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Re:My Life After a Heart Attack at 38 by agumonkey on Sunday January 20, 2019 @08:43PM (#18956903)
> The practitioner there did an electrocardiogram and said the left side of my heart was slightly enlarged, but my discomfort was probably just gas. Don’t worry, I was told: “Your heart’s not just going to stop. You’re not going to drop dead tomorrow.” But that’s what almost happened.

This is worrying. The habits of doctors can kill. They're not cautious enough. My grand mother was misdiagnosed (not coronary but cardiovascular). My aunt was misdiagnosed and sent home. I had clear cardiovascular issues but got laughed at by half the people I talked to.

Non invasive diagnosis is one the few places where I do want tech to get one or two more decimals of precision.

Re:My Life After a Heart Attack at 38 by cm2012 on Sunday January 20, 2019 @08:51PM (#18956950)
Too much caution makes doctor advice useless. If they tell you to go waste time and money at the hospital every time there's a 1% chance of an issue, you won't actually go when it matters. That's one reason I try to ask doctors to estimate % risk.

On this note: WebMD is not a doctor but has the same issue. There's no differentiating between a real emergency issue and a CYA liability one.

Re:My Life After a Heart Attack at 38 by agumonkey on Sunday January 20, 2019 @09:20PM (#18957101)
That's why I'm asking for more non invasive diagnostics and not experience based "you're fine [and it would cost too much to check further]". I won't die because or someone's habits.
Re:My Life After a Heart Attack at 38 by carbocation on Sunday January 20, 2019 @09:45PM (#18957222)
That's not a resolution to the disagreement, though; that's just one side of it. The disagreement is about how to balance the cost of false negatives against the cost of additional testing.

As an aside, an EKG is not remotely the most important part of diagnosis for myocardial infarction; that's the job of the person taking the history. (Myocardial infarction cannot be diagnosed purely from ECG.)

Re:My Life After a Heart Attack at 38 by agumonkey on Sunday January 20, 2019 @10:00PM (#18957292)
Cost is fallacious. Medical world is stuck in pre advanced electronics era where any device would cost a ton and they rely on companies to make new devices but it's a lucrative market with twisted incentives.

We need a musk like character to shake the medical diagnosis status quo.

ps: I don't want to spend my life obsessing about monitoring my vitals but I'd still prefer to have the option rather than relying on blind faith.

Re:My Life After a Heart Attack at 38 by pandapower2 on Sunday January 20, 2019 @11:39PM (#18957680)
"Cost" is not purely monetary. The cost of additional testing includes patient's time spent traveling too and from additional appointments, additional patient stress waiting for results, additional infections or other side effects from the tests themselves. There are very few things that have zero risk. If you run something on a large enough population someone will have an adverse reaction.

The cost benefit trade off for additional testing isn't just about dollars spent performing the tests. Its about how many thousands of hours of people's lives will be spent in pointless worry and how many additional people will be made sick or killed by testing Vs the additional people that could be saved by additional testing.

Re:My Life After a Heart Attack at 38 by ui-explorer12 on Sunday January 20, 2019 @10:34PM (#18957426)
>> We need a musk like character to shake the medical diagnosis status quo.

You first to trust your life and your loved ones to the SpaceX or Tesla of the medical world.

But - disruption! Fake it till you make it!

Re:My Life After a Heart Attack at 38 by agumonkey on Sunday January 20, 2019 @10:47PM (#18957490)
Tesla used to be very safety focused. Not that much since autopilot. SpaceX is still extremely impressive in terms of progress/accident ratio.
Re:My Life After a Heart Attack at 38 by carbocation on Sunday January 20, 2019 @10:34PM (#18957427)
By cost, I don't mean money.
Re:My Life After a Heart Attack at 38 by baddox on Sunday January 20, 2019 @08:55PM (#18956969)
Do doctors have any training that would equip them to give a remotely accurate risk probability estimate?
Re:My Life After a Heart Attack at 38 by arcticfox on Sunday January 20, 2019 @09:00PM (#18956995)
In my experience doctors are terrible at this, although it's supposed to be basically their entire job. I really think they should get more training in it, or some type of Bayes-esque tool to make what they're thinking explicit.
Re:My Life After a Heart Attack at 38 by Alex3917 on Sunday January 20, 2019 @09:47PM (#18957230)
> really think they should get more training in it, or some type of Bayes-esque tool

