gets completely obliterated, access to memory, skills and executive function is majorly impacted. I'm more a a bundle of physical reflexes and responses to stimuli than a human being at that point. That and one small section in the back of the head that can measure intent vs. Outcome, and can only marvel at the clusterf--- of higher executive going on at the time, routing the memory to the hippocampus and tagging it with every emotional emphasis available as not something to be done again.
Not being on meds at this point is not a viable option for me, and dear God, have I tried. I hate them. I hate the dependence. I hate feeling like a complete person half the time. I hate that my family and friends never get me at my best. I hate that my SO basically gets the least garbage version of me I can muster after work. Over and above the dry spells for re-diagnosis. I've done several month stints between jobs because the meds were costing too much at the time. My family and romantic life suffered, my sanity suffered, and to this day, I still deal with trying to answer what it means for me that every positive quality, nay, the mere capacity for me to perceive and think I have positive qualities is all tied up with a stupid godforsaken pill that the rest of society can at best begrudgingly tolerate letting me take, and only then with massive constraints put on my ability to roam freely without going through the nightmare of arranging medical care at my destination ahead of time because the Dimwit Enforcer Agency and the FDA have deemed it necessary.
Not once has going dry yielded a productive improvement of the condition or resulted in productive avenues of shifted thinking/practices to mitigate the downsides. There is no "learning around it" there is a functioning neural architecture that allows you to painlessly integrate and handle modern society, and there is untreated ADHD. Your (society's) expectations and mores mean nothing to the ADHD individual, because there is no one consistent supervisory thread to pick out an option. There are several hundred, and they all want direct access to the hardware now damnit.
The best way I can think of to demonstrate what the ADHD mind is like is to have someone slip on a set of earphones, pipe in a session of Congress, a cafeteria from each level of schooling, a busy doctor's office's waiting room, all at the same time, have someone talking in front of you while another person pokes, prods or massages you while wearing something you aren't used to wearing, with a box fan pointed at you full blast, in a room with a flickering strobe light that doesn't quite settle into enough of a pattern to filter. Air thick with a perfume you detest, air fillef with a scent you despise mixed with Febreeze, two to four radios in the background on stations you hate, and just loud enough to clash with what's piped in from the earphones. Now with all this going on simultaneously do long division and everything else everyone else has as an expectation for you to do as an adult (nope, children don't get a pass) in society in mind. Also, anytime someone brings up a subject of interest, pipe in about 50 somewhat related factoids in your own voice over those earphones and try to keep straight and make sense of everything.
That's ADHD. Your own personal legion of annoyance. The multiple personality people have it easy. They can blame the other. The ADHD individual is completely aware of all aspects of how badly they're failing right now, what they'd rather be doing and how awesome it would be to do something else, all the excuses they want make but know won't matter, all the possible directions for the current conversation to go, and all the vivid associations and outcomes of conversations that have happened like it in mind. They don't get much if any choice in which of these parallel thought streams takes the fore of their cognition. Even with decades of practice, it doesn't come naturally. It is thinking in manual, but that analogy breaks down because it implies that the medium being automated is not the normal state, where from every attempt to get meta-cognitive neuro-typicals to describe their thought processes to me never even come close to the level of mental noise I have to consciously cut through on a regular basis. That's all with a stimulant mind. Ground state? There are no words for it, it just is what it is; an individual equipped and processing a world in a way completely unfamiliar to what non-massively-parallel people seem to have to have any experience dealing with.
And yet, add some stimulant, and suddenly, peace, normality, and a semblance of synchronicity, order, and a kernel of normality arises out of the sea of chaos ensues. At least as long as the dose holds out. You have a stable base state for a time to learn the skills you need to employ to somewhat compensate, but once you remove that foundational state, you're right back to internal uncoordinated chaos. That meditation trick is no match for that one lady's perfume, that pomodoro is more distraction than anything else because you keep looking at the clock. You try to plan your day, but end up throwing that out the door because to hell with it. Now for something completely different.
Not on occasion, mind, but...all...the...time.
You can feel or perceive yourself as a god on meds, if you're prone to that sort of thing; someone you think is worthy of being looked up to, someone you can feel great for being, and at the end of the dose, end up feeling like a wretch, a moron, and an incompetent who can't possibly be the same person they were just a few hours earlier.
I will, and have told people with your viewpoint that they are free to hold it, but not in my presence. I am absolutely intolerant on this matter as a living bloody example of the condition with just about every diagnostic criteria checked off at its most severe, and want to make it unambiguously clear you are making the world worse for every sufferer of ADHD, myself included.
