News for hackers. Stuff that matters.
Re:My grandmother died at home, just as she wanted. It cost ... by crazygringo on Thursday February 09, 2023 @09:43AM (#34724627)
As much as I sympathize, the title is clickbait and I'm not entirely sure what the point of the article is.

From what I can gather, the $145K cost was the cost of medical care over the months (years? the article never says) at the end of the grandmother's life -- not the cost of "dying at home".

The bulk of the cost seems to come from:

> the total monthly cost was $16,200: $13,000 a month for the 24-hour care, plus $3,200 to rent the apartment

It seems silly to include rent, and then of course round-the-clock private care is going to be $$$.

As far as I can tell, the grandmother needed hospital-level care, but the family didn't want to keep her in a hospital. It's not surprising that hospital-level care at home costs a small fortune.

Re:My grandmother died at home, just as she wanted. It cost ... by RansomStark on Thursday February 09, 2023 @10:03AM (#34724963)
It only looks like clickbait because you're used to a system that costs $$$ to get medical care.

In the UK when my mother got told she was terminal and had a couple of months left, she chose to spend them at home. In the end she left hospital in mid-December and died the following May. 5 months at home in a specialist bed, provided by the hospital, all of the equipment required to keep a dying person comfortable again provided by the hospital. Nurses and doctors there every day.

Because of her illness, the government paid her rent, it paid my father a carers allowance, so he was able take time off work.

Total cost: £0.

5 months of excellent at home care for £0.

You shouldn't be dismissing the article as clickbait, it shouldn't cost $145k to die, there shouldn't need to be a discussion here.

You should be so very angry that a country that takes in $3tn a year in federal taxes won't support a working healthcare system

Re:My grandmother died at home, just as she wanted. It cost ... by Baader-Meinhof on Thursday February 09, 2023 @10:16AM (#34725227)
Sure, the NHS does provide excellent care, but it's not free. The fact that the British won't come to terms with this is causing its collapse:

"In December, as many as 500 patients per week were dying in Britain because of E.R. waits, according to the Royal College of Emergency Medicine, a figure rivaling (and perhaps surpassing) the death toll from Covid-19. On average, English ambulances were taking an hour and a half to respond to stroke and heart-attack calls, compared with a target time of 18 minutes; nationwide, 10 times as many patients spent more than four hours waiting in emergency rooms as did in 2011. The waiting list for scheduled treatments recently passed seven million — more than 10 percent of the country — prompting nurses to strike. The National Health Service has been in crisis for years, but over the holidays, as wait times spiked, the crisis moved to the very center of a narrative of national decline."

https://www.nytimes.com/2023/01/25/opinion/uk-economic-decli...

Re:My grandmother died at home, just as she wanted. It cost ... by petercooper on Thursday February 09, 2023 @10:37AM (#34725491)
Sure, the NHS does provide excellent care, but it's not free.

Correct, but the US has the rather odd status of spending even more per capita in public funds towards healthcare before they even get to the privately funded portion. The NHS has a lot of problems, but at least it's not (outside of dentistry) making us pay both ways at once.

Re:My grandmother died at home, just as she wanted. It cost ... by ericmay on Thursday February 09, 2023 @11:06AM (#34726082)
The US healthcare industry is easier to understand once you equate insurance companies with the government and realize that they are jobs programs.

But that also makes it easier to understand the need to get rid of them and have the government fund healthcare.

My mom passed away recently (Monday) and it would have been impossible for her (because it was impossible for me) to try and navigate insurance claims (and subsequent denials lol), hospital billing, Medicaid, Medicare, Ohio Medicaid, and other programs. It's just level after level of waste and all of this could be combined into just one god damn program that does the same work and we would save money. But jobs. Oh and also let's not forget the now 3-6 spam calls I get daily from official sounding scam artists who try to "help" with your medical problems (steal money) in your darkest hours and most vulnerable. Does nobody seriously care? Why does the United States of America allow its citizens to be robbed?

When we were clearing out her things we probably had an entire trash bag worth of prescription medication.- Waste Maybe you should be required to return the empty? All those pills had to be safely disposed of.

Equipment - thankfully we could donate this to a local charity but many hospitals and healthcare facilities won't accept things like wound bandages even if they are brand new and sealed in a box.

Transportation - It's unreliable. Companies like Caresource contract with the government to provide rides to get patients to appointments, but they then further subcontract these rides to the most obviously shitty companies imaginable and then those companies contract the rides out to random people who will go pick people up for money. It works sometimes, but ultimately things happen. We had multiple no-call, no-shows and my mom who needed lifesaving cancer treatment had a hard time getting to scheduled appointments. More waste.

I could go on and on.

The thing that pisses me off the most is that we're explicitly opting in to spend more money. It's just a tax that goes to the health insurance industry instead of the government. Health insurance companies are just parasitic entities and do not innovate or provide market efficiencies - they just work to find how they can deny claims and try to "innovate" on billing complication. Unlike pharmaceutical companies and healthcare equipment companies. There are still efficiencies to be had there with licensing, drug patents, trials, etc. but health insurance is a complete scam. If we just did single-payer then we could see some actual innovating on the insurance side from whatever business was remaining that the "wealthy" could afford - which I'm fine with.

I do dislike the usage of "free" to describe the NHS or any government run healthcare program since it's inaccurate (nothing is free) but as another user pointed out the US system is like double cost because you pay taxes, you don't get any of the benefit, and then you have to pay too. Philosophically I prefer people to say "hey we should fund this" versus "I need my free thing from the government" because the former is indicative of a society coming together to support itself and the other is indicative of social collapse. People don't call Social Security free very often, but instead support it because "I paid for it".

Re:My grandmother died at home, just as she wanted. It cost ... by springogeek on Thursday February 09, 2023 @12:05PM (#34727182)
The actual phrase for describing the NHS is meant to be "Free at the point of use", but people are likely shortening for convenience. People are paying for it, but not in a tangible way.

The main thing is knowing that if you need any procedures, services, an ambulance, critical or emergency care, etc, you'll not be asked up front to pay for it, you'll just be treated. Seeing that principle erode over time is heartbreaking and terrifying.

(rant) Healthcare as an industry doesn't function properly under a capitalist model, which expects that competition and consumer choice will encourage innovation and further competition, leading to a better outcome for the consumer. If you need healthcare, you don't really have a choice in it, or your choices are artificially restricted by circumstance, so you can't benefit from a competitive marketplace. It's a broken system, as far as I am concerned.