They have those online. If you're in your 30s and have a reasonably healthy lifestyle and don't smoke, then your risk of dying from a cardiac event over a ten year period is likely somewhere between 0.25% and 0.5%, depending on how much you exercise and genetic factors.

If anything, Bayesian logic is what leads doctors to ignore signs of heart attacks in young people in the first place.

Re:My Life After a Heart Attack at 38 by XorNot on Sunday January 20, 2019 @09:41PM (#18957204)
But the reality is the patients don't understand the numbers, and in the OPs case a % risk doesn't mean much if it happens to you.
Re:My Life After a Heart Attack at 38 by cm2012 on Sunday January 20, 2019 @09:26PM (#18957124)
My wife's current psychiatrist is awesome at this - he quotes the scientific literature for relative risk levels when talking about medicine changes or interactions.
Re:My Life After a Heart Attack at 38 by DoreenMichele on Sunday January 20, 2019 @09:52PM (#18957262)
Historically, doctors were some of the most educated people in town and you and your entire family saw the same doctor for many years. They had a lot of context for what was going on in your life.

Now, people move around more, are less likely to see the same physician for years on end, are less likely to see the same physician as their relatives who may live elsewhere, etc.

I don't know how to fix it, but I think these changes are a very big part of the problem. I don't care how brilliant and dedicated you are, having less overall context is going to undermine your ability to draw accurate conclusions about what's really going on.

Re:My Life After a Heart Attack at 38 by MisterOctober on Sunday January 20, 2019 @10:05PM (#18957310)
also, doctors in recent decades have been horrendously overworked, particularly with regard to pressure to see many more patients daily than was the norm a generation ago. Less time with patients = less chance for listening to background and contextual information that may be useful in evaluation.
Re:My Life After a Heart Attack at 38 by agumonkey on Sunday January 20, 2019 @09:57PM (#18957280)
That's true, social dynamics changed dramatically. More stress, less stable human relationships, more pollution, less activity .. what was working fine before probably need a revamp. Either that or we go back to slower and more local lifestyles (not bad in my book)
Re:My Life After a Heart Attack at 38 by nradov on Sunday January 20, 2019 @10:29PM (#18957400)
Perhaps so, but do we have any evidence that the frequency of diagnostic errors has increased?
Re:My Life After a Heart Attack at 38 by DoreenMichele on Sunday January 20, 2019 @10:44PM (#18957479)
No clue and it's entirely possible diagnostics have improved in some ways, in part due to improvements in testing and in part due to patients being better educated.

But I'm old-ish and I remember when it was pretty normal for Mom to show up with all three kids and a couple of their cousins and get them all treated at the same time. In contrast, in recent years, I routinely hear that people in the family pass the same crud around repeatedly because they get treated as individuals and it leads to recurrent or chronic issues. I've also dealt enough with chronic health stuff that I'm quite confident that when doctors decide "This is your normal. Just get used to it." it becomes self-fulfilling prophecy.

From what I gather, obesity and chronic health issues are vastly more common than they used to be. To my mind, that's probably evidence that something has gone very wrong with our health mental models/practices overall and the change in how we interact with physicians is probably just one grain of sand in a beach of changes. (However, it will also be confounded by medical advances leading to people malingering when, historically, they would have simply died. We often can't cure them, but we can keep them alive longer than we used to.)

