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Re:Skin too fragile to touch by JesperRavn on Saturday July 11, 2015 @06:01PM (#9871727)
Euthanizing children with this condition at birth should not only be legal, but encouraged. Because of the enormous suffering they experience.
Re:Skin too fragile to touch by bennettfeely on Saturday July 11, 2015 @06:51PM (#9871870)
Anyone who tries to eliminate suffering by killing the "sufferers" is establishing a horrific trend. It is not for us to decide who has a life worth living and who doesn't, and we certainly wouldn't want someone else making that decision for us.
Re:Skin too fragile to touch by Sharlin on Saturday July 11, 2015 @07:05PM (#9871901)
Abortion is already both legal and morally acceptable in many places, especially in cases the fetus has or is known to develop a debilitating untreatable disease. What if a test were to be developed to detect this condition before the second trimester or whatever the legal boundary is?
Re:Skin too fragile to touch by drdeca on Sunday July 12, 2015 @02:53AM (#9872781)
I don't think moral realism / moral universalism would claim that whether something is morally ok depends on where (I.e. in what community) it is. Instead, I think "considered morally acceptable" might be an alternate phrasing which doesn't say (much of) anything about meta-ethics.
Re:Skin too fragile to touch by knodi123 on Sunday July 12, 2015 @12:33AM (#9872586)
I understand the concept of a slippery slope, but let's acknowledge the fact that parents routinely make every single medical decision for their babies, because somebody has to, and the babies aren't capable.
Re:Skin too fragile to touch by lindil on Sunday July 12, 2015 @01:49AM (#9872700)
In the article, one of the featured patients asked his parents to kill him to end is lifelong torture. You have the privilege of not living with burning skin and relying on hours of medical care every day.
Re:Skin too fragile to touch by JesperRavn on Saturday July 11, 2015 @07:15PM (#9871928)
What I'm suggesting is a balance between natural rights and consequentialism. The current situation where we only care about natural rights is also horrific, so there is no ground for a slippery slope argument.

Adults and even children can make choices about their treatment or if they prefer to die (do you think the children in this article should have been given this choice incidentally?) But for babies we should be willing to make that choice for them in extreme circumstances.

Re:Skin too fragile to touch by bbayer on Saturday July 11, 2015 @07:35PM (#9871974)
Every organism wants to live. Most majority of people don't want to die even though suffering from terrible disease like this. Even seconds matter sometimes. No one has any privilege or right to decide on who deserve to live or die.
Re:Skin too fragile to touch by juliangregorian on Sunday July 12, 2015 @11:23AM (#9873730)
Umm, wrong? Organisms kill themselves all the time. We also have centuries of established legal tradition to decide who lives or dies.
Re:Skin too fragile to touch by reagency on Sunday July 12, 2015 @01:37AM (#9872688)
More correctly, every organism wants to reproduce, not live for its own sake.
Re:Skin too fragile to touch by developer1 on Sunday July 12, 2015 @04:29AM (#9872907)
Really? I must be broken, for I have no desire to be a member of that group. :/
Re:Skin too fragile to touch by melling on Saturday July 11, 2015 @10:17PM (#9872373)
I'd agree with you if we were living in the Middle Ages. However, since we're approaching the 3rd decade of the 21st century, I really wish more people would take a "how do we solve this problem" attitude. It's really only a matter of money, talent, and resources to solve most problems.
Re:Skin too fragile to touch by lectrick on Saturday July 11, 2015 @06:17PM (#9871775)
Killing is a pretty strong word. I'd say "euthanizing."

But perhaps part of the reason for existing is to be a constant reminder for researchers to get on that gene therapy research...

Re:Skin too fragile to touch by JesperRavn on Saturday July 11, 2015 @06:26PM (#9871800)
Changed the wording. Do you honestly believe your second sentence?
Re:Skin too fragile to touch by lectrick on Sunday July 12, 2015 @10:07PM (#9875978)
I think one of the points of human experience is to figure out how to reduce ALL human suffering, this included.
Re:Skin too fragile to touch by Retra on Saturday July 11, 2015 @06:18PM (#9871776)
Contrary to popular opinion, the amount of suffering that exists in the world does not intrinsically matter.
Re:Skin too fragile to touch by JesperRavn on Saturday July 11, 2015 @06:23PM (#9871793)
I think the onus is on you to prove that, given that it places you in such a tiny minority
Re:Skin too fragile to touch by Retra on Saturday July 11, 2015 @08:04PM (#9872042)
Well, that's a trivial proof. Kill everybody and there will be no suffering. Then you invoke what does intrinsically matter to recognize that this is an unacceptable solution, because you've actually destroyed everything that matters.

What does matter is reliable, flexible decision-making capabilities, and killing someone is just about the worst way to achieve that (barring that the person you kill isn't doing more damage than good in this regard.) Suffering is bad because it causes people to make bad decisions.

And that isn't something you can easily argue is true for the situation I was responding to.

Re:Skin too fragile to touch by gjm11 on Saturday July 11, 2015 @08:23PM (#9872079)
The argument in your first paragraph shows that suffering is not the only thing that matters; it doesn't prove it isn't a thing that matters (which is what you claimed before).

I don't think it's tenable to say that suffering is bad only "because it causes people to make bad decisions", unless you are comfortable saying that inflicting pain on infants is morally neutral. (I don't think a very small baby can rightly be said to be "making decisions", good or bad.)

Re:Skin too fragile to touch by Retra on Sunday July 12, 2015 @12:15AM (#9872560)
I said it doesn't matter intrinsically. It matters when you consider its effects on decision-making.

>unless you are comfortable saying that inflicting pain on infants is morally neutral.