I have lived with this curse my entire life. I've grown distant from family because a family member refuses to treat his, and it compounds his other difficulties. That was his decision, he made it, and I made mine to stick with treatment, to do the best, and make the most of what gifts I have, and that the medication grants me the capability to meaningfully exercise.
I will not sit here and let anyone make light or doubt the suffering I and others experience every day without response. I won't say my bowl of shit is any worse than anyone else's, but it is damn well nevertheless there, and it damn well is something no one with a brain that just-werkz will or even likely has the capability to understand or deal with with in a way that makes it tolerable. Sad thing is, I wish you were right. I wish it was just me being lazy. I wish it was my lack of discipline. Alas, not a one perso who doubts it have I found that could even posit how to fix it, never mind learn to deal with it.
Now I won't say there isn't some level of people using an ADHD diagnosis to get access to the meds. That absolutely is a thing, and I despise it with every fibre of my being. I have been on them so long, and built up tolerance as a result, that I've exceeded most therapeutic literature, making my life a living hell of dealing with an insurance company that went out of it's way to make my treatment's as difficult to come by as possible. I've been on enough of the meds to know what works for my chemistry, and what doesn't; and I've voluntarily cut back my dosage to the relief of my therapist, but to the detriment of myself, and to the worsening of a relationship, because an old regimen was too prone to causing aggression spikes, and at this point, I'm just tired of being fully cognizant all the time of how the world is actively orchestrated to make everyone's life difficult, but not in possession of enough body or output device to do anything about it.
Call it mental suicide if you will. I broke my vow and took an extra dose, just for you. You lucky individual, because even if I hate everything about how this affliction has ruled and continues to ruin my life, I hate only one thing even more.
People who think ADHD doesn't exist. Go to hell, sir. I have seen, overcome, and been things you cannot even imagine. Just as you undoubtedly have done the same from my perspective. I have had to sacrifice and work harder than just about anyone else just to fit in well enough to be mostly ignored and left to be, and held myself to do all the more with the stupid meds for whatever degree of imagined superhumanity you reckon they must confer so that in addition to telling anyone off who doesn't figure they just level the playing field, that for any unfair tilt in my favor those pharmaceuticals may afford me, that it find a constructive outlet to the benefit of someone else.
Good day to you sir/madam/whatever floats your boat. You got a rise out of me. You win 10/10.
To all the other ADHD folks out there, I hope I've done your struggle justice, but if not, please chime in.
what is the purpose of this line of argument. do we agree that this is good? because this feels good.
> Look, once your life depends on a decision you know was a trade off (you feel entitled to whatever it is you don’t have from not putting in the actual work), it’s going to take intense mental gymnastics to feel sound as a person.
i struggle to understand what you’re saying here. could you provide a concrete example of a life depending on a decision that was a trade off?
i feel so much more sound as a person now that i can off load some of the guilt for being so bad at the simple things onto something else, i am infact much more sound than i have ever been. this doesn’t diminish my responsibility to change myself and my environment so that i can do those simple things, it simply changes my map and thus the strategies that i should use to accomplish my goals.
i’m sure you would agree that nothing comes for free. i am not saying that drugs will make me super man or that neurotypical people are super human.
though, to a person with glasses, 20:20 vision does seem pretty super human. as does the ability to do contact sports without massive preparation (goggles, contact lenses etc). in this metaphor the person with glasses is like the person with adhd fyi.
> But I can help you,
bold claims sir. given our conversation, i am doubtful of your ability to help anyone.
> repeat after me. This life wasn’t going great, so I made a decision. It’s better now, and I can live with it and fuck anyone else.
i’m not sure what this is supposed to do for me. do i say it into a mirror and Frederick Hayek will appear and save me from serfdom?
my life was difficult. i discovered that there are reasons a touch beyond my control that were causing that. i took medicine, adjusted my ways and asked others to help by adjusting how they help me. it is still difficult but i feel less bad about it. fuck anyone that tries to diminish the work it took to achieve that.
the map is not the territory.
> All I’m saying is, don’t you dare sell that confirmation bias back into the zeitgeist.
what confirmation bias? which zeitgeist?
> We can be friends, I’ve been there (probably still there).
i feel that, and beyond this ultimately stupid argument i hope stuff stays good for you.
> Certainly don’t try to sell it to the person that put in 3 years running, and the only difference between you and that person was an unprovable chemical deficiency.
i’m not sure exactly what you’re saying here. the person who ran for 3 years was me. i didn’t sell anything to them. now i’m less depressed and anxious about my life excersizing is much easier. i can strive now there is hope again. why do you thin the source of that hope shouldn’t exist (in the face of some pretty good science that says otherwise).