But I'm sure that's a case of "Other people won't necessarily see what I see and if they don't, there will be no winning them over." (shrug)

Re:My Life After a Heart Attack at 38 by Fomite on Monday January 21, 2019 @12:29AM (#18957884)
"From what I gather, obesity and chronic health issues are vastly more common than they used to be."

Obesity, perhaps, but chronic health issues? Not really - and a tremendous number of those went untreated. A huge number of people in the past lived with perpetual pain and disabilities.

Re:My Life After a Heart Attack at 38 by DoreenMichele on Monday January 21, 2019 @12:35AM (#18957905)
Historically, we didn't have the resources to "carry" a lot of disabled people. You had to pull your own weight in some way.

Because I'm disabled and the internet is a thing, I'm very aware of the existence of people on disability, on multiple meds and not doing much with their lives. Historically, we simply didn't have the resources to support such people.

I'm thinking of those folks -- not simply people living with pain and limitations, but people who historically would have simply died because if it was going to kill you to keep on keeping on, then you were going to die because disability payments, etc, simply did not exist like they do today.

Re:My Life After a Heart Attack at 38 by jazoom on Sunday January 20, 2019 @10:10PM (#18957330)
Disclaimer: I'm a doctor

You say this because you are unaware of the risks of overscreening, overtesting and overdiagnosis. Pre-test probability is important to take into consideration. Getting patients worked up over a 0.00001% chance event causes undue stress.

Re:My Life After a Heart Attack at 38 by agumonkey on Sunday January 20, 2019 @10:17PM (#18957356)
Please elaborate. I understand that some test procedures (coronarography etc) are too heavy to be used randomly. What else ?
Re:My Life After a Heart Attack at 38 by jazoom on Monday January 21, 2019 @02:17AM (#18958356)
It's different for each test and intervention, and different again depending on why you're doing them. Balancing risk vs benefit is a major job of the doctor.

One example: the humble chest X-ray. You may think the main risk is radiation, but IMO you'd be wrong to think that. The main risk is finding something. We call them incidentalomas. You would never have found it if you didn't do the CXR. It would never have caused you worry or morbidity. But now we know it's there, you need to get a lung biopsy. And that leads to a pneumothorax. That leads to a longer stay in hospital. That leads to time off work. You end up with no benefit to a patient who now has less trust in the medical system because they got a pneumothorax for nothing.

Re:My Life After a Heart Attack at 38 by petercooper on Monday January 21, 2019 @10:28AM (#18960956)
I am not a doctor, just someone who reads too many medical stories, but the thing that convinced me was an explanation by Henry Marsh, one of the UK's leading brain surgeons.

A brain aneurysm poses a certain level of risk based on its size and location. So let's say you have an asymptomatic aneurysm with an annual mortality risk of 0.5%.

Now let's say you decide to randomly have a full body MRI and the aneurysm is discovered. A neurosurgeon tells you that you can have an operation to clip or coil the aneurysm with a 10% risk of fatality due to its location. Do you have the op?

Apparently most people do, despite the overall odds of immediate death. A 0.5% annual risk of death would ride most people out to their age of natural death rather than the 10% risk of the op, but people hate having even a tiny risk hanging over their head long term.

As such, there's a school of thought that you shouldn't have such types of screening (or at least to not know the results if they are minor) unless you are symptomatic.

Re:My Life After a Heart Attack at 38 by ui-explorer12 on Sunday January 20, 2019 @10:32PM (#18957422)
tonnes of cancer screening; many biopsies.

It hurts to quantify it this way, but the pot to fund health care is not bottomless in either a pure public or privately insured system. It needs to be spread across the entire population, and across all of the potential issues an individual may face.

Re:My Life After a Heart Attack at 38 by Fomite on Monday January 21, 2019 @12:25AM (#18957872)
Or worse, intervening that itself has non-zero risks...
Re:My Life After a Heart Attack at 38 by tptacek on Sunday January 20, 2019 @10:56PM (#18957527)
Do you have any medical training? There are at least two HN users commenting on this thread who do; one of them is a cardiology fellow(!). What they're saying seems to be getting drowned out by a lot of HN-style axiomatic reasoning.

