I'm sure that kind of lifestyle also exists outside of a religious context, but it was quite striking. I've never seen anything like it. It made me wonder what life used to be like a hundred years ago, and what we've lost, or given up.
I guess church is the prime example of a Third Place, which appear to be in short supply.
I share the desire for more social lifestyles - I think suburbanization is a huge driver of this - but want a secular form which doesn’t have the drawbacks many religions offer.
But now, at the end of this process, I am able to see better the cost of this separation. I don't regret it, and I am glad it was done, but it's clear that neither in nor out of a church is the 21st century adult made whole.
Somewhere there has to be a happy medium.
... I've often felt like it would have been much safer to either make a legal firm administrators of the fund or at least have multiple family members on it, so that they might keep tabs on each other and make it harder to just steal. I've actually spent a lot of time thinking about what went wrong and what might have been different. If that uncle hadn't died I would probably have spent that time fantasizing about ways to kill him, but, as it is ... I just don't get to retire.
I love my brother and have made peace with most of the consequences of what happened to him, because at a certain point you just have to accept the hand you're dealt and keep going. But the bitterness of what the world has done to us is still in me and I don't think it's ever going to leave.
tl;dr - definitely don't leave just one person, even family, with access to a disabled person's money
I’m sorry you had to live through that it’s truly horrible.
I wish there were better legal resources for the parents of disabled children to do this in the US. Like the original comment pointed out, the legal expenses of setting up a trust are steep, and if you're already fighting an uphill battle with medical costs it can be impractical. Or even totally out of reach.
> And crawling on the planet's face, > some insects called the human race.
What we don't do for ourselves, and for one another, isn't done. (Except in some cases, when it's done by fruiting flora externalizing gamete distribution costs.)
I will admit that I realized, too late to edit my original comment, that government welfare has also been a tremendous boon to members of my community with disabilities. A good social worker is worth their weight in gold. I happily pay taxes in order to keep my neighbors off the streets.
0. Richard O'Brien, The Rocky Horror Picture Show
Oof, this is obvious in retrospect, and I regret it. Unfortunately, there are some very useful rhetorical angles which do not translate to text, and pity is one of them.
Capitalism is alienating. One's career rarely introduces one to lasting, trusting, bonds. I would think your top priority would be establishing a safe, loving community for her to be a part of.