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Re:Online activists are silencing us, scientists say by nateberkopec on Wednesday March 13, 2019 @09:07AM (#19378183)
Over the next 20 or so years, expect a lot of syndromes/conditions to be reclassified, as Michael Sharpe puts in the article, as "biological condition[s] that can be perpetuated by social and psychological factors.".

I struggled with RSI for a couple of years until I read John Sarno's "The Mind-Body Connection" on the recommendation of someone from HN. Sarno's thesis is that many chronic pain conditions (those without a clear physical mechanism, such as RSI or chronic back pain) are psychosomatic.

A lot of people struggle with this idea, and take it, as they did in the article, as "my pain isn't real". Sarno's book very clearly lays out that the pain is real, it's just caused by processes in your brain, not the rest of your body.

Societally it's all very strange. We accept a "mind-body" connection for certain types of disorders, but, not for others. Anxiety sufferers can fool themselves into thinking they're having a heart attack and hyperventilate. Why is it crazy or anti-scientific to think that the same can cause other symptoms? We've searched for decades for body-based mechanisms for these chronic pain conditions, why not consider causes in the brain?

Re:Online activists are silencing us, scientists say by vgoh1 on Wednesday March 13, 2019 @11:21AM (#19379541)
When I was a child, I would suffer from terrible muscle contractions in my calves. I would get a charlie horse in the middle of the night, and it would not go away completely for over a day. I couldn't put my foot flat to walk properly, and it was very painful. After about a dozen of these attacks, I noticed a pattern - they would occur on the night before something that I was dreading - a test I wasn't prepared for, a school dance, etc. Once I realized this, it never came back again. On the outside, it appeared that I was faking the muscle issues, but actually, my mind was causing charlie horses deliberately. It was very odd, but will always stick with me that the connections between body and mind are not well understood.
Re:Online activists are silencing us, scientists say by magduf on Wednesday March 13, 2019 @12:36PM (#19380390)
I've had something similar, where I would get a massive cramp in the night while I was dreaming. It was definitely, IMO, caused by something going on in my mind. I had to learn to wake up immediately when this happened and exercise conscious control of the muscles to stop the cramping to prevent any further damage, as it could really cause me to have seriously sore leg muscles for a day or two afterwards.

I haven't had this happen for at least a year or so now, and it's quite likely this is linked to various major changes that have happened in my life since then.

But yes, I totally agree with you about your conclusion.

Re:Online activists are silencing us, scientists say by freeflight on Wednesday March 13, 2019 @11:50AM (#19379859)
Wow, that's like the exact opposite to my nighty calf cramps.

I tend to get them when I'm way too relaxed as that makes me "stretch out" during sleep, which I kinda notice in half-sleep as feeling great, until I seemingly "overstretch" and get fully woken up to a painful calf cramp.

Tho that whole problem kinda fixed itself once I started taking Magnesium supplements before going to bed, to help with teeth gnashing/neck pains.

Re:Online activists are silencing us, scientists say by taneq on Thursday March 14, 2019 @05:46AM (#19387714)
Magnesium is an interesting one, because all sorts of muscle things (cramps, restless leg syndrome etc.) can be caused by, or helped by, both high and low levels of magnesium. It seems to be something that needs to stay within a certain band for muscle control to work properly.
Re:Online activists are silencing us, scientists say by tomlock on Wednesday March 13, 2019 @06:42PM (#19384707)
Anecdata +1 but taking magnesium every now and then has done wonders for my leg cramp issues.
Re:Online activists are silencing us, scientists say by jeffwass on Wednesday March 13, 2019 @06:57PM (#19384821)
Did you take the magnesium also just before bed or morning?
Re:Online activists are silencing us, scientists say by eee_honda on Wednesday March 13, 2019 @10:34PM (#19386073)
I have the same issue as above. Right before bed is typically suggested for bruxism, etc. Magnesium has also been shown in a study to improve sleep quality, though I don't remember the exact mechanism.

I might have an absorption issue though. Magnesium salt topical spray (less costly than pills) helps intantly unclench my neck/shoulders, and theres extant literature on that being an effective method of administration.

Re:Online activists are silencing us, scientists say by tomlock on Wednesday March 13, 2019 @09:15PM (#19385660)
I don't take it on a schedule.

I only take it when I feel a twinge in my calf. I figure I'm probably deficient in magnesium or something. Even if it is a placebo, it seems to work.

Re:Online activists are silencing us, scientists say by nateberkopec on Wednesday March 13, 2019 @11:55AM (#19379917)
> Once I realized this, it never came back again.

This was the same for me with RSI. It was simply the act of realizing it was psychosomatic and caused by stress that made it disappear completely.