Have you read much about overtreatment in cardiology? There's currently a minor scandal in the US about unnecessary cardiac procedures being performed. [cardiology overtreatment] is a good Google search term for this.

It's easy, on a message board, to say "I want the extra attention, damn the cost". That's especially true when you just read an article about a "widowmaker heart attack", so that the upside of excess attention is the only thing about the issue that's cognitively available to you. But these procedures can do harm as well as good.

Re:My Life After a Heart Attack at 38 by dwild on Monday January 21, 2019 @02:07PM (#18962665)
You talk specifically about over treatment but what the previous comment seems to refer is about misdiagnosis. Diagnosis where because it's very unlikely, doctor simply prefer to ignore this possibility.

My SO nearly died because she was "too young" to have a thrombophlebitis, yet every signs pointed to that, yet they could have simply tested for it. She not only is incredibly lucky that a better doctor was not too far and heard her complains, she was incredibly lucky that even though it took so long for her to be treated correctly, that she still have her legs.

Maybe over treatment is an issue, maybe cardiology is an inexact science right now and it's impossible to get a good diagnosis. It doesn't change the fact that misdiagnosis is bad and we should do everything we can to improve this, in every side of the coins, including mentioning when doctor just prefer to ignore conditions, because it's unlikely.

Re:My Life After a Heart Attack at 38 by tptacek on Monday January 21, 2019 @04:00PM (#18963565)
You keep referring to "misdiagnosis" when I think you mean to say "underdiagnosis".
Re:My Life After a Heart Attack at 38 by gamma-male on Sunday January 20, 2019 @10:15PM (#18957349)
You have no idea about what it is to be a doctor and you are just reacting to one sided story
Re:My Life After a Heart Attack at 38 by toufiqbarhamov on Sunday January 20, 2019 @11:53PM (#18957728)
You have no idea about what it is to be a doctor and you are just reacting to one sided story.

On the other hand it’s ressonable as a patient not to care what it’s like being a doctor, your job as the patient is to be honest, give complete answers, and advocate for yourself. I’m not interested in a public policy perspective as dictated by the realities of insurance company profit, hospital profit, pharmaceutical company and medical device company profit, and so on.

It’s the same thing with letting an intern take their turn with the scalpal. If it’s someone I care about under the knife, I’m making sure the surgeon got enough sleep and no intern or first year resident who’s half asleep touches the person I care about. Arguments that “they have to learn somehow” are reasonable, but so is my reaction that it’s your problem, not mine. I don’t care about how you’re educated, or your burdens except as they impact results.

Life is unfair, utilitarian calculations must be made, but that sets up an adversarial relationship on one level, and only a fool ignores that. You feel free to fight for public policy, I’m fighting for the people I care about, not their doctors. That’s also part of life being unfair.

Re:My Life After a Heart Attack at 38 by Fomite on Monday January 21, 2019 @12:31AM (#18957887)
The problem with this is when what you think you're fighting for and what you're actually fighting for don't align.

I've encountered patient advocacy groups who are actively, and passionately, pushing for the wrong thing, that while emotively satisfying, will not help the problem they're trying to solve.

Re:My Life After a Heart Attack at 38 by toufiqbarhamov on Monday January 21, 2019 @12:34AM (#18957897)
Sure, it’s hard to get right, and patient advocacy groups in particular can be wildly off target. By advocacy I mean one-on-one, for someone you actually have a connection to, and limited to issues you can reasonably understand. For some people that will be issues of comfort and other basics, for some it might have a more clinical element. Advocacy can be as simple as checking on an elderly relative to make sure they’re being cared for properly, checking a doctor’s background, or even getting another opinion from another doctor. In extremes it can mean diagnosis on your own, which you then verify with a doctor.