Re:My grandmother died at home, just as she wanted. It cost ... by ericmay on Thursday February 09, 2023 @12:17PM (#34727395)
I'd say the health insurance industry specifically doesn't function and that's because in the United States you will not be turned away from life saving treatment regardless of the cost [1]. Other aspects range from working very well to working marginally and could be improved. Public-private relationships generally seem to do well but we need to capture more of the profits when the funding is subsidized by the public, but that doesn't mean that private entities who do heavy lifting shouldn't also profit. It seems like we have some clear win-wins if we want to take them. On the whole the government is far better at cutting checks than it is at innovating.

I agree with your statement that "Free" is likely short-hand but I personally still don't like it because I prefer to think of items like that less so as entitlements because entitlements are easy to attack and dismantle. On the other hand when someone feels like they paid for something they are more likely to defend it. Social Security in the US is IMO a good example of this.

[1] Price discovery is impossible in a free market where you can't be denied service. Since society is (in my view correctly) not willing to let people die on the street if they can't pay for treatment the health insurance industry can't function except as a parasite with the aim to extract as much as it can and redistribute it to employees and shareholders. I do think healthcare costs would be cheaper under a "pure" free market where we let people die on the streets, though, but again I just don't find that acceptable.

Re:My grandmother died at home, just as she wanted. It cost ... by nradov on Thursday February 09, 2023 @05:01PM (#34732223)
Ambulance service might be free at point of use but that hardly matters if the ambulance never arrives.

https://www.bbc.com/news/health-64243044

Re:My grandmother died at home, just as she wanted. It cost ... by springogeek on Monday February 13, 2023 @04:18AM (#34771592)
You're right, but it isn't a helpful comment for the discussion at hand. The story in that article, and many like it, are symptoms of a larger problem, but it's not because of public vs private healthcare.

The system works, assuming it's adequately funded, which it hasn't been for a while. Salaries aren't high enough to live on (thanks to the conservative government and creeping privatisation), and then brexit and other immigration policies have caused a shortage of trained professionals and no one willing to fill the vacancies.

There's a whole heap of issues (I've left out quite a few) stacked up against the NHS, and yet it powers on, doing its best.

Re:My grandmother died at home, just as she wanted. It cost ... by IOT_Apprentice on Thursday February 09, 2023 @10:21AM (#34725311)
Isn't that because the Tory governments have been squeezing NHS to death in terms of funding to try and privatize it?
Re:My grandmother died at home, just as she wanted. It cost ... by MSFT_Edging on Thursday February 09, 2023 @10:39AM (#34725532)
People love to starve the beast then point to the starving beast and say "Look its dying, this was always going to happen".
Re:My grandmother died at home, just as she wanted. It cost ... by automatic6131 on Thursday February 09, 2023 @10:46AM (#34725638)
>because the Tory governments have been squeezing NHS to death in terms of funding to try and privatize it?

No. Often repeated, never true. The NHS has had at or above inflation budget increases every year of Tory government[1]

https://ichef.bbci.co.uk/news/976/cpsprodpb/166A5/production...

Look! Real terms money on the Y-axis, it only goes up!

"Squeezing in terms of funding", "Try and privatise it" are common myths repeated by the Labour party to get elected, and NHS bosses to increase the pie even further.

Re:My grandmother died at home, just as she wanted. It cost ... by rwmj on Thursday February 09, 2023 @10:53AM (#34725797)
(1) It needs more than real terms increases because of a growing, ageing population.

(2) The government is destroying it in other ways, such as not having a proper recruitment pipeline, outsourcing the lucrative parts to the private sector, and failing to pay staff adequately (literally - nurses going to food banks).

Re:My grandmother died at home, just as she wanted. It cost ... by automatic6131 on Thursday February 09, 2023 @10:59AM (#34725919)
The mean salary for an NHS nurse is £33k, if you need to go to a foodbank on that salary, you'll need to go to a foodbank on £36k or £40k.

Yes, there has been mismanagement with the recruitment pipeline, because every government prefers to pillage poorer nations for their healthcare staff since it's quicker than training them.

But remember, that's not the original claim is it - I didn't say the Conservatives are doing a perfect (or even good) job, I said they're not "squeezing it dry of funding" and not "trying to privatise it", which are both, still, false.

Also "outsourcing the lucrative parts" - give source for your claim please. They do cross subsidize, allowing private patients to pay for treatment in NHS hospitals, but that's not the same thing.

Re:My grandmother died at home, just as she wanted. It cost ... by yunwal on Thursday February 09, 2023 @11:31AM (#34726562)
> £33k

That seems… incredibly low for a licensed profession

Re:My grandmother died at home, just as she wanted. It cost ... by MrJohz on Thursday February 09, 2023 @11:52AM (#34726940)
Bear in mind that that's apparently the mean salary, which one would expect to be somewhat higher than the median (as it's more affected by high salary outliers in upper bands).

The people in the NHS that I talk to say it's running on goodwill and sticking plasters right now.

Re:My grandmother died at home, just as she wanted. It cost ... by zarzavat on Thursday February 09, 2023 @11:12AM (#34726195)
Mean is meaningless. What's the minimum?
Re:My grandmother died at home, just as she wanted. It cost ... by r00fus on Thursday February 09, 2023 @12:00PM (#34727083)
> Also "outsourcing the lucrative parts" - give source for your claim please.

This one indicates "unfunded mandates" - a trick the GOP in the US has done for decades (notably so-called Medicare Advantage which created a crisis that didn't exist): https://www.theguardian.com/commentisfree/2022/apr/05/tories...

Another specific tactic is privatizing things that didn't need privatization (or the result is less efficient than what existed before, but it happened to make some corporations and ministers/secretaries a lot of money) - see "failed efficiency savings and privatization" here:

https://www.opendemocracy.net/en/nhs-crisis-rishi-sunak-cons...

Of course, Brexit (another Tory gift to their owners) really messed up things for NHS and caused a number of challenges (see above).

Re:My grandmother died at home, just as she wanted. It cost ... by theironhammer on Thursday February 09, 2023 @12:37PM (#34727784)
In the USA a big proportion of health care costs is hospital administrators. Also, the cost of administrating all the different private insurance plans. I wonder how much of the NHS budget is eaten up by administrators and how much that cost has increased with all privatization by stealth under the Tories?

The bulk of the budget should go to front line workers not administrators.