> The guy waking up everyday to run never felt like it was never going to amount to anything once, right? They just had it in them, just like you.
yes i did and yes i did!
> It’s all in you, like magic, just needs to brought out.
this i can get down with. totally true.
> Just own your decision in it’s entirety. No one is a saint here.
what decision? to take medication? i didn’t decide that, my doctor did.
Edit:
> > is not one of the greatest productivity strategies to break large complex things (passing an exam) into smaller, manageable tasks (a few hours of study a day). i do not buy this line.
> This retort is a dead give away of entitlement. Everyone breaks down studying like this, Jesus.
wait, so you’re saying that this is in-fact innate and doesn’t need to be taught?
> How special do some of you think you are? This is all supposed come freely to you?
no, i said that i had to explicitly learn it. it would seem that it is you who thinks it should come freely. i specifically stated that i do not think this practice is innate and that many of us need to learn how to apply it (i.e it is a skill). thus, it by definition requires work to learn, develop and apply.
is it special to hope that the community i exist in as a sentient being would teach me these learnable skills? i don’t think so but if that’s entitlement call me entitled and bring some more of it!
> Read a chapter a day,
before you can know how to read a chapter, you must know how to read a book ;).
to be explicit, you’ve got to be able to see a big thing and break it down first, before you can plan the execution. then you need to organize (combine resources and time) to execute the individual tasks. the organization part is the hard bit for people like me btw. can make a plan. can do a task. struggle to translate from the first to the later (get myself, the resource, to start the tasks at the appropriate times). i’m an asynchronous job queue with 1 worker and a queue size of 1, new jobs have the highest priority.
> and if some of you truly exhibit the impulsivity of dogs (the wind can distract you apparently), then read a page a day, and if you can’t do that, read a word a day. This is how people do it. Bunch of hidden brainiacs think they can just take a book and place it near their forehead and instantly absorb it and then cry foul when it doesn’t happen.
just lol. people with adhd aren’t dogs, come on. that straw man you constructed is so absurd. im not saying neurotypical people can magically consume the information in a book (though who doesnt want that power right!!!) and meds wont magically enable me to.
i don’t actually have much of a problem with reading tbh. it’s not stopping reading. my problems are not around attention and tasks that can be done in flow. i would just like to be able to stick to a multi day plan without waking up tomorrow and being totally unable to do so.
> And the last thing I want to add is, you won’t have fun doing any of the above stuff. It’s never going to be fun and it never is fun for anyone. The only joy you’ll get is at the very end when you succeed.
if nothing is fun, what is the point? im lucky, i found the hyperfocus on my studies super fun! so fun i sort of burned myself out on them (less fun).
the way i see it, success is either now or never because there is no end state. we live and we die. you either enjoy living or don’t. you can trade time now for time later, sure but that’s a gamble and like i mentioned, i don’t like gambling.
> Yep, classical delayed gratification. Now we get closer to the truth, yeah?
you’re about as far from The Truth (tm) as we can get though i think you’ve shown us you truth.
I'm still having a hard time seeing this as a debilitating condition, I can relate to all the things you said and undoubtably taking drugs like modafinil or ritalin turn me super productive and focused, but I don't want to be medicating day in day out, tolerance grows too fast.
End of the day responsibilities forced me to stick with things after I lose interest, sure I may be 20% as productive as I would be if I was super interested and I spend 80% of the time distracted because I'm bored, but 100% is usually 5x of what people consider the norm anyway.
You don’t see it as debilitating because you don’t experience it. You’re describing the experience of your chemical reaction to drugs that treat a chemical deficiency you don't have, of course you react differently!
When I take amphetamines as prescribed and coordinated with my doctor, I don’t feel more productive or focused. I feel like the entire act of living isn’t a completely impossible catastrophe. I feel like I can speak to humans without collapsing into a trembling ball of anxious angry sadness. I feel like I can get to the store and back without a complete meltdown. I feel almost normal. Without it I’m lucky if I can get through the day without hoping I wouldn’t. Now do you get it?
The difference is if those issues are actually becoming a problem that affects your day-to-day life vs just a mild annoyance. When you can’t get your task at work done because you just really don’t care about it for example. Or when you again throw out your entire salary into this weeks dumb hobby that you are fully convinced isn’t just a phase.
It’s also worth noting that adhd is a spectrum and not a binary condition. Some people have more problems in some things while some other people struggle with something else, or have it very mild.
When I take meds I actually don’t feel any different. It’s just easier to stick to things and in more mentally balanced.