Re:Online activists are silencing us, scientists say by QuantumGood on Wednesday March 13, 2019 @08:45PM (#19385487)
Mind-body CAN be the causative factor. But sometimes correlation only.

A friend's wife died, and he got sick afterwards. Grief? Illness went away when he stopped eating badly (his wife had prepared most meals for him).

Of course, he had switched to a pretty bad diet, and he was older, more likely to be affected by diet.

Cramps, for example, can be often be prevented with potassium, which is in plants. Some people don't eat plants as much when they are stressed, leading to cramps.

Re:Online activists are silencing us, scientists say by yznovyak on Wednesday March 13, 2019 @01:13PM (#19380930)
Where I'm from (Ukraine) RSI is pretty much unheard of, and I only learned about it when I moved to the US (when I was 21). Interestingly not long after learning about it I've started experiencing pain in my wrists and started to get really worried about getting an RSI. One of my coworkers recommended Kinesis Advantage keyboard, so I bought it off ebay and started using it and the pain disappeared. Interestingly I've seen this keyboard quite a lot, off top of my head I think something like 5% of engineers were using it.

I'm not saying that RSI doesn't exist, but I'm now positive that in my case all those RSI-like symptoms were all in my head -- some kind of a nocebo (an anti-placebo) effect. When I was 27 I had to do an MRI of my hand for an unrelated reason (boxing injury), so naturally I asked them to do an MRI of my wrist since they'll be immobilizing my hand anyway [1]. So either my wrist was healed in those 6 years, or it was fine all along -- can't tell because I didn't have a "before" picture. Just in case, I explicitly double checked with another doctor if he was sure about my wrist and he said that my MRI could be used as a textbook example of a healthy wrist joint.

I am now wondering if all those "mental-health awareness" things could have an adverse effect. I wonder how many hypochondriacs self-suggested themselves an OCD or an ADHD, and while marinating in those thoughts they somehow turned those thoughts into an actual condition (self-fulfilling prophecy?). Like ... you guys already have tidy people joking about having an OCD, and people who like to wash hands are joking about being a germaphobs.

edit: I think I've seen an article "willpower is limited only if you believe so" posted somewhere here on HN, but I can't find it now. Anyway here's another link: [3], and here's the Stanford study they cite [4]. This can be another example of people self-suggesting themselves a handicap.

[1] There are a lot of posts on HN talking about healthcare costs in the US, so I'll share my anecdote too. I did an MRI in Ukraine and the whole thing was like $80: $50 for the hand and extra $30 for the wrist. The machine was 1.5 Tesla one, but there are other clinics that have 3 Tesla machines too (a little bit more expensive). Scheduling an appointment was done by a phone a couple of days in advance and didn't require any doctor referral. There are many small private clinics offering imaging services (MRI/CT/Ultrasound/...), and all of them are very easy to Google and all of the prices are available online, for example: [2]. After the procedure they give you a CD with the info, a print-out on some largish transparent plastic, and their staff doctor's conclusion. You usually take those results to your specialist doctor of choice.

[2] For example: https://translate.google.com/translate?sl=auto&tl=en&u=https... all prices in UAH, to get rough USD estimate divide those numbers by 25 (or 26.75 to get exact number as of 2019-03-13 if you're OCD).

[3] https://lifehacker.com/your-willpower-is-only-a-finite-resou...

[4] https://journals.plos.org/plosone/article?id=10.1371/journal...

Re:Online activists are silencing us, scientists say by mcv on Wednesday March 13, 2019 @10:15AM (#19378796)
> those without a clear physical mechanism, such as RSI or chronic back pain

But RSI has a clear physical mechanism. I don't know as much about chronic back pain, but considering how much physical stuff there is in our back, I'd assume it's similar.

Or does "physical mechanism" mean something other than it seems to mean?

Re:Online activists are silencing us, scientists say by hirundo on Wednesday March 13, 2019 @10:43AM (#19379111)
John Sarno's theory is that such pain is indeed caused by physical mechanisms ... which are triggered by psychological mechanisms. Such things are common, like a blush to the cheeks, hair on your arm raised by fright, erections and other sexual responses, etc.

He was also clear that this is not always the case, and that direct physical causes should be looked for by a specialist before pursuing psychological remedies.

Re:Online activists are silencing us, scientists say by mcv on Wednesday March 13, 2019 @11:35AM (#19379697)
You mean that stress can play a factor in RSI? I don't think that's in any way controversial, but that doesn't make it in any way less real, or less physical. Although in the case of RSI, there are a lot more factors than that: bad posture, lack of exercise, and most importantly of course repetitive motions that very slowly build up strain on surrounding tissue, wrists, shoulders, back, etc.
Re:Online activists are silencing us, scientists say by hisnameisjimmy on Wednesday March 13, 2019 @12:44PM (#19380528)
The implication by Sarno is that stress, or other psychological factors, is the whole reason for the physical pain. Not always, but in many (if not a majority) of cases.

