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Re:Endometriosis is an incredibly interesting disease by dragonwriter on Saturday June 14, 2025 @03:11PM (#44278162)
> We have progressed fantastically on the common medical conditions, but once you get into more rare stuff it gets a lot harder.

At about 10% of women of reproductive age, endometriosis is way over on the “common medical conditions” side, not the “more rare stuff” side.

There's a bias here, but its not about how common the disease is, but who it affects and how.

Re:Endometriosis is an incredibly interesting disease by tbrownaw on Saturday June 14, 2025 @04:10PM (#44278504)
> There's a bias here, but its not about how common the disease is, but who it affects and how.

This worldview requires believing that doctors dgaf about their family members.

Re:Endometriosis is an incredibly interesting disease by ipaddr on Saturday June 14, 2025 @05:03PM (#44278821)
Most doctors who do this type of medicine wouldn't work with family members. Not many fathers, uncles would work on their kids, nieces or mothers and not many mothers either. You would go to a different doctor if possible.
Re:Endometriosis is an incredibly interesting disease by tbrownaw on Saturday June 14, 2025 @05:08PM (#44278846)
"They don't care because it's doesn't affect them personally" requires "they don't care about other people".

My general impression from half recalling whatever stories about new medical discoveries, is that the motivation is more often a problem that a family member of the researcher has rather than a problem that the researcher personally has.

Re:Endometriosis is an incredibly interesting disease by epistasis on Saturday June 14, 2025 @04:35PM (#44278658)
I really regret using "common" here, because the issue with endometriosis is the complexity of the disease, lack of understanding, and lack of clinical management tools. Not the rarity.