As for lung capacity: I used to play saxophone pretty fanatically and I think that is one of the reasons I got through this with a relatively low amount of damage.
Funnily enough, I used to play the flute and sing before contracting COVID. With my lung capacity halved, my ability is nowhere near what it used to be. Long COVID has taken all my hobbies away from me: running, singing, hip-hop dancing. If anyone knows of any support groups relating to Long COVID, please let me know.
For those not familiar with the term: You position yourself with your head a foot lower than your hips (and your back straight). You hold that for 15 minutes or so. You let gravity pull the junk out of your lungs down to where you can cough it out. Warning: It's not fun. First, your head feels like it's going to explode from the lung pressure. Second, when a chunk comes out, oxygen starts hitting an area of your lungs for the first time in maybe months. That hurts. (Or so my daughter says. She had to do this.)
"Postural drainage is considered safe and effective, but may cause some side effects. The procedure is discontinued if the patient complains of headache, discomfort, dizziness, palpitations,[3] fatigue, or dyspnea. Patients may be dyspnic after the various manuovers, since the head-down position increases the work of breathing, reduces tidal volume, and decreases functional residual capacity (FRC).[citation needed]"
The particular FB group I'm in is called (creatively enough) "Long Covid Support Group", but a search there reveals there are many more.
My email is in my profile if you want to connect further over this. I consider myself mostly healed by this point (infected March 2020) and can share my vitamin regime (its efficacy is anecdotal, my sample size is 2) but I still have lingering health issues over a year later.
You may want to look into the Airofit Pro: https://www.airofit.com/
Yes, this is exactly what she describes. The closest she could get to describing it was "cigarettes" when I pressed her, but she really insisted should couldn't even characterize it.
Sometimes I wonder how much our sense of smell is connected to the gut microbiome.
I have had a whole bunch of scans and everything is normal. I will be having an endoscopy next week to hopefully get to the bottom of it. I am 'hoping' it is something simple and obvious that they can treat. So far everything ends up being "well it's not $insertMedicalCondition so let's check for $insertSomeOtherMedicalCondition" :(
I have dysautonomia, which I had long before (probably) getting COVID-19. I have a rare form of dysautonomia. But, dysautonomia does happen, relatively frequently, as post-viral cases.
The good news is that post-viral dysautonomia has high potential for improving and even (realistically) going away. Rest will be the best treatment.
Check my profile if you want to email me or want help.
Turned out to be an underlying autoimmune disorder (Sjogrens) and a clotting disorder “factor 5 Leiden”
The exposure triggered both from mild barely noticeable problems to I was completely disabled.
Took years to figure out it out.
When I got covid it was basically the same event again. Took months for body to calm down again.
I have autoimmune autonomic ganglionopathy (autoimmune dysautonomia), which is believed to have caused my type 1 diabetes (autoimmune and insulin-dependent). It is also believed to have caused other endocrine problems and other neurological problems (I have another immune-mediated neurological disease affecting my peripheral nervous system). Anyways, autoimmune autonomic ganglionopathy is very rare, and I have the antibodies (about half of people do not), so I am tremendously lucky.
Anyways, I would be interested in chatting with you. If you want to do so, my email is in my profile information. I am very resourceful and I have tips.
What's been particularly frustrating with long covid is because it's so new, I've had to have awkward pushy conversations with doctors to get me treatment I deserve. You can't get high off beta blockers, which helps assuage my feelings of being an addict engaging in drug seeking behavior, simply trying to get my heart rate under control, but the medical industry has largely failed patients here. The only reprieve is that enough healthcare professionals also got sick, so the fact that there's nothing that shows up on scans of my heart isn't taken as fact that there's nothing wrong with it.
I had never heard of it nor know anyone on it before but apparently it is good. Too early for me to say if it is personally. I want to avoid any kind of addictive medication if possible.
I tested negative for covid antibodies. I'm not sure about all the data on "post covid 19 syndrome" but I check a lot of boxes for it but didn't test positive. My wife is in a similar block. Just tossing some anecdata out there.
The greatest concentrator of such info on the whole internet, is, as far as I can tell, https://twitter.com/grimhood - follow him and get a feel for the info he's spreading, he has very valuable information on all sorts of healing protocols.
Lastly, one that will no doubt be most controversial, but also has promising anecdotes: Ivermectin.
[edit] here come the downvotes, for those that do, note that downvotes, at least on HN, are not meant to express disagreement, they are meant for content that is objectionable for other reasons.
I have used said supplements before. In fact, I have a close friend who is very enamored with supplements and has about 50 different pill bottles in his medicine drawer.
Out of curiosity, I once spent two weeks taking about 25 pills a day at his recommendation, and I'm afraid they did not do very much for me — at least that I could noticeably discern.
The only supplement/herbal medicine I've had success with is St. Johns Wort, but I've been strongly discouraged from using it by a psychiatrist who emphatically emphasized that an SSRI is a much safer and more controllable way to achieve the same effects if need be.
Magnesium deficiency is relatively common, though I wonder if that isn't more of a dietary issue.
There are absolutely scammers selling trash (there's someone selling stem cell injections as a cure) and fuck them. But don't ignore the very real problems that patients are experiencing, and that they're helped by simple remedies that aren't yet proven by science. Science will catch up, but people are suffering dying in the meanwhile.
Yep. From Wikipedia[1]:
> On average, lead levels in women taking St. John's wort are elevated about 20%.
It's also a relatively dirty drug, with effects on typical monoamine and GABA reuptake, MAO-A and MAO-B inhibition and is an inhibitor or inducer at pretty much every relevant enzyme that breaks down common medications.
I wouldn't want to become dependent on something like that because the withdrawal syndrome could be pretty nasty compared to something relatively more selective and understood like an SSRI.
Even switching from SJW to something else might be tricky because of the enzyme induction.
[1] https://en.wikipedia.org/wiki/Hypericum_perforatum#Antidepre...
For illustration, just go on pubmed and search for "nigella sativa" (black seed oil).
I'm speaking from personal experience here. I suffer from a mild case of Erythromelalgia. During typing my fingers and hands would get red and feel warm. My case is most likely secondary caused by some nerve damage from a medication I took. There is a doctor who had severe case of it and has done some research on using magnesium/ala and it made his condition 95% better and he was able to return back to work. I have been following his protocol for about a month now, and it has made an incredible difference.
Anyone who is suffering from an annoying illness, that is not aggressive and require immediate treatment, should try research possible supplements and diets. Clean/healthy diet is always good.
This is factually wrong. Search for posts by dang frequently explaining traditions and norms in this forum, including the downvote very much being a standard way to express disagreement (although it is better to voice your disagreement in a comment if you think the conversation would be interesting).
[edit] seems I'm not the only one: https://news.ycombinator.com/item?id=19406299
Fwiw, I'm not really a fan of it (and don't do it) either. But it's a lot harder to upvote not-objectionable things (so many!) and not upvote things purely because you agree (tempting!) - so I suppose it makes sense. I've thought before about making a 'proof of concept' type commenting system where its designed around not/objectionable; the default as you scroll past things would be to up-vote them (automatically), only down-voting on intervention when 'this does not contribute to the discussion'. Meh, might be interesting, but I'm not interested enough that I've gotten around to it :).
If you're considering this (I wouldn't), be aware that milk of magnesia is a very effective laxative, and other magnesium salts like magnesium oxide etc work similarly.
Long COVID should not be ignored.