Technically, this approach does not avoid passing the genetic mutation to the children you conceive. Each embryo still has a 50/50 chance of inheriting it.
Instead, the embryos that have the genetic mutation are discarded, and only the embryos without the mutation are implanted.
If you believe that directly ending a human life at any stage, including embryonic development, is immoral or morally problematic, this is probably not an approach you would feel comfortable taking.
I don't see how else the word "selection" could be interpreted in this context.
You die like ALS when your lungs stop working. Before that, starting in your 40's to 60's you start getting symptoms of schizophrenia and Parkinson's, so loss of motor control and delusional thought processes. If you know you have it you'll eventually not be able to trust your own judgement.
My wife's grandma and uncle's died of it. Grandma was a lady I only met as someone who laid in bed with her eyes open but no movement or indication she saw you. She did still like applesauce by the end. We didn't know if she was there or just locked in.
One Uncle, before he was put in a home was living with his girlfriend.
Why are you sitting at the window? George is bringing me my money. Who's George? My old boss from 20 years ago. You haven't seen him in years, does he know you've moved twice and now live above a store in a very small rural town? Don't ask questions! He's coming to bring me my money today...
Huntington's is not what you want to get.
There's a family genetic mystery as to how Grandma only got the disease. August wedding and a December birth in the 1940's. Who was the real father?
In both of these cases (genetic ALS and genetic HD) I think right now the best we can do is have realistic expectations about what physicians, nurses, aides, and others on a person's care team can do, and also to recognize that there are going to be a lot of questions that don't have great answers yet.
Ultimately, I expect that the greatest breakthroughs for these diseases will come through researchers who only indirectly work with patients, but I have the utmost respect for front-line health care workers who accompany these patients through a terrible situation.