The idea is the pain is very, very real, and very, very painful. But that the cause is psychological.

The reason why RSI and back pain type issues persist is because psychologically they are very easy to justify. Of course we put load on our backs! Of course we do repetitive things! So it's easy to draw the conclusion that this is the cause, especially for your brain. This prevents people from exploring a root cause.

It's interesting material, but I think you have to be pretty open minded to consider it.

Re:Online activists are silencing us, scientists say by Pimpus on Wednesday March 13, 2019 @12:17PM (#19380163)
It's not stress and it's not playing a factor. Unconscious, repressed emotions are the direct cause of RSI and many other ailments, including Chronic Fatigue Syndrome. I highly recommend reading the book.
Re:Online activists are silencing us, scientists say by mikekchar on Wednesday March 13, 2019 @09:10PM (#19385640)
This is only a mental exercise. In no way am I saying that this is the way it works. I'm just saying this is an interesting way of thinking about it.

Imagine that RSI is not caused by bad posture, lack of exercise, and repetitive motions alone. For example, there are many people with bad posture, who don't exercise, who use repetitive motions and do not have RSI (me, for example ;-) ). Imagine that in addition to these things a required trait is that the muscles are slightly tensed. Imagine that the tense muscles constrict blood flow. This causes an inflamation in the area and with repetitive motion (or even lack of motion) it generates an injury in the area.

Imagine that when you believe that you have solved the problem (by using a special keyboard, or changing the way you sit or changing the way you move) that your muscles relax just that little bit. Now the blood flows freely, there is no inflamation and the RSI goes away. You think it's due to your physical actions, but in reality you are cured only because you believe that what you did worked.

The idea behind the book (as far as I can tell -- I decided not to read it) is that conditions like RSI are real. The physical cause is real. However, the conditions necessary to cause the condition to occur are mental. It's a fairly compelling idea. RSI is a similar situation to the back pain that the author of the book studied. Many people suffer from it and the cure seems to differ widely -- if you can be cured at all. May of the cures don't really have convincing experimental evidence to show that it actually relieves any physical problems. The efficacy is based only on the apparent lack of new symptoms.

Now, I'm of two minds with this book. On the one had, like I said, the idea is compelling. The author believed that most chronic back pain's underlying cause was mental. The physical issues that in turn caused the pain, were in turn caused by the mental issue. The author apparently had considerable success in his practice, but I think it is important to note that his practice was for helping people who had back pain where no conventional treatment helped. So he's working from a point of sampling bias. While he may be correct that this occurs, it is hard to get an idea on how frequently it occurs.

Re:Online activists are silencing us, scientists say by WalterSear on Wednesday March 13, 2019 @01:23PM (#19381053)
The theory is that stress and psychological factors cause physical factors that we don't entirely understand, that cause the RSI. One example of this would be the reduction blood flow to the extremities.

This is different from the general effects of stress, and different from purely physical factors.

Re:Online activists are silencing us, scientists say by SubiculumCode on Wednesday March 13, 2019 @12:26PM (#19380276)
Psychological IS physical. Full stop.
Re:Online activists are silencing us, scientists say by jacobolus on Wednesday March 13, 2019 @11:29AM (#19379639)
Yes, there’s some physical mechanism, but triggered by emotional responses.

Speaking for myself, I don’t have serious back pain, but when I occasionally experience momentary strong anxiety my back muscles get noticeably tight/strained, especially while sleep deprived. Drinking 1 beer typically alleviates that, or I’m sure some other anxiolytic medicine could.

I would not be surprised at all if chronic severe anxiety (e.g. taking care of a chronically ill child, working a high-stakes short-deadlines job, living with an emotionally abusive person, experiencing trauma and then suffering PTSD, ...) might cause me to develop a real back pain problem.

Re:Online activists are silencing us, scientists say by wpietri on Wednesday March 13, 2019 @12:05PM (#19380029)
Yeah, "clear physical mechanism" is a hole I could drive a truck through. Clear to whom? And what does "clear" have to do with "verified through rigorous scientific exploration of this and competing hypotheses"? As Mencken said, "Explanations exist; they have existed for all time; there is always a well-known solution to every human problem — neat, plausible, and wrong."

My experience with most serious medical things is that doctors have a clear general-audience explanation, because part of their job is making patients feel like they understand what's going on. But if you get into the details, the good doctors will say, "Well, actually, the picture is much murkier, but here's what we know based on studies X, Y, and Z, but there's a lot yet to learn."

