Burden of post-Covid-19 syndrome and implications for healthcare planning

Re:Burden of post-Covid-19 syndrome and implications for hea... by disabled on Tuesday July 13, 2021 @03:57PM (#27825539)

This sounds like dysautonomia.

I have dysautonomia, which I had long before (probably) getting COVID-19. I have a rare form of dysautonomia. But, dysautonomia does happen, relatively frequently, as post-viral cases.

The good news is that post-viral dysautonomia has high potential for improving and even (realistically) going away. Rest will be the best treatment.

Check my profile if you want to email me or want help.

[ Parent | on HN ]

Re:Burden of post-Covid-19 syndrome and implications for hea... by treeman79 on Tuesday July 13, 2021 @04:28PM (#27825886)

I acquired dysautonomia from toxic exposure.

Turned out to be an underlying autoimmune disorder (Sjogrens) and a clotting disorder “factor 5 Leiden”

The exposure triggered both from mild barely noticeable problems to I was completely disabled.

Took years to figure out it out.

When I got covid it was basically the same event again. Took months for body to calm down again.

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Re:Burden of post-Covid-19 syndrome and implications for hea... by disabled on Tuesday July 13, 2021 @04:34PM (#27825957)

Yep, I am in the exact same position as you. I lost at least a year of my life due to this post-viral syndrome. I am back to where I was prior to getting COVID-19, though. When I was really sick in March 2020, I thought "wow, I haven't been this sick in a long time". It really was like going back to square one. It was super scary, too, given the health problems that I have.

I have autoimmune autonomic ganglionopathy (autoimmune dysautonomia), which is believed to have caused my type 1 diabetes (autoimmune and insulin-dependent). It is also believed to have caused other endocrine problems and other neurological problems (I have another immune-mediated neurological disease affecting my peripheral nervous system). Anyways, autoimmune autonomic ganglionopathy is very rare, and I have the antibodies (about half of people do not), so I am tremendously lucky.

Anyways, I would be interested in chatting with you. If you want to do so, my email is in my profile information. I am very resourceful and I have tips.

[ Parent | on HN ]