Re:My grandmother died at home, just as she wanted. It cost ... by arethuza on Thursday February 09, 2023 @10:32AM (#34725426)
"Free" in the case of the NHS means "Free at the point of delivery",

We know perfectly well that we pay for it through taxes.

Re:My grandmother died at home, just as she wanted. It cost ... by fennecfoxy on Thursday February 09, 2023 @11:01AM (#34725959)
As we should be if we want a utopian society. Better than paying corrupted, monopolistic, lobbying US medical companies over-inflated prices for everything because people have no other choice.

The only issue with public healthcare is the government corruption that tries to kill or diminish public healthcare, but it's still a hell of a lot better for society than private.

Re:My grandmother died at home, just as she wanted. It cost ... by mrtranscendence on Thursday February 09, 2023 @11:19AM (#34726316)
I don't know why people have such a problem with this. Nobody in the UK with an IQ above 70 thinks the NHS is literally free in the sense that no money ever changes hands. "It's not really free!" is a stupid gotcha that doesn't even make sense.
Re:My grandmother died at home, just as she wanted. It cost ... by mrguyorama on Thursday February 09, 2023 @01:09PM (#34728436)
It's a thought terminating cliche that weird people use to imply that making american healthcare would require raising taxes.
Re:My grandmother died at home, just as she wanted. It cost ... by tpoacher on Thursday February 09, 2023 @11:04AM (#34726034)
> Sure, the NHS does provide excellent care, but it's not free. The fact that the British won't come to terms with this is causing its collapse.

In the words of Luke Skywalker: Amazing. Everything you said in that sentence is false.

But focusing on the "it's not free" part; perhaps a distinction should be made in terms of "background passive costs paid regularly (e.g. taxes)" vs "additional costs once you're ill".

What is "not" free in the NHS is the first, but the latter is generally free.

This distinction becomes very meaningful when you realise that, in the US, things like the £145k quoted in the article fall in the latter category, while still paying for the former (in terms of regular insurance or whatnot).

This "dishonest" comparison made when the "NHS is not free" argument is thrown to justify why in the US things cost money, is to ignore the fact that you are also paying the background stuff in the US too, even in the absence of illness, but this is rarely counted in these discussions.

I would love it if someone armed with more numbers than I could give a breakdown of what it costs annually a person to passively contribute to the NHS through taxes vs an average US medical insurance scheme (assuming the US does not have other healthcare related taxes which I do not know about).

Re:My grandmother died at home, just as she wanted. It cost ... by yunwal on Thursday February 09, 2023 @11:28AM (#34726492)
> assuming the US does not have other healthcare related taxes which I do not know about

The U.S. government pays about the same amount per capita (1.2 trillion for ~400 million people or $3000/person) on healthcare as the UK gov. That’s before private insurance costs. Some of this is on things like Medicare, Medicaid, and the VA, which are nationalized health systems for specific portions of the population, but the point still stands that we’re not avoiding taxes going the private route.

Re:My grandmother died at home, just as she wanted. It cost ... by SideburnsOfDoom on Thursday February 09, 2023 @11:22AM (#34726384)
> the NHS does provide excellent care, but it's not free. The fact that the British won't come to terms with this is causing its collapse:

This is complete nonsense. The British public knows very well that the HNS is (or was) and should be "free at point of use", and also paid for via tax. The public want it and want it well funded. The current British political establishment does not like this state of things and seeks to privatise it, but due to the popularity of the NHS, cannot just come out and and say it.

"That's the standard technique of privatization: defund, make sure things don't work, people get angry, you hand it over to private capital."

Re:My grandmother died at home, just as she wanted. It cost ... by BerislavLopac on Friday February 10, 2023 @03:44AM (#34737203)
> The fact that the British won't come to terms with this is causing its collapse

No, the collapse is caused by the government which has been methodically dismantling it for a couple of decades now, replacing it with private health insurance and moving the ownership of NHS trusts and GP offices to private companies.

Re:My grandmother died at home, just as she wanted. It cost ... by lemiant on Thursday February 09, 2023 @10:13AM (#34725165)
I feel like if you look at the amount of equipment and staff here it obviously costs a huge amount to deliver this care. Regardless of who pays the $100k+ cost remains.
Re:My grandmother died at home, just as she wanted. It cost ... by vlovich123 on Thursday February 09, 2023 @11:38AM (#34726689)
Generally socialized healthcare is also cheaper because you have a single payer negotiating. You also don’t have all the middlemen that are spending time figuring out whether or not your insurance covers X Y or Z. So while it costs $140k out of pocket in addition to all the same background costs, in a socialized system it costs a heck of a lot less in addition to being free out of pocket. The trade off is that healthcare can be difficult to obtain as you have to navigate a very complicated system and there’s limited resources because it’s more accessible - if you’re upper middle class you can have similar struggles to find care as those who are poorer. The rich are oblivious to this because they can just pay for private care or travel to where private care exists.
Re:My grandmother died at home, just as she wanted. It cost ... by wil421 on Thursday February 09, 2023 @10:17AM (#34725257)
What would the cost be if you had near 100% private in home care for whatever reason in the UK?

It’s basically what they chose in this case, Medicare would’ve paid for the hospital and hospice. Even if there was a bill no one is obligated to pay it unless the estate has money for private care. In this case it’s assumed her estate doesn’t have the funds to pay for private care or rent an apartment.

Her case also seems complicated because assisted living and hospice couldn’t tend to her needs but the hospital thought a lesser facility could provide it. Bouncing her back and forth.

Re:My grandmother died at home, just as she wanted. It cost ... by knubie on Thursday February 09, 2023 @10:13AM (#34725171)
Every system costs $$$ to get medical care.
Re:My grandmother died at home, just as she wanted. It cost ... by encoderer on Thursday February 09, 2023 @10:12AM (#34725156)
many places in the US have a similar option called at home hospice care. Also free. Provides equipment and multiple home visits a week.
Re:My grandmother died at home, just as she wanted. It cost ... by oneoff786 on Thursday February 09, 2023 @10:16AM (#34725221)
I can be simultaneously angry that our medical system sucks and still believe that setting up a mini hospital in dying elderly people’s homes is a colossal misuse of government funds.
Re:My grandmother died at home, just as she wanted. It cost ... by fzeroracer on Thursday February 09, 2023 @11:10AM (#34726156)
Is it? Presumably said person was a tax paying citizen that had paid more than their share throughout their life, the same goes for the children. How would it be a colossal misuse of government funds for people to get what they paid for?
Re:My grandmother died at home, just as she wanted. It cost ... by oneoff786 on Thursday February 09, 2023 @11:15AM (#34726236)
People “get their share” by living in a society that is held together by those taxes imo. There are surely many edge cases, but in countries like Canada/US/UK I think people generally get their due.