Back pain in particular is an area of open dispute. Many people have many theories, all of them very hard to test. When I was dealing with back pain, a spine-center doctor recommended a book called "Treat Your Own Back" [1]. It was hugely helpful to me. And in it, the doctor explains that he hit upon his method because a patient came in, used a piece of equipment that was set up totally the wrong way, and said, "Gosh, doc, that was great!" It led him to reexamine what he had been taught about backs, coming up with a different "clear physical mechanism" to explain a common class of pain.

That we are still figuring something out does not mean it's psychosomatic. It doesn't mean it's not, but a doctor suggesting otherwise is doing the medical equivalent of "god of the gaps" theology, where anything mysterious is attributed to your preferred cause.

[1] https://www.amazon.com/Treat-Your-Back-Robin-McKenzie/dp/095...

Re:Online activists are silencing us, scientists say by bunderbunder on Wednesday March 13, 2019 @11:29AM (#19379628)
What is a person, if not a whole bunch of physical mechanisms under the control of a central nervous system that is itself another physical mechanism?
Re:Online activists are silencing us, scientists say by flatline on Wednesday March 13, 2019 @11:55AM (#19379912)
For example, everyone’s disks degenerate with old age. They squash, bulge, even herniate. But only some people experience notable pain from this. And back pain has been a growing epidemic for decades!

Are there physiological differences between people that explain this? Probably. But I suspect in many cases Sarno is right, it’s not purely physical. Look into neuromatrix theory and non-proprioceptive pain for a somewhat more scientific attempt at an explanation.

Re:Online activists are silencing us, scientists say by pjc50 on Wednesday March 13, 2019 @11:14AM (#19379450)
In practical terms, "physical mechanism" means something a GP can see or test for, rather than relying on asking the patient whether it hurts.
Re:Online activists are silencing us, scientists say by ryukafalz on Wednesday March 13, 2019 @11:34AM (#19379675)
That’s an ever-changing category, though, as medical technology improves. Bone fractures would have been more difficult to observe directly before the invention of x-ray machines, but that doesn’t change the underlying physical condition.
Re:Online activists are silencing us, scientists say by mcv on Wednesday March 13, 2019 @11:30AM (#19379645)
GPs aren't always sufficiently specialised to do a detailed diagnosis, but in my experience, a good physical therapist should be able to find the problem. (They have in my case, whereas the GP just asked some vague questions and decided it's probably some form of RSI.)
Re:Online activists are silencing us, scientists say by dwighttk on Wednesday March 13, 2019 @10:27AM (#19378928)
to be clear... RSI is repetitive stress injury, correct? Or strain?
Re:Online activists are silencing us, scientists say by __blockcipher__ on Wednesday March 13, 2019 @10:46AM (#19379142)
strain.
Re:Online activists are silencing us, scientists say by jimmy1 on Wednesday March 13, 2019 @09:10AM (#19378216)
> the pain is real, it's just caused by processes in your brain,

I don't find this particular statement very revolutionary. We have known for a long time that physical pain is manufactured by the brain as an evolutionary tactic to help us prevent further harm to ourselves. If we didn't "feel pain" when we were on fire, we would burn to death.

Re:Online activists are silencing us, scientists say by nateberkopec on Wednesday March 13, 2019 @09:23AM (#19378322)
I completely agree with you, but our society has such a stigma around mental illness that if you tell someone their back pain is caused by repressed emotions, you get what happens in the article.
Re:Online activists are silencing us, scientists say by theli0nheart on Wednesday March 13, 2019 @10:33AM (#19379008)
> if you tell someone their back pain is caused by repressed emotions, you get what happens in the article.

But...you would (or could?, or should?) never tell someone that, because how would you know? Maybe there is some link but to conclude that it could be the case is pretty silly.

So it's not like that's a stigma, it's just a statement not based in fact that evokes a strong reaction because you're telling someone why they're feeling a certain way when in reality you have no idea at all.

Re:Online activists are silencing us, scientists say by hn_throwaway_99 on Wednesday March 13, 2019 @10:46AM (#19379141)
Yeah, I think the thing a lot of commenters are missing is that the medical field itself has a pretty bad history of telling people "it's all in your head" when there turned out to be specific, treatable biological causes. This is especially true for CFS, where for a long time it was seen not just to be psychosomatic, but actually "not really that bad."

As another example, stress was blamed as the main cause of ulcers for decades, when an H pylori infection turned out to be the primary culprit.

Re:Online activists are silencing us, scientists say by internet_user on Wednesday March 13, 2019 @02:16PM (#19381693)
There is also HUGE amounts of money involved. Especially huge ramifications come to the fact that you could either have extra 10 billion dollars paid out to CFS claimants, or you could spend them on your pet projects....what would one with power to decide the outcome of that do...?

Only the good things, of course, because they are all angels.