In that last vein, I’ve been in that position. A girlfriend from years ago had a nasty rash on her arm, and a series of dermatologists gave her a series of exams and creams. I did some research and concluded that it was probably an allergic reaction. I talked to her latest dermatologist who agreed it could be that, and I suggested taking s daily allergy pill. It worked.

Sometimes having the time and inclination to do research is more than a busy doctor brings to the table. If you’re skeptical, and understand that cherrypicking symptoms from a list and screaming “oh god it’s a tumor,” is unhelpful, then research is useful.

Re:My Life After a Heart Attack at 38 by agumonkey on Sunday January 20, 2019 @10:28PM (#18957396)
Partly true, I just saw too many errors. I don't blame people much. They're already doing a lot. That said I want a tad more, forgive me for that.
Re:My Life After a Heart Attack at 38 by mr_toad on Sunday January 20, 2019 @11:17PM (#18957592)
> Your heart’s not just going to stop.

A heart attack is not actually your heart stopping. It’s caused by a lack of oxygen to the heart tissue, causing pain and damage. It is often not immediately fatal.

It can lead, sooner or later, to cardiac arrest, which is when your heart stops completely, and often is fatal.

Re:My Life After a Heart Attack at 38 by austincheney on Sunday January 20, 2019 @09:21PM (#18957103)
I started running aggressively last year and developed bracycardia for the first time. The change to my physiology was pronounced. I was faster and stronger than ever before (even compared to high school performance as I was almost breaking a 12 minute two mile) and my resting pulse rate was in the 40s. I was almost 39 then.

I learned some things from that were never clear before. It’s more about the journey than the goal. I was running on a treadmill and started after recovering from surgery. I started at an 8 minute mile pace and could barely run a mile. My goal was to increase the distance instead of speed and gradually worked up to a 10k (50 mins) 5 days a week. Then I was able to work on speed and resistance here and there. I have asthma and remember running through an attack on one occasion to make my distance goal and break from a performance plateau.

At the time I was eating a lot of fatty, greasy, meaty foods. The foods were heavy and high in cholesterol. I had tried the ketosis diet the summer before and lost 25 pounds, but I was not intentionally practicing any diet at this time I was running.

You don’t achieve performance over night. It’s similar to programming in that it takes practice solving hard problems and listening deeply to your environment. With enough practice and persistence you make goal and are changed as a result.

Re:My Life After a Heart Attack at 38 by travisoneill1 on Sunday January 20, 2019 @09:46PM (#18957228)
They are guessing based on memory and emotion. The industry is primitive. There may be relevant research published that could help your specific case but they will never see it. When they leave the room they aren't going back to the office to start Googling and thinking about what additional data to collect to diagnose and solve the problem. They are going to see the next patient and will not think about you again. If your problem isn't obvious or catastrophic, you are SOL.
Re:My Life After a Heart Attack at 38 by agumonkey on Sunday January 20, 2019 @09:54PM (#18957272)
Being SOL is nothing, what's worse is the slight authority play going on. Letting people going back home thinking there's nothing serious or nothing that can be done is criminal IMO. State it clearly: to my best knowledge I can't see anything, keep looking if you feel the issue is still there, here are some other names or places.
Re:My Life After a Heart Attack at 38 by nradov on Sunday January 20, 2019 @10:32PM (#18957419)
Sometimes there is something serious that needs further investigation. But others times it's nothing and following your advice would be feeding hypochondria. Additional testing and diagnosis is expensive, and often carries risks of its own. It's hard to know where to draw the line.
Re:My Life After a Heart Attack at 38 by agumonkey on Sunday January 20, 2019 @10:53PM (#18957516)
You see, I do wonder about my tendency to bias due to anxiety, hypocondria etc etc

But this is part of my tone in my above messages. I've seen doctors lie. I did have swollen ankles and hands. When mentioned to them, they'd say "yes that's a cardiovascular issue" just to switch stance the minute after.

They, too, have biases.