Regardless, setting up a mini hospital in someone’s home is just dumb. There is no reason for such a high level of service. You want to die at home? Sure. I’m down for MAID at home.

You want a suite of private doctors and equipment at home? Pay for it. If you want public service you should go to public service facilities.

Re:My grandmother died at home, just as she wanted. It cost ... by powera on Thursday February 09, 2023 @10:07AM (#34725050)
It doesn't cost $145k to die, it costs $145k to have 24-7 in-house medical support for a year.

And somebody has to pay the medical support staff.

The sense that "this is necessary so it should be free" is not unique to the parent comment, but it is incorrect.

Re:My grandmother died at home, just as she wanted. It cost ... by eh9 on Thursday February 09, 2023 @10:44AM (#34725608)
That “somebody” is the government in most developed places in the world. Except the United States which ties your healthcare to capitalism.
Re:My grandmother died at home, just as she wanted. It cost ... by em500 on Thursday February 09, 2023 @11:21AM (#34726362)
Nonsense, no government in the world pays for 24-7 in-house end of life care for a year, that would be crazy.
Re:My grandmother died at home, just as she wanted. It cost ... by eh9 on Thursday February 09, 2023 @11:41AM (#34726729)
Canada does.
Re:My grandmother died at home, just as she wanted. It cost ... by pjlegato on Thursday February 09, 2023 @10:57AM (#34725871)
"The government" has no money of its own. Everything "the government" does is paid for by private citizens in the form of taxes, without exception.

These taxes are harvested from capitalist economic activity.

Re:My grandmother died at home, just as she wanted. It cost ... by amanaplanacanal on Thursday February 09, 2023 @11:40AM (#34726723)
I’m pretty sure everybody understands that.
Re:My grandmother died at home, just as she wanted. It cost ... by vlovich123 on Thursday February 09, 2023 @11:46AM (#34726824)
Ummm… doesn’t the government literally print money? Sure you can’t just print infinite money as it devalues the currency, but I don’t think stating whether or not the government has money is a helpful framing. The government has an entirely different relationship to money. I could be wrong but taxes are more a way to keep value of the currency by creating some artificial scarcity. Sure, the government tries to keep a balance between taxation and expenditure to avoid devaluing the currency too much, but that’s not the same thing. In fact, governments regularly run deficits (spending money they don’t have) without collapsing. The only real risk is of a major currency devaluation because you managed the inflation incorrectly.

Consider the “out” for the US debt ceiling being bandied about is minting a trillion dollar coin.

Re:My grandmother died at home, just as she wanted. It cost ... by throwaway6734 on Thursday February 09, 2023 @10:25AM (#34725382)
Close to 50% or the federal budget is spent on social security, Medicare and Medicaid. It's a massive wealth transfer to the elderly already.

What's the long term plan for the UKs elderly healthcare programs that it's an aging country?

Re:My grandmother died at home, just as she wanted. It cost ... by dtx1 on Thursday February 09, 2023 @10:20AM (#34725296)
This just means that the Taxpayer took up that money. I'm sorry for your loss but this is insane. I'd rather die in a hospital where I don't take up valuable time from doctors and nurses to commute to my home to take care of me instead of taking care of people that might actually get better. This is a level of egoism that borders on narcissism and the tax payer has to pay for it.

The American Healthcare system is insane but at least in this one regard the cost of being an unreasonable egoist is not being paid by the rest of society. Go fucking die in a hospital like everyone else and don't take away limited resources from people that might actually get better. Or if you do, at least pay the bill yourself.

Re:My grandmother died at home, just as she wanted. It cost ... by mindslight on Thursday February 09, 2023 @10:45AM (#34725626)
You clearly have no clue what an end of life shuffled between nursing home and hospital looks like cost wise.

State paid nursing home fees are like $150k/yr last time I checked, most of that going to administration. It's certainly not going to the nursing assistants that they don't hire who aren't checking on you. Plus the portable mobile equipment (xray etc) that someone drives over and wheels in to perform perfunctory diagnostics, plus the ambulance rides back and forth to the hospital as the nursing home covers their ass, plus all the bills you rack up at the hospital as you're repeatedly dumped into the emergency room.

Like it or not, that system has already been heavily socialized in the US. The only time someone is on the hook to pay is if their estate has money, which is avoidable with some estate planning (5?) years ahead of time. That's the fallback option for everybody "lucky" enough to reach it. It's gruesome, but not because it's cheap.

FWIW When I was going through this with my dad, the private "insurance" company (a medicare advantage vendor) was starting a program where they wanted to send doctors into your home to check on how you were doing, because keeping you out of the hospital saved them a significant amount of money.

Re:My grandmother died at home, just as she wanted. It cost ... by dtx1 on Thursday February 09, 2023 @11:03AM (#34726014)
The American System (hint, i am not american) is very broken. Yet any sane system would obviously see benefits of centralizing end of life care for sick people. If you manage to build a system that's so broken that centralization of healthcare is MORE expensive for everyone than decentralized at home care than that system is the problem.

And to be clear: It would be great if we had enough doctors, nurses and resources for everyone to die in their own home with all the amenities of a hospital specialized to end of life care but hat is practically impossible. And I don't mind socializing healthcare. On the contrary, I think it's a necessity for any civilized country. But given the aging societies of basically all western nations I would bet all I own that by the time I need end of life care, at home care with private nurses will become the privilege of the super wealthy.

Here in Germany, the system is already essentially collapsing and it's not even a money issue, it's a personal issue. But sure let's burn it all to the ground for the now-dying so by the time my generation needs it there's nothing left.

Re:My grandmother died at home, just as she wanted. It cost ... by mindslight on Thursday February 09, 2023 @11:25AM (#34726444)
I don't necessarily disagree about the costs of decentralization, but will say that it appears to rely on some assumptions that the family won't be providing any care, etc.

I don't think that doctors and nurses are the limiting factor for home care, but rather home health aids and CNA's - basically people that check in on patients around the clock and make sure they're kept clean.

In the context of the US system, your original comment is just completely off the mark. Our healthcare system is universally terrible, independent of the cost ("not my job" at every level). Consigning a elderly person to that system is basically the last thing anybody wants to do, hence the focus on dying at home etc.