Re:Online activists are silencing us, scientists say by NikkiA on Friday March 15, 2019 @10:29AM (#19399990)
For most of the '00s and around '10-12, CFS wasn't even seen as a real thing, but purely imaginary.
Re:Online activists are silencing us, scientists say by nateberkopec on Wednesday March 13, 2019 @11:57AM (#19379942)
I used "you" in the wrong way here. You == qualified medical people, such as in the article. Not you == oneself/one.
Re:Online activists are silencing us, scientists say by falcor84 on Wednesday March 13, 2019 @10:41AM (#19379093)
Well, repressed emotions is a term that doesn't have any clear physiological meaning and I think that might be the problem. I see a lot of success around the acceptance of the term "stress" which has clear physiological as well as psychological meanings, both for professionals and lay people. Maybe we need more terminology like this.
Re:Online activists are silencing us, scientists say by internet_user on Wednesday March 13, 2019 @02:05PM (#19381574)
Oh so you've already made the conclusion its a mental illness?

You are the reason why such reactions occur.

Re:Online activists are silencing us, scientists say by jvagner on Wednesday March 13, 2019 @10:53AM (#19379203)
honestly and earnestly, i also think a psychological condition that can (in most cases) be adjusted is taking society seriously. without a filter, and in some cases a firewall... "society" can also be the source of chronic pain.
Re:Online activists are silencing us, scientists say by mikojan on Wednesday March 13, 2019 @09:53AM (#19378572)
Maybe it's because you're not a doctor
Re:Online activists are silencing us, scientists say by ergothus on Wednesday March 13, 2019 @10:35AM (#19379034)
I felt plenty of resentment and disbelief when a doctor said it. (Not about RSI in my case, but the point that "it's in your head" does not come off well.)
Re:Online activists are silencing us, scientists say by kmundnic on Wednesday March 13, 2019 @10:50AM (#19379174)
I used to feel the same way, until I read Sarno’s book. The way he explained what psychosomatic means completely changed my perspective over it.

I think the main problem with many doctors is the fact that the patient tends to feel blamed when told that their minds are causing the problem. This is not Sarno’s approach at all, since he states that chronic pain can be seen as a defense mechanism against deep negative emotions.

Re:Online activists are silencing us, scientists say by jerf on Wednesday March 13, 2019 @09:39AM (#19378468)
"I don't find this particular statement very revolutionary."

It depends on how you read it, since the short 12-word summary could be read dozens of different ways. There's ways in which trivially, of course, duh, pain is in the brain, where else would it be? But there's also ways in which it stands in stark contrast to what most people implicitly believe.

Take your (you, the reader, not kimmy1 specifically) beliefs about the nature of pain, and explicitly hold it up to the concept of phantom limb syndrome: https://en.wikipedia.org/wiki/Phantom_limb And make extra sure to read the section about mirror box treatment. (That it works at all, for anyone, is the important point, not whether it's a miracle cure for all sufferers.)

You may already have heard about these things, but have you explicitly examined your beliefs about pain to ensure they incorporpate these ideas?

I don't know about fibromyalgia, but it wouldn't shock me that much if there is something a lot like phantom limb syndrome out there that confuses us by causing phantom pain in body parts that exist. For eminently rational reasons it would be a long time before we worked out way down to that hypothesis.

Re:Online activists are silencing us, scientists say by gumby on Wednesday March 13, 2019 @10:06AM (#19378711)
> There's ways in which trivially, of course, duh, pain is in the brain, where else would it be?

Actually nociceptive pain is by definition not in the brain and is fundamentally somatic. However somehow it is privileged by society: it’s “real” pain while those others are “all in your head”.

The sad thing is that the scientist is validating these phenomena yet the critics don’t understand that.

Re:Online activists are silencing us, scientists say by ethbro on Wednesday March 13, 2019 @11:19AM (#19379518)
It goes a level deeper than that. Learned from dating a very good massage therapist for awhile, our minds relatively commonly cause physical changes that lead to pain symptoms.

E.g. you subconsciously favor your back, leading to overexertion of other muscles, leading to physical degradation and pain from those muscles

Talking with her was eye opening on the amount of sub-major muscle "stuff" that is constantly subconsciously working in our muscular-skeletal system.

"You hold tension in your neck" is a remarkably complex statement (and solution).

