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Re:Drugmakers Are Set to Pay 23andMe Millions to Access Cons... by toomuchtodo on Monday October 30, 2023 @07:38PM (#38077525)
I intended to give it to anyone 23andme would provide it to. I also provided it to Harvard’s Personal Genome Project, along with my lifetime medical records.

I still want fraud prosecuted, regardless of entity. Complex problems are chock full of nuance.

Re:Drugmakers Are Set to Pay 23andMe Millions to Access Cons... by solardev on Monday October 30, 2023 @08:02PM (#38077792)
Thank you! You mirrored my thought process exactly.

Is there an open genome movement where you can just donate your genome into the public domain? I don't really care who has access to it, but it's a hassle to have to manually apply for each project that wants it.

Re:Drugmakers Are Set to Pay 23andMe Millions to Access Cons... by dekhn on Monday October 30, 2023 @08:05PM (#38077829)
HMS PGP. https://my.pgp-hms.org/profile/hu80855C is my genome. It's effectively in the public domain.
Re:Drugmakers Are Set to Pay 23andMe Millions to Access Cons... by ssteeper on Monday October 30, 2023 @09:01PM (#38078549)
Yes, it is complex. I agree that providing personal data to trustworthy research programs is beneficial to the public. Do you agree that providing detailed health data to untrustworthy corporations can easily become problematic? Because so far, you've made it sound like you don't see a reason for an individual to not provide their data to 23andme.
Re:Drugmakers Are Set to Pay 23andMe Millions to Access Cons... by toomuchtodo on Monday October 30, 2023 @10:35PM (#38079505)
It is problematic but has no perfect solution. Create data security and governance requirements contractually. Require the vendor carry insurance and prove their controls and processes. If they fail to protect the data provided, require penalties outlined in the data processing agreement (if any).

Alternatively, 23andme could offer compute to pharma companies that can run against their genetic data lake, with DLP and data security controls between them and the pharma customer. This would minimize leakage potential while still allowing compute against the data.

Re:Drugmakers Are Set to Pay 23andMe Millions to Access Cons... by flandish on Monday October 30, 2023 @09:17PM (#38078745)
I wish the data would be combined with things like Vanderbilt’s BioVU databanks, etc, for actual translational research and not for swift for profit research. This is just another version of “socialized research privatized profit.”
Re:Drugmakers Are Set to Pay 23andMe Millions to Access Cons... by bossyTeacher on Tuesday October 31, 2023 @06:18AM (#38082570)
> I intended to give it to anyone 23andme would provide it to.

So basically any big pharma or big insurance corporation because those are the ones that will get it eventually and will use it for their own profile without regards to any negative consequences for you or anyone else.

Re:Drugmakers Are Set to Pay 23andMe Millions to Access Cons... by toomuchtodo on Tuesday October 31, 2023 @06:28AM (#38082636)
I’m satisfied with the regulatory environment and how it leads to the handling of my genetic data. There are no negative consequences for me sharing my data with regards to employment or health insurance [1] [2]. If pharma companies are creating useful pharma products from this aggregated data, that is the goal. If those products are too expensive, that is a healthcare policy issue. If you’re unhappy, call a Congressional rep.

[1] https://www.eeoc.gov/statutes/genetic-information-nondiscrim...

[2] https://www.genome.gov/about-genomics/policy-issues/Genetic-...

Re:Drugmakers Are Set to Pay 23andMe Millions to Access Cons... by lm28469 on Tuesday October 31, 2023 @11:44AM (#38086617)
> I intended to give it to anyone 23andme would provide it to

Your health insurance company for example ?

Re:Drugmakers Are Set to Pay 23andMe Millions to Access Cons... by toomuchtodo on Tuesday October 31, 2023 @01:25PM (#38088309)
https://www.genome.gov/about-genomics/policy-issues/Genetic-...

> The Genetic Information Nondiscrimination Act (GINA) of 2008 protects Americans from discrimination based on their genetic information in both health insurance (Title I) and employment (Title II). Title I amends the Employee Retirement Income Security Act of 1974 (ERISA), the Public Health Service Act (PHSA), and the Internal Revenue Code (IRC), through the Health Insurance Portability and Accountability Act of 1996 (HIPAA), as well as the Social Security Act, to prohibit health insurers from engaging in genetic discrimination. Title II of GINA is implemented by the Equal Employment Opportunity Commission (EEOC) and prevents employers from using genetic information in employment decisions and prevents employers from requesting and requiring genetic information from employees or those applying for jobs.

Re:Drugmakers Are Set to Pay 23andMe Millions to Access Cons... by lm28469 on Tuesday October 31, 2023 @01:39PM (#38088520)
Abortion was also legal once upon a time