I can't speak about Germany's system. But it's worth remembering that money is not equivalent to resources, and that spending an imprudent amount of money on elder care right now doesn't imply that there won't be resources left for you later. Whether the system is "burnt to the ground" has more to do with if the institution is destroyed or hollowed out, rather than how much it costs.

Re:My grandmother died at home, just as she wanted. It cost ... by redeeman on Thursday February 09, 2023 @10:06AM (#34725023)
> Total cost: £0. > 5 months of excellent at home care for £0.

a lifetime of having way more than HALF your income stolen from you..... 0? okay..

Re:My grandmother died at home, just as she wanted. It cost ... by kaveh_h on Thursday February 09, 2023 @10:41AM (#34725556)
You could also end up with some serious illness when you're young and in need of special care without which you don't have any opportunity to build that income you're talking about. Each additional person being able to contribute means another person has contributed to your economic wellbeing and a egalitarian society where people's opportunity is not lost do to bad luck.

The theft you talk about is mostly connected to extremely bad, costly and possibly corrupt policy decisions like US wars in Vietnam, Iraq, Afghanistan or even the war on drugs. And probably a lot of these policy decisions are influenced by lobbying from various industries and special interest groups.

Re:My grandmother died at home, just as she wanted. It cost ... by Beltiras on Thursday February 09, 2023 @10:09AM (#34725087)
Some of us see it as paying for services, not that the government are thieves. And we are pretty happy to pay, given the hellscape examples shown in the good old US of A.
Re:My grandmother died at home, just as she wanted. It cost ... by knubie on Thursday February 09, 2023 @10:18AM (#34725275)
The NHS has its own share of tragic stories. https://archive.is/lkqY5
Re:My grandmother died at home, just as she wanted. It cost ... by marcusverus on Thursday February 09, 2023 @10:26AM (#34725393)
> People who suffer heart attacks or strokes wait more than 1½ hours on average for an ambulance. Hospitals are so full they are turning patients away.

It's positively utopian! Meanwhile, in the hellscape:

> On average in the U.S., the length of time between a call for help and the arrival of emergency medical services is about eight minutes.

[0] https://www.reuters.com/article/us-health-emergency-response...

Re:My grandmother died at home, just as she wanted. It cost ... by redeeman on Thursday February 09, 2023 @10:13AM (#34725163)
I am not highlighting the US as a shining example of anything. but if you are happy to pay, make it optional? it seems to me that you are happy to force others to pay? biggest gang wins?

seems to me that "some of us" will be perfectly happy buying the services, and some other of us will be perfectly happy NOT buying the services

Re:My grandmother died at home, just as she wanted. It cost ... by Beltiras on Thursday February 09, 2023 @10:16AM (#34725224)
Then choose to live where the taxes are low and services are shit. Don't take the piss out of our choices. They do not affect you.
Re:My grandmother died at home, just as she wanted. It cost ... by redeeman on Thursday February 09, 2023 @10:19AM (#34725280)
replying to sibling-response:

and where would I go? it seems that universally around the world there are a large amount of people that feel that they are entitled to rob their fellow citizens, at ultimately what is gunpoint threat of being put in jail.

if I just go mind my own business, and conduct business with other likeminded people, and the regime finds out, they will send their brownshirts with guns to drag me away, simply for refusing to give them half

Re:My grandmother died at home, just as she wanted. It cost ... by seszett on Thursday February 09, 2023 @10:23AM (#34725353)
> where would I go?

Somalia seems to be the only actually tax-free country. I think border control is lax enough that you can "safely" go live there if you wish.

Re:My grandmother died at home, just as she wanted. It cost ... by Turing_Machine on Thursday February 09, 2023 @10:46AM (#34725639)
Somalia isn't "tax-free". It just has rival gangs of warlords collecting taxes, rather than having one gang with a monopoly on it.

Not the same thing.

Re:My grandmother died at home, just as she wanted. It cost ... by yunwal on Thursday February 09, 2023 @11:43AM (#34726771)
Hmm, this almost seems like the logical conclusion of a government with no revenue.
Re:My grandmother died at home, just as she wanted. It cost ... by Beltiras on Thursday February 09, 2023 @10:24AM (#34725361)
Do your own research. This is an article that leads to 0% taxation options, first thing Kagi suggests: https://www.theceomagazine.com/lifestyle/property/lowest-inc...
Re:My grandmother died at home, just as she wanted. It cost ... by redeeman on Thursday February 09, 2023 @10:35AM (#34725460)
so you are atleast agreeing that you think the biggest gang should set the rules and force them upon other people who do no harm to ANYONE, but simply wish to be left alone?
Re:My grandmother died at home, just as she wanted. It cost ... by buzzerbetrayed on Thursday February 09, 2023 @10:38AM (#34725517)
I’m not sure “uproot and move” is an acceptable solution to wanting to opt out of parts of a society. You certainly wouldn’t give this suggestion as a solution to just about any other problem people have. Especially when the places you can move probably make up like 1% of the earth.

I don’t understand your logic. You claim that the “services” offered to you by your government are worth the taxes you pay. But you don’t want them to be opt-in. Aren’t you tipping your hand a bit? Seems like you might not be so confident that the services are worth it, and that a ton of people wouldn’t opt out.

Re:My grandmother died at home, just as she wanted. It cost ... by yunwal on Thursday February 09, 2023 @11:42AM (#34726746)
If you really don’t drive on public roads or use any public services, you can probably get away with not paying taxes.
Re:My grandmother died at home, just as she wanted. It cost ... by mrguyorama on Thursday February 09, 2023 @01:29PM (#34728857)
Government isn't a business. Society is the rules we regularly agree to keep playing. Your parents made the choice to birth you into a society. If you don't like playing by society's rules that everyone else understands results in a better life, then go live in Somalia or an unincorporated territory somewhere.
Re:My grandmother died at home, just as she wanted. It cost ... by mrguyorama on Thursday February 09, 2023 @01:25PM (#34728787)
First things first: Get the fuck off the roads I pay for with taxes, stop drinking water I'm paying for, stop using ANY medical care because that gets government funding in the US, stop using electricity because there's often government involvement in that, stop using the internet, that was built with tax dollars, stop breathing the air that the government attempts to keep clean etc.
Re:My grandmother died at home, just as she wanted. It cost ... by redeeman on Thursday February 09, 2023 @03:11PM (#34730639)
I am not in the US, and I cannot stop using the things others pay for, because they FORCE me to pay for it aswell, or they will haul me away to jail. and in doing this, they also keep ANY competition away, because who can compete with "free".