Re:Online activists are silencing us, scientists say by jayd16 on Wednesday March 13, 2019 @11:50AM (#19379861)
Is that considered psychosomatic, though? I don't think this fits the topic at hand.
Re:Online activists are silencing us, scientists say by ethbro on Wednesday March 13, 2019 @12:30PM (#19380314)
It's a blurry line. If I've caused permanent damage to my back because I've been subconsciously holding it incorrectly for decades, is that damage psychosomatic?
Re:Online activists are silencing us, scientists say by hisnameisjimmy on Wednesday March 13, 2019 @12:46PM (#19380551)
If you go with the Sarno theory though, the damage is very unlikely to be permanent, and any lingering pain is still based in repressed, stressful emotions.
Re:Online activists are silencing us, scientists say by rcxdude on Wednesday March 13, 2019 @09:46AM (#19378524)
The point being, that when you are on fire, you feel pain as a consequence of your pain receptors in your body firing in response to tissue damage. Depending on circumstances, You can also feel pain without these receptors firing, and you can also feel no or little pain when these receptors are firing a lot. You can say that the pain originates either from the receptors or from something internally in the brain. Naively you might describe the first type as 'real' and the second as 'imaginary', which is of scant use to downright dismissive of the person actually experiencing said pain.
Re:Online activists are silencing us, scientists say by PaulHoule on Wednesday March 13, 2019 @11:32AM (#19379660)
That is true about acute pain.

It is not true about chronic pain. Acute pain will get better if you rest, chronic pain won't.

Most chronic pain sufferers will feel better if they behave as if the pain doesn't exist, increase their activities, get less depressed, feel less pain...

The core of fibro identity, however, is that fibros don't experience the benefits of exercise, they get the pain but they don't get the gain. That might be true. I have seen fibros try something new and get hurt even more quickly than heroin adicts.

Re:Online activists are silencing us, scientists say by internet_user on Wednesday March 13, 2019 @02:09PM (#19381614)
That's because most cases of fibro is undiagnosed small fiber neuropathy.

Nothing to do with psychology, and everything to do with destruction of peripheral nerve tissue.

Re:Online activists are silencing us, scientists say by everdev on Wednesday March 13, 2019 @09:48AM (#19378538)
I think the point is that with the common understanding of bodily pain there's usually a physical initiation like a pin prick.

OC is saying that the pain can originate in the brain itself without any external force on the body.

Re:Online activists are silencing us, scientists say by bjourne on Wednesday March 13, 2019 @02:03PM (#19381546)
It is not crazy at all. But realize that patients that suffer from these disorders have likely been hounded for decades by doctors, employers and various government workers. I think they have heard all the variants of "I think you are faking it" that you can ever think of. That doesn't excuse the patients death threats, but one should thread carefully.

There are also a lot of diseases that were thought of to be psychosomatic that turned out to not be such as peptic ulcer disease. There is also gender bias in play. Pain or illness affecting males are more likely to be classified as physiological while the same thing affecting females is more likely to be classified as psychological.

Re:Online activists are silencing us, scientists say by 11thEarlOfMar on Wednesday March 13, 2019 @12:45PM (#19380537)
Your comment reminds me of the sensation I get in my legs when I watch someone jump from a significant height and land on their feet. It's the same feeling I felt when I jumped from more than 4 feet or so and landed on my legs as a child on the playground. Not really a pain, but a sharp jolting sensation that ran from my feet up my legs. Decades later, it still happens when I am sitting still in a theater and I watch a character jump and land on their feet in a similar manner. It's a real sensation.

There is a mind-body connection and the mind can induce nervous system sensation when no physical cause is present.

Re:Online activists are silencing us, scientists say by SCdF on Wednesday March 13, 2019 @10:26AM (#19378916)
Just so there is a dissenting reply about Sarno's book, I have chronic RSI and his book did not help me at all. I wish it did, I'm pretty over RSI in general, but after going through a variety of different ideas and experiments pretty much "don't use your hands" is all I've got :-(
Re:Online activists are silencing us, scientists say by kmundnic on Wednesday March 13, 2019 @10:45AM (#19379137)
Sarno’s book concludes with the idea that negative emotions cannot be changed, and I disagree. I _think_ this is due to the psychoanalysis framework he employs for his analysis.

For me, it didn’t help either, but guided me to search how I could change my emotions. A mix of yoga and meditation plus techniques from “Code to Joy” by George Pratt helped me chronic headaches.

Yoga helps you become more aware of your mind-body. Meditations practiced in Kundalini yoga can help you become more deeply aware of your mind, or trigger certain helpful ideas (they usually have a very specific intention). What was left for me was to change negative beliefs that were created throughout my life, and that I accomplished with Code to Joy (and some of their previous work, which is more focused in emotions rather than beliefs).