Funny story - I actually found out that I had adhd because I commented on a HN post about my productivity issues and someone suggested that those don’t sound normal. Even just officially knowing what’s wrong helped a lot with managing (even without meds) because I understand where these impulses are coming from for example
Now take “occasional ADHD symptoms” and ramp them up to the same degree. Get an idea of how this could be debilitating now?
Why do you feel your opinion is more valid just because you can’t see their pain?
I have hard time to see your broken leg as walking preventing condition. I have hit my leg badly yesterday, but I can easily walk now, it surely must be the same.
https://news.ycombinator.com/item?id=7418525
I’m a total hypocrite about this, but as many have pointed out, I can easily be an edge case. But if you read my comment from 7 years ago, you can see roughly the level of justification I was using and denial I was in.
But not everyone is me, and it’s possible in the process of accepting I’m not particularly special, that I’ve begun thinking we are all in fact the same and will go down the same path with this stuff.
I’ve talked in length in this thread mainly because it’s been a defining thing in my life. I know how it started, ended and have thought carefully about every juncture where things could have been changed (tapering down, etc).
Really?
How do you know that?
I don’t think you can come close to relating to what a non-ADHD person knows or feels as you have ADHD.
I'm pretty convinced that I have ADHD, will be seeing what I can do about it when the doctors are less stressed, one of the things that struck me recently is that almost everybody I meet causes me to think "wow, they're organised" - even to the point where someone who I know very well even has the piece of paper to prove he has ADHD is like a scheduling algorithm compared to me.
I’ve always thought it was a decent representation of how ADHD works.
Hyperfocus is harder to simulate, since it requires one to focus on exactly one thing for hours on end. To the point where you don’t even think about things like “do I need a drink? Do I need to pee?”
My wife is fairly nurotypical, and it blows me away sometimes how she can decide she wants to work on something, and then works on that something. For hours on end, while being able to interrupt herself with things like pee breaks and food, while being able to go back to the project after.
HARRISON BERGERON
In any case, thank you!
I had no idea what normal people felt like until I took doctor-prescribed amphetamines for the first time at the age of 35. Most people take speed for a high, but for me I just felt "normal" for the first time ever. I could think clearly. I could remember things. I could react entirely proportionate to the demands of circumstance. It's like something clicked and I was suddenly knew that is why life's a struggle! It was no longer my failing, but something I was born with.
Anyway, point is that thanks to medication we can get a glimpse into what life is like for non-ADHD people, and it is glorious. You don't know how easy you've got it.
Hyperfocus in ADHD doesn’t have to be about the focus being rewarding. It can be about the reward of getting the unrewarded thing out of the way. The exact opposite of what you’re describing, and what you might perceive as a “work ethic”, but totally absent any kind of time allotment or sunk cost analysis.
We can get hung up on something so displeasing to deal with that we cannot get it out of our heads, no matter how insignificant the resolution, and not let it go. For days, weeks, months. I’ve been through a fairly severe stretch of this recently. I hated every minute I couldn’t break out of it. But I couldn’t walk away and let the thing be unfinished, even knowing the “reward” at the end would be totally meaningless to me and the whole world.
I would even tell myself at the beginning of my day I was going to abandon these things. But I couldn’t do anything else! Things I wanted to do that I would enjoy more!
It’s not, though. With ADHD, people are as likely to get stuck in hyperfocus in things that are not fun and that they actively dislike, and be unable to maintain focus on things that are fun and that they like. People that have bought into the that behavior reveals preference have trouble understanding this as it directly conflicts with that wordlview, and tend to view ADHD as a failure of willpower in which people refuse to “properly” deprioritize their own desires for what is socially appropriate, but that is very much not what it is about.
I’ve been having such a hard time managing my symptoms because of burnout, and a long stretch of unemployment when I left my last job, and a determination to get a more healthy life set up that I haven’t been able to listen to music. I’m a musician, primarily for my own personal enjoyment, and I can’t even bear to hear a song. Because so many other things are jammed up in my brain.
Since then, I decided to build a personal site/art project (link in bio) and yeah, months struggling to finish and excessive perfectionism. Not excessive judgment once I got to some kind of finish line though, I’m super proud of what I started and excited about stuff I plan to do with it in the future.
Now I’m just focused on getting back on track financially. I’m not broke but have some pretty severe trauma response to the possibility having spent years earlier in life in poverty. Makes it hard to think about much else until I’ve got a bit of cushion again.
Has it helped or just continued the inevitable?
Good luck with it!
It fries your dopamine receptors, this is drugs 101. Your are not going to take speed every day for years and function normally, and you will literally need confirmation bias to make sense of that reality.
Also, here is another weird tidbit from life. You might not like the stuff you used to like anymore but you won’t even know since you are sure it’s the disease.