I pay for water, and then i pay 150% taxes on the water because reasons.. I would just hire someone to drill a well for me on market terms, but the regime made it illegal

edit: actually its about 300% taxes on the water

Re:My grandmother died at home, just as she wanted. It cost ... by adrianN on Saturday February 11, 2023 @01:13AM (#34750029)
There are plenty of failed states on the planet where you can live with basically no taxation at all.
Re:My grandmother died at home, just as she wanted. It cost ... by stevehawk on Thursday February 09, 2023 @10:09AM (#34725094)
In America we have half our income "stolen" from us as well. We just pretend it's not.
Re:My grandmother died at home, just as she wanted. It cost ... by arcticbull on Thursday February 09, 2023 @10:10AM (#34725100)
Top marginal income tax rate in California is like 55% and includes zero medical care. That’s extra.
Re:My grandmother died at home, just as she wanted. It cost ... by redeeman on Thursday February 09, 2023 @10:12AM (#34725141)
and then sales tax, and then tolls on imported shit, and then the accumulated increases in prices due to others taxes.. at the end of the day, you pay WAY above half your life in taxes. in Europe its of course even more fucked up, where taxes are above 95% of some goods you buy
Re:My grandmother died at home, just as she wanted. It cost ... by seszett on Thursday February 09, 2023 @10:17AM (#34725243)
What goods are you thinking about? I think even tobacco (generally the most taxed product) is under that.
Re:My grandmother died at home, just as she wanted. It cost ... by redeeman on Thursday February 09, 2023 @11:02AM (#34725989)
gasoline for example
Re:My grandmother died at home, just as she wanted. It cost ... by arcticbull on Thursday February 09, 2023 @01:29PM (#34728844)
I'm all for more expensive gas. Oil price doesn't properly factor in externalities and it needs to be much more expensive to incentivize transition away.
Re:My grandmother died at home, just as she wanted. It cost ... by redeeman on Thursday February 09, 2023 @03:09PM (#34730591)
then how about doing the sensible thing and mandating that ALL the money the externalities cost be collected, and spent on undoing it? think burning gasoline causes X shit to happen? fine, go pay for that instead of salary to some member of parliament. but no, thats not what happens, all these "green" taxes go straight to the coffins that pays for all the retarded shit the regime wants
Re:My grandmother died at home, just as she wanted. It cost ... by arcticbull on Monday February 13, 2023 @03:11AM (#34771250)
I assume by referencing MPs you're referring to Canada's carbon tax? You know that's a revenue-neutral tax right, none of it is kept by the government. It's all returned to taxpayers. Also "coffers" not coffins.
Re:My grandmother died at home, just as she wanted. It cost ... by onion2k on Thursday February 09, 2023 @10:17AM (#34725252)
It's not possible to pay more than 50% in earnings related taxes (income tax and national insurance) in the UK because the national insurance is capped at £23k and the highest tax band is 45% (on earnings over £150k). Even if you earn £1m/year you still take home more than £500k.
Re:My grandmother died at home, just as she wanted. It cost ... by Duplo on Thursday February 09, 2023 @10:58AM (#34725898)
According to helpful tool on ListenToTaxMan.com tax is 46% if earning £2million/year.

https://listentotaxman.com/?year=2022&taxregion=uk&age=0&tim...

Re:My grandmother died at home, just as she wanted. It cost ... by redeeman on Thursday February 09, 2023 @07:36PM (#34733949)
yeah and when you spend it, you are taken for 20% sales tax, not to mention that the prices in general are far higher, because the people who made it need to pay taxes too
Re:My grandmother died at home, just as she wanted. It cost ... by IOT_Apprentice on Thursday February 09, 2023 @10:19AM (#34725284)
You can lose all your savings and your home in the US as a result of just Healthcare expenses alone. Do you think that is a good idea? None of the other industrialized nations of the world do. Hmmm.
Re:My grandmother died at home, just as she wanted. It cost ... by redeeman on Thursday February 09, 2023 @07:38PM (#34733965)
and in the UK you can die while waiting for the ambulance.. in canada they will recommend you go kill yourself... every system has problems, but there is a thing in common with all the systems.. they all have the hands of government deeply involved
Re:My grandmother died at home, just as she wanted. It cost ... by gabereiser on Thursday February 09, 2023 @10:12AM (#34725146)
Ridiculous. https://www.gov.uk/income-tax-rates It's clearly closer to "just under HALF your income..."
Re:My grandmother died at home, just as she wanted. It cost ... by redeeman on Thursday February 09, 2023 @10:14AM (#34725194)
okay... so now lets say i pay 30% in taxes on my income, great.. now I go into a store, and I buy some things.. woop, how much sales tax? oh shit, now we're at 50%. how many tolls and various other insane things have to be paid to the government?
Re:My grandmother died at home, just as she wanted. It cost ... by onion2k on Thursday February 09, 2023 @10:19AM (#34725287)
Even if you include VAT the chances are that you spend quite a small amount of your money on VAT-rated goods. There's only so much stuff you can buy. Most of your earnings are probably going on a mortgage or being invested, neither or which have VAT on them.
Re:My grandmother died at home, just as she wanted. It cost ... by gabereiser on Thursday February 09, 2023 @10:39AM (#34725531)
This is why initiatives to reform our healthcare system fail. People disillusioned with what it entails. They see taxes. They see money going to waste or worse, to people who don't deserve their support. Like the elderly. Or the sick. I'm not sick, why should I have to pay for you? American Greed Inc.
Re:My grandmother died at home, just as she wanted. It cost ... by redeeman on Thursday February 09, 2023 @10:57AM (#34725870)
wouldnt it then be much better to separate it out, so likeminded people can pay for what they want? you say a large amount of people are happy to pay? great! make a healthcare system like you want. Guess what? I also wish to purchase healthcare services, I just dont want to be forced to purchase the crap the local regime forces upon me.

and what does it matter to you if I can opt out of paying? one less person to serve? great? everyone is happy.