Why not make your argument about chickens or pigs? I don't care if a chicken suffers before I eat it: it's dead. It was bred to die. That's not much of a moral quandary for me, to be honest.

Baby humans have a lot of potential, and we need them to make good decisions as adults. That doesn't happen when you don't care about children's pain. But it definitely also doesn't happen if you kill them.

Re:Skin too fragile to touch by reagency on Sunday July 12, 2015 @01:30AM (#9872676)
By your logic, I could breed slaves to suffer and die for my benefit, with no moral quandary, as long as I never let them make any decisions. This was in fact USA law for decades.
Re:Skin too fragile to touch by Retra on Sunday July 12, 2015 @10:42AM (#9873629)
That is not my logic, you've completely missed my point. The adult human brain is the most powerful decision-making tool known to have ever existed anywhere in the entire universe. That being the trait that makes humans valuable, and slavery undermining that makes it somewhat incompatible with my morality.

Chickens do not have that potential to be valuable decision-makers. That is the only reason it is acceptable to breed them for death.

Re:Skin too fragile to touch by juliangregorian on Sunday July 12, 2015 @11:26AM (#9873743)
What a weird and arbitrary (and absurdly anthropocentric) standard for who is regarded as valuable.
Re:Skin too fragile to touch by Retra on Sunday July 12, 2015 @11:56AM (#9873838)
You could say the same about any morality, though I don't see why you think it's arbitrary or anthropocentric. For one, I am talking about the properties of information, which isn't arbitrary. And you could certainly build a machine, find another animal, or locate an ecosystem that has more value than humans.

Especially when you've got a world of absurd religious philosophies to compare it to.

Re:Skin too fragile to touch by juliangregorian on Sunday July 12, 2015 @12:59PM (#9874057)
> For one, I am talking about the properties of information, which isn't arbitrary.

I dunno, do chickens agree with you on that?

Re:Skin too fragile to touch by mtVessel on Sunday July 12, 2015 @12:35AM (#9872587)
So you're arguing that if inflicting pain produces better decisions (as it occasionally does), it is not just morally acceptable, but an actual positive force for good?
Re:Skin too fragile to touch by Retra on Sunday July 12, 2015 @01:02AM (#9872616)
No, if inflicting pain produces better, more circumstantially adaptable decision-making capabilities, then I would agree.

And when it does, it clearly is good. That's why we evolved pain receptors: because it enables better decision-making capabilities. People who can't feel pain suffer plenty for it, and they live in real danger.

Re:Skin too fragile to touch by comex on Saturday July 11, 2015 @10:50PM (#9872426)
"If all life were to end in Spira, all suffering would end. Don't you see? Do you not agree?"

- an antagonist in Final Fantasy X

Re:Skin too fragile to touch by PhasmaFelis on Saturday July 11, 2015 @11:25PM (#9872476)
If suffering doesn't matter, then neither does anything else.
Re:Skin too fragile to touch by Retra on Sunday July 12, 2015 @12:19AM (#9872569)
The whole entirety of the universe simply doesn't possess any form of meaning whatsoever if people do not experience pain or agony? Is that what you're trying to claim?

Meaning is not a side-effect of suffering. It's a side effect of correlations between subsets of reality, like those necessary to drive perception and rationality.

Re:Skin too fragile to touch by drdeca on Sunday July 12, 2015 @03:00AM (#9872791)
I don't think that first thing follows from what they said.

"If there is suffering, and none of it matters, then nothing means anything" does not seem to imply "if there is no suffering, nothing matters".

Their claim does not seem to imply that all meaning eventually derives from suffering. Only that either some suffering matters, or nothing matters.

It also doesn't seem to imply that if there was no suffering that the statement would still apply?

I think?

Re:Skin too fragile to touch by Retra on Sunday July 12, 2015 @10:45AM (#9873630)
>some suffering matters, or nothing matters.

This statement means that the 'mattering' (meaning) of anything else is contingent upon the existence of meaningful suffering. So if there were no suffering, nothing else could matter.

Re:Skin too fragile to touch by drdeca on Sunday July 12, 2015 @01:50PM (#9874254)
That would only follow if the quoted statement was also true if there was no suffering.

If there exist some X, and it was true that either some X Y, or nothing Y, that would not imply that if it were the case that there are no X, that nothing Y.

If it is true that (H & J) -> K, and it is true that H, then it is true that J -> K.

Let H be "there is some suffering", let J be "something means something/matters", and K be "some suffering matters/ means something".

J -> K is equivalent to K or not J.

If one believes that "if there is some suffering, and there is something that matters, then some suffering matters", and one also believes that there is some suffering, one could then conclude that "either some suffering means something, or nothing does". This does not mean that one could conclude that "if there WERE no suffering, nothing would mean anything". Rather, one would only conclude that "if there IS no suffering, nothing means anything", but that is only because one already believes that there is some suffering. One could, under the beliefs above, reach the conclusion that "if there is no suffering, <insert anything here>" by the principle of explosion.

Re:Skin too fragile to touch by Retra on Sunday July 12, 2015 @05:51PM (#9875124)
Well, yes, I was assuming that the elimination of suffering was a realizable goal, and if we assume it is a good goal, then accepting "there is suffering or nothing matters" implies that it is consequentially a goal to make nothing matter.

But like I said, it is the exchange of information that gives things meaning (that's what minds do,) and the only way to actually make nothing matter is to destroy all information-processing systems.

Re:Skin too fragile to touch by PhasmaFelis on Monday July 13, 2015 @04:26PM (#9880813)
No. I'm saying that suffering appears to be an integral part of the human experience, so if anything we do matters, then suffering (and joy, and all the rest) must also matter.