Funny you should say that, as there is much research to say that ADHD is primarily a resistance to dopamine and serotonin. See: https://www.psychologytoday.com/us/blog/evolutionary-psychia...
This is how Ritalin works, by slowing down the reputable of dopamine.
So, imagine the state of anhedonia you’re familiar with from long-term drug abuse - then imagine that is your base state.
If you play games with this daily you will need to believe that all hard work should be primed with a natural feeling of euphoria.
If you start the kids on it that young, up the pressure, and put them in the same room where everyone else is doped up on it, I can promise you will cook an entire generation of knowledge workers by the time they are 30.
Fuck that noise. Seriously. It’s somehow more ignorant than the “just cheer up if you’re depressed” hot take.
The only reason why I am where I am today is because I happened to bump into physics and programming early because I have such a short attention span.
I'm not overly familiar with the meaning of hyperfocus but what else is it if you literally don't sleep before the single most important exam I will ever take (due to the ridiculous UK school system) because I was stuck reading a more advanced textbook. I agree that some of this is on the individual - i.e. me - but I have been like this from pretty much day 1, i.e. I actually worked out the other day that I've only ever done something early I think twice in my whole life.
This feels especially jarring when it's so easy to enter a hyperfocus/flow state and tackle a task for 4 hours straight on some tasks but on others I'm _constantly_ trying to pull myself back on track every 30m or so. It's doubly frustrating when it's the Same Task, where I've made a ton of progress one day, and the next day I get caught in a distraction loop. It's triply frustrating when it's something that I know should only take 30m tops if I could Just Focus but ends up taking me hours and hours. Quadruply frustrating when that expectation of "oh it'll take me forever" turns out to only actually take like 15m (and for some reason my expectations rarely adjust) but I'm digressing a bit.
Sure they're problems everyone deals with, and everyone finds a way to deal with it. But some people find it More Difficult to deal with. I find medication to help when it comes to controlling my attention. Or copious amounts of coffee. Sometimes it helps cut down on how frequently I enter my core distraction loop, or it helps me notice the loop earlier so I can abort.
Anyways, yes executive function is a skill everyone has to learn at some point in their life; these are problems Everybody encounters. But it's Harder for some people, the same way learning to read is harder for someone who's dyslexic or public speaking is harder for someone with a stutter.
And executive functioning disorders are frustratingly self-perpetuating; how do you put more effort into focusing/putting more effort into things if you have trouble Choosing to put more effort into things in the first place? It's recursive. Medication helps break the loop (but is often over prescribed or misdiagnosed, and imo should be a scarce or temporary measure; a crutch to help develop the right skills to fill one's executive functioning gaps, but that's a different discussion).
I got straight A's in middle school but when I started in high school my grades started slipping. I got diagnosed after 2 years and just by understanding more about my brain and talking to other ADHDers my grades skyrocketed. In college I'm coasting on straight A's again.
After 3ish years diagnosed, I still haven't found any medication that works for me without ramping my anxiety through the roof (with anything school related), but I've found it amazingly helpful when I'm not stressed out. You might wonder what I'm using adderall for if not for school, but for me it just helps my mental state and makes interacting with people and just generally living easier since I'm not constantly distracted.
I'm lucky enough that my ADHD isn't too severe and I've had good enough teachers to make it through most classes. I'm also lucky that I can pretty intensely hyperfocus on coding except for off weeks where I just wanna skate or play video games or read or whatever else. My github squares tell a story.
You admit to doing mental gymnastics to keep your addictions justified and I think this is an example of you trying to convince yourself that your problem is common. Maybe you should get some help
We’re not justifying anything. We want to be more well. Proper diagnosis, treatment and recognition helps with that.
i know you worked hard to get where you are but wouldn’t it be better if there were a way for people after you not to have to struggle like you did?
is it not unfair that you had to work so much harder than your peers to achieve something comparable?
did you ever think that it wasn’t meant to be that way?
- Will power. People with ADHD struggle sooooo much with will power. It’s a constant struggle with everything in life and really wears you down.
- Constantly putting on a fake front pretending you don’t have ADHD.
- Rejection sensitivity
- Feeling inadequate, and unset at yourself for not being able to perform like peers
- Emotions swinging from happy to angry in a flash
- not being able to maintain friendships
- People thinking it’s not a real condition. Unless you have it you can’t even come close to understanding how much of a challenge every day is.
- Medication only helps with the attention issue for maybe 8 hours. It doesn’t help with the other 95% of the issues
This is by far the best what is it like https://gekk.info/articles/adhd.html and here is the corresponding HN https://news.ycombinator.com/item?id=22129777