Re:Online activists are silencing us, scientists say by kr4 on Wednesday March 13, 2019 @12:31PM (#19380340)
It's difficult to put forward the science behind Kundalini Yoga / meditation to audience stuck in modern scientific mindset. There's a huge literature in India for holistic living that encompasses from Ayurveda, yoga to tantra written over thousands of years based on direct experience and experiments. If you’re curious to know more you can start with The Wellness Sense https://www.amazon.com/Wellness-Sense-practical-emotional-Ay...
Re:Online activists are silencing us, scientists say by dkersten on Wednesday March 13, 2019 @10:55AM (#19379226)
Give this a look: https://www.mijncarpaletunnel.nl/en/home I can't guarantee that it will work for you, but it helped me.
Re:Online activists are silencing us, scientists say by gerbilly on Wednesday March 13, 2019 @09:30AM (#19378379)
> that the pain is real, it's just caused by processes in your brain, not the rest of your body.

I was also helped by Dr Sarno's book, and for me the news that it was "all in my head" was encouraging.

I can control my mind[1], and if my mind is the source of the problem, it's a lot easier for me to fix it that if I required surgery or medicine.

[1] At least partially, the mind is a slippery thing too.

Re:Online activists are silencing us, scientists say by Delmania on Wednesday March 13, 2019 @09:58AM (#19378631)
The more I learned the more terrifying that statement has become. The mind exerts incredible power of the body (and vice versa) and it's much harder to get rid of pain caused by a something in your brain than a cut or a broken leg.
Re:Online activists are silencing us, scientists say by reitanqild on Wednesday March 13, 2019 @11:15AM (#19379469)
Agree. This is kind of embarrasing as a grown up, an engineer and a soldier, but the brain can really prank some of us. (Edit: I guess it might be even worse as a doctor or nurse. My point is only that I consider myself a reasonable adult, not too easily scared.)

My brain used to have my body act up when I took a certain medication.

I was lucky: Once it got a little ahead of itself and my body started acting funny before I'd even taken the medication.

At that point I knew it was all in my head and never had any more problems with that medicine after that.

Re:Online activists are silencing us, scientists say by tome on Wednesday March 13, 2019 @02:40PM (#19381989)
> I was lucky: Once it got a little ahead of itself and my body started acting funny before I'd even taken the medication.

This is really interesting! I have a funny reaction to spicy foods: my scalp starts itching. I've notice that the itching can start even before eating when I merely have the spicy food in front of me and I'm anticipating eating it.

Re:Online activists are silencing us, scientists say by hnick on Thursday March 14, 2019 @01:01AM (#19386627)
I've read anecdotally this applies to drug tolerance too. If an addict uses a drug in an unfamiliar setting their body won't have steeled itself to expect it, and they can overdose more easily. It was definitely a weird idea when I first heard it.
Re:Online activists are silencing us, scientists say by mrfredward on Wednesday March 13, 2019 @09:51AM (#19378558)
I tend to think that any disease that is diagnosed without a well understood mechanism and a physical marker is very commonly misdiagnosed. We may find out depression and CFS/ME are two flavors of the same thing, or we may one day prove they are distinct and that many diagnosed with depression have CFS/ME.

I think this applies to all the diseases that are diagnosed as a bucket of symptoms. For example headaches...someday when we understand the mechanisms behind migraines, cluster headaches, tension headaches, etc... we'll probably find that we drew the buckets in the wrong spot.

Re:Online activists are silencing us, scientists say by wavepruner on Wednesday March 13, 2019 @09:43AM (#19378498)
My personal experience with RSI is that it crippled me. My forearm muscles, for example, became rock hard. Not sure how that could be just my mind.

Fortunately, I found the underlying physical cause and am responding quickly to treatment.

Glad to hear Sarno helped you though :)

Re:Online activists are silencing us, scientists say by dkersten on Wednesday March 13, 2019 @10:52AM (#19379199)
> I struggled with RSI for a couple of years until I read John Sarno's "The Mind-Body Connection" on the recommendation of someone from HN. Sarno's thesis is that many chronic pain conditions (those without a clear physical mechanism, such as RSI or chronic back pain) are psychosomatic.

I've had two RSI episodes in my life. The first one was similar to what you described and went away without any physical intervention, after I read something similar. The second (specifically, I had carpel tunnel syndrome symptoms) was more recently and didn't go away until I tried these: https://www.mijncarpaletunnel.nl/en/home They say to use them for 6 weeks. For about 4 weeks I didn't notice any change, but by the end of week 5 I was pain-free. They claim that you should remain pain-free for a couple of years after, which wasn't the case for me, I get some symptoms every so often (rarely pain, usually tingling fingers), but between using a Kinesis Advantage2 keyboard with foot pedals and taking regular breaks, its been manageable so far and hasn't caused any problems.

Re:Online activists are silencing us, scientists say by jacobolus on Wednesday March 13, 2019 @11:48AM (#19379824)
RSI from typing is typically caused by excessive wrist extension, though wrist pronation, ulnar deviation, etc. can also be bad. As can any other un-neutral body position held for a long time while working.

The way to prevent it is to type with a posture such that all of the joints of the arm/hand (not to mention neck, shoulders, etc.) are in a neutral position with as little static load as possible.