Re:My grandmother died at home, just as she wanted. It cost ... by redeeman on Thursday February 09, 2023 @10:55AM (#34725822)
right... the mortgage to pay for my house, constructed and made with materials that were once sold, and had VAT collected.

either way, that is not the case for the majority of my income. and dont get me started on when I go to purchase gasoline here in europe, not only am i first hit with 50% income tax, then a cool >20% sales tax, and then the outrageous taxes on the gasoline itself and the related industries. so I buy €100 worth of product, and more than 95 of them go to the government. Thanks! you sure did 95% of the work for me there (not)

Re:My grandmother died at home, just as she wanted. It cost ... by j0hnyl on Thursday February 09, 2023 @10:09AM (#34725092)
We get close to half our income stole in the US if we make enough... and it doesn't take that much.
Re:My grandmother died at home, just as she wanted. It cost ... by wbeckler on Thursday February 09, 2023 @10:10AM (#34725098)
I've lived in the UK and the US. The taxes are about the same.
Re:My grandmother died at home, just as she wanted. It cost ... by dcormier on Thursday February 09, 2023 @10:11AM (#34725125)
Do you think the US healthcare system is better than the UKs?
Re:My grandmother died at home, just as she wanted. It cost ... by retrac on Thursday February 09, 2023 @10:37AM (#34725495)
They're different enough they cannot be directly compared in a meaningful way on a single criteria like "overall better".

I'm more familiar with the Canadian and American systems than with the UK, so I'll use it as an example. For Americans with decent insurance, it's generally easier and faster to find and get in to see both a general practitioner as well as a specialist, than in Canada. On the other hand, in Canada it's all part of one insurance scheme. So you can go see any doctor, or go to any hospital in the province, if they have a slot for you.

Surgeries that are not life critical (but still darn important, like knee joint repair) have a much shorter average wait in the USA. Essential surgeries happen about as quickly in either country, with comparable outcomes.

For Americans without decent insurance, they suffer denial of care due to inability to pay more than people do in Canada. But the dirty secret is that denial of care for inability to pay is still common in Canada. Lots of things aren't actually covered by the public insurer. When something isn't actually covered by the public insurer in Canada, the free market is just that, almost completely unregulated. There are no laws against insurers discriminating on the basis of pre-existing conditions or etc.

In the USA, publicly-funded care is actually better for some diseases where the US federal government has set up special programs to provide it. For example, everyone HIV+ and earning 400% or less of the US low income cut-off, is eligible for free HIV medication and doctor's visits and even hospital care. There's no analogy in Canada; in Ontario such drugs are covered for the very poor, and the working class is expected to pay much of it themselves.

Broadly I'd say there's more variability in the US. In the US, at a well-selected clinic or hospital, with excellent insurance, that is some of the best healthcare available in the world. Better than Canada's average care. But Canada's average care is still fairly close, and is available to nearly all residents of the country. Quality of care in the USA seems a fair bit worse for the poor.

Re:My grandmother died at home, just as she wanted. It cost ... by redeeman on Thursday February 09, 2023 @10:16AM (#34725228)
im some ways, I also think the UKs is better in some.. but I mostly think both of them are total shit, and I think a very very large part to blame for that is government
Re:My grandmother died at home, just as she wanted. It cost ... by Turing_Machine on Thursday February 09, 2023 @10:43AM (#34725598)
Ah, yes. The country that invented the "Liverpool Care Pathway" (i.e., let the patients die of thirst, sedate them when they complain) to save money.

https://en.wikipedia.org/wiki/Liverpool_Care_Pathway_for_the...

As others have pointed out, it didn't cost "£0". It cost your fellow citizens the full amount. "The government" didn't pay her rent. Your fellow citizens did. "The government" didn't pay your father a carer's allowance. Your fellow citizens did. "The government" didn't pay for doctors and nurses to travel to her home. Your fellow citizens did.

Now, I, personally, would prefer to see massive reforms in the U.S. system. But pretending that any system is going to cost "£0" is just intellectually dishonest.

Re:My grandmother died at home, just as she wanted. It cost ... by mrtranscendence on Thursday February 09, 2023 @11:22AM (#34726387)
What makes you think this is a relevant response? Everybody knows that the NHS is funded by taxes. This is not a secret, there's not some common misconception that health care isn't actually paid for with money. "Your fellow citizens [paid]" isn't the gotcha you seem to think it is.
Re:My grandmother died at home, just as she wanted. It cost ... by Turing_Machine on Thursday February 09, 2023 @12:31PM (#34727661)
> What makes you think this is a relevant response?

Because the OP was claiming it cost "£0", when it clearly did not.

> This is not a secret, there's not some common misconception that health care isn't actually paid for with money.

Maybe you should tell the OP, since he is clearly operating under that exact "misconception".

Re:My grandmother died at home, just as she wanted. It cost ... by mrguyorama on Thursday February 09, 2023 @01:20PM (#34728676)
No you are just putting words in people's mouths. As an american, when I tell someone "I had to pay $400 to go get an ultrasound", nobody responds "ACKSHUALLY you paid $400 plus the $400 a month you pay for your premiums plus whatever funding comes from governments from your taxes". That point is only brought up to talk about how we actually pay a fuckload for healthcare even though it's a private industry and that's supposed to make it efficient or whatever.
Re:My grandmother died at home, just as she wanted. It cost ... by Turing_Machine on Saturday February 11, 2023 @12:52PM (#34754527)
> No you are just putting words in people's mouths.

Oh? So he didn't say "it cost £0"? I just made that up?

Spin harder, dude.

Re:My grandmother died at home, just as she wanted. It cost ... by StanislavPetrov on Thursday February 09, 2023 @10:44AM (#34725619)
>It only looks like clickbait because you're used to a system that costs $$$ to get medical care.

No it is clickbait because it says "she died at home" when in fact she died in an expensive rented apartment. This fact is unrelated to the reality that the system is broken and people can't get the care they need.

Re:My grandmother died at home, just as she wanted. It cost ... by em500 on Thursday February 09, 2023 @11:18AM (#34726292)
> Nurses and doctors there every day.

But presumably not 24/7 = 168hr per week, which makes all the difference (and the vast majority of the $145k in costs). 168hr / week of care will require 3 to 4 FTEs, no way around that.