This can be accomplished more or less on a standard keyboard, but is much easier with a keyboard that has a split halves, tented. It is also helpful to type with a light, bouncy style, which can be helped by careful choice of keyswitches.

Re:Online activists are silencing us, scientists say by dkersten on Wednesday March 13, 2019 @12:23PM (#19380228)
Thanks, some good info.

> It is also helpful to type with a light, bouncy style, which can be helped by careful choice of keyswitches.

I use Cherry MX Brown and have a very light touch when typing now. I cringe anytime I see people hammer keyboards.

Re:Online activists are silencing us, scientists say by ip26 on Wednesday March 13, 2019 @10:55AM (#19379230)
1) Is it worse in your mouse hand? Don't overlook the mouse.

2) Is the KA2 wide enough for your shoulders? A split keyboard was the ticket for me, due to the set of my shoulders.

Re:Online activists are silencing us, scientists say by dkersten on Wednesday March 13, 2019 @12:21PM (#19380211)
1) I use a keyboard-centric tiling window manager and am trying to avoid mouse use as much as possible. Maybe I’ll get a trackball.

2) It seems to be. I find it quite comfortable at least. I’ll keep an eye on it, thanks!

Re:Online activists are silencing us, scientists say by sewercake on Wednesday March 13, 2019 @11:17AM (#19379483)
what split keyboard are you using? Do you recommend it? Currently in the market for one.
Re:Online activists are silencing us, scientists say by redwards510 on Wednesday March 13, 2019 @01:46PM (#19381347)
Not him, but... Microsoft nailed it with the Sculpt ergonomic keyboard imho. Detached numpad so you can put the mouse closer to the keyboard, gentle sloping, nice key travel. It's a good split starter keyboard. This one is cheaper than the combo version because it doesn't include the mouse. Don't get the grey bluetooth one. It has a numpad and weird feel along with bt issues. https://www.amazon.com/Microsoft-Ergonomic-Keyboard-Business...
Re:Online activists are silencing us, scientists say by ip26 on Wednesday March 13, 2019 @02:43PM (#19382020)
It's a kinesis freestyle 2. It doesn't have slick trendy features aside from being split, and I am not madly in love with it. Instead I would say as it's mostly invisible to me, which is exactly what I want out of a keyboard. So, I would recommend it.

I also have a Microsoft 4000 at home for light/occasional usage and it's struck the point of being good enough for that purpose, and it was quite inexpensive.

(If your wrists are straight on a regular keyboard and your shoulders are not scrunched you probably don't need a split board)

Re:Online activists are silencing us, scientists say by m463 on Wednesday March 13, 2019 @07:12PM (#19384926)
I think a lot of RSI is related to holding tension in your body.

The more direct physical way to "fix" it is to adopt a neutral stance with your body. Let your arms hang down neutrally at your sides without using your shoulders to hold them up. Let your wrists be supported in a good position so the strings and pulleys from your forearms to your fingers function well. Support them off the sharp and low edges of the desk at a good temperature. Let your head be balanced over your neck and shoulders instead of holding it in position with your back and head muscles.

The way to exacerbate the problem is the power through it like a new runner with shitty shoes. Ignore all of it, hold tension in your neck and back and ignore the signals your body is sending. Keep your monitor off-axis. Use a shitty mouse and keyboard. Sit at a laptop for hours and get-er-done in spite of terrible ergonomics. (Do you know there are no OSHA approved laptops?)

The exacerbate case ignores your mind-body connection.

Now, it's not "all in your head" but your head is part of the problem.

Re:Online activists are silencing us, scientists say by internet_user on Wednesday March 13, 2019 @01:54PM (#19381460)
Expect that as we speak, the actual biological cause are being discovered.

Just like it turns out 50%+ of fibromyalgia patients have actual neuropathies, that can unfortunately diagnosed by biopsy only, which is expensive - and it's oh so much cheaper and efficient to write off as a psychosomatic disease instead.

Re:Online activists are silencing us, scientists say by SeanDav on Wednesday March 13, 2019 @09:43AM (#19378496)
If anyone doubts the power of the mind-body effect, look up Nocebo effects (opposite of placebo) where the mind manufactures "real" symptoms as side effects to medication. I can't find the source(s) right now - but I have previously read about cases as extreme as blindness and paralysis with purely mind-induced and non-physical causes.
Re:Online activists are silencing us, scientists say by KorematsuFred on Wednesday March 13, 2019 @03:15PM (#19382475)
The harassment in general might be good and scientists would be compelled to think "how will general audience read and understand my research" question before writing "academia speak".

People are not in general evil, academia on other hand is a bit arrogant and engages in needless jargons and complications leading.