Re:My grandmother died at home, just as she wanted. It cost ... by nisegami on Thursday February 09, 2023 @11:20AM (#34726340)
Sounds unsustainable to be honest.
Re:My grandmother died at home, just as she wanted. It cost ... by bthrn on Thursday February 09, 2023 @09:49AM (#34724727)
The claim is that this $16,200 monthly cost was cheaper than the alternative. So it's not entirely silly to include rent in this figure.
Re:My grandmother died at home, just as she wanted. It cost ... by bunbunbun on Thursday February 09, 2023 @10:03AM (#34724960)
Long term care facilities are 5-10k USD per month. For the cheap ones. So $16k seems reasonable for in home care. There are also different intangible personal and family costs to facility-based or home-based care that folks should also consider.
Re:My grandmother died at home, just as she wanted. It cost ... by s1artibartfast on Thursday February 09, 2023 @12:21PM (#34727469)
However, there's a lot of options that are even cheaper.
Re:My grandmother died at home, just as she wanted. It cost ... by kickout on Thursday February 09, 2023 @09:51AM (#34724768)
Possibly a little clickbaity, but it was a first hand experience from the author. There are likely thousands of examples of this exact scenario playing out every year: $old_family_member needs assistance and all of the options cost $small_fortune. What do we do? I think the theme is important rather than the _exact_ details of this particular situation.
Re:My grandmother died at home, just as she wanted. It cost ... by newshorts on Thursday February 09, 2023 @09:55AM (#34724842)
I found the article extremely informational by explaining what the situation could look like for my aging parents.

In fact it even motivates me to start planning out costs with them.

Sometimes the point of articles can simply be to relate one’s own experience to other people.

Re:My grandmother died at home, just as she wanted. It cost ... by peteey on Thursday February 09, 2023 @10:03AM (#34724968)
The point is:

>Medicare should restructure hospice reimbursement to cover more of the hands-on caregiving, thus decreasing the financial burden of dying at home.

The main pitch is somewhat hidden in the middle of the article. Its a tough point to open with, but I think leading with the thesis statement is proper.

Re:My grandmother died at home, just as she wanted. It cost ... by lotsofpulp on Thursday February 09, 2023 @10:10AM (#34725111)
And it is written by a geriatric nurse practitioner, so presumably they would benefit. Not that it would necessarily be inappropriate.
Re:My grandmother died at home, just as she wanted. It cost ... by oneoff786 on Thursday February 09, 2023 @10:21AM (#34725313)
I think it’s also intentionally misleading though. It’s not dying at home. It’s riding out the rest of your days under detailed medical supervision which presumably intervenes and prevents you from dying.
Re:My grandmother died at home, just as she wanted. It cost ... by TheHypnotist on Thursday February 09, 2023 @09:49AM (#34724739)
Which is nothing compared to hospital level care at the hospital.
Re:My grandmother died at home, just as she wanted. It cost ... by ejb999 on Thursday February 09, 2023 @09:50AM (#34724757)
thats how I read it to - the family didn't want the burden of doing the care, and also don't think anyone should have to pay for it - who are these magical fairies that are going to show up in your final days and take care of you for free?

If the deceased person owed the medical bills - well guess what? she is dead and won't have to pay them unless the creditors go after her estate - if the family's complaint that now their inheritance is going to be less than they thought - too bad.

Re:My grandmother died at home, just as she wanted. It cost ... by ryandrake on Thursday February 09, 2023 @10:35AM (#34725466)
This is a pretty uncharitable read of it. Assume good intentions and think about it from the grandparent's point of view:

"I saved my whole life, and wanted to make sure I could give a little back to my loving family, but instead the healthcare industry soaked it all up during my final months."

In civilized countries, somebody else would pay for it. Not through magical fairies, but through taxpayer-funded public healthcare. Instead, in the USA, we're Rugged Individuals™ so we prefer to have a gigantic profitable End Of Life Industry precisely designed to sponge up whatever remains of an elderly person's savings. If you have $500K in assets left, your end of life care will cost $500K. If you have $100K left, your care will cost $100K. If you have $10K left, it will cost $10K.

The solution, in our flawed system, is to do smart estate planning so you die with zero assets. I don't need my parents' money when they go, and I've already told them if they want to help out my sibling or give it to charity, either do it before they die or get it in a structure that can't be confiscated by death profiteers. Either way, have $0 to your name when you finally pass away. Don't give these vultures another gold-lined toilet for their executive suite.

Re:My grandmother died at home, just as she wanted. It cost ... by s1artibartfast on Thursday February 09, 2023 @10:52AM (#34725760)
"In civilized countries, somebody else would pay for it."

Somebody else paying doesn't make the cost go away. Would it be better to make their children or grandchildren pay?

Re:My grandmother died at home, just as she wanted. It cost ... by ejb999 on Thursday February 09, 2023 @10:53AM (#34725789)
I don't think it is uncharitable at all.

"I saved my whole life, and wanted to make sure I could give a little back to my loving family, but instead the healthcare industry soaked it all up during my final months."

An awful lot of people in this country will never get an inheritance; why is it fair to ask them to pay higher taxes so that the most privileged people can leave bigger inheritances to their kids?

I have no problem with people leaving money to their kids - after they pay their own bills. Don't ask me to pay them so your kids can get a bigger windfall.

Re:My grandmother died at home, just as she wanted. It cost ... by AllegedAlec on Thursday February 09, 2023 @11:25AM (#34726439)
> In civilized countries, somebody else would pay for it.

Why is this civilized?

Re:My grandmother died at home, just as she wanted. It cost ... by mhb on Thursday February 09, 2023 @10:04AM (#34724995)
> As much as I sympathize, the title is clickbait and I'm not entirely sure what the point of the article is.

Yes. Where are all the people who were apoplectic about the Nord Stream post?

Re:My grandmother died at home, just as she wanted. It cost ... by Spooky23 on Thursday February 09, 2023 @11:59AM (#34727053)
Typically not - you're looking at nursing home care. That means you'll pay $300+ a day for care that is awful at best and horrific more typically. Sometimes hospice patients have a better experience because the outside entity (the hospice) has eyes on the patient and (in)competence of the nursing home staff.

The tragedy of modern medical care if you're over 65 is that it's hard to die. Medicare only pays hospitals for results, so there are powerful incentives to limit hospital stays as much as possible - unless you're in an ICU or similar scenario, if you are hospitalized more than a week it's likely because someone fucked up, and Medicare will reimburse the hospital next to nothing as a result.

It's easy to get sick or become incapacitated, but people can and will "save" you and leave you in a situation where you are not well, but not dead. The options are 120 days of Medicare nursing home coverage, followed by a slow drain of all of your assets and ultimately Medicaid enrollment. Nursing home means you're effectively warehoused, and the more help you need, the less care you get as you become a cost center.

It's not just a matter of finances, it's a matter of humanity. The harsh reality is your disabled loved one will be treated like cattle unless someone who cares is directly engaged in caring for you. After the horror that my father went through after a suffering a stroke, and the pain caused to my mother after she took on full-time care, I did what most doctors do and have DNR care instructions on file with every hospital in a 50 mile radius.