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Re:Dinner with Proust: how Alzheimer’s caregivers are pulled... by rob74 on Friday April 28, 2023 @07:30AM (#35739979)
> Aside from occasional comments about shopping and schedules, she barely spoke to him at all, keeping the warmest part of herself for her two-dimensional friends.

I'm thinking that has something to do with the fact that the photos don't want to cut her nails, give her a bath or change her clothes? Dementia sufferers live in a world of their own, and anything/anyone who tries to "set them straight" risks anger and rejection...

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Re:Dinner with Proust: how Alzheimer’s caregivers are pulled... by tnel77 on Friday April 28, 2023 @09:56AM (#35741311)
How beautiful and terrifying. Thank you for sharing your story.
Re:Dinner with Proust: how Alzheimer’s caregivers are pulled... by LocalH on Friday April 28, 2023 @11:04AM (#35742155)
Fortunately, the aforementioned DMT experience helped me process her end-of-life greatly. Even my father noticed a very quick and thorough change in my demeanor. I was also extremely fortunate to be able to experience the moment when she actually reached her peace. I was no longer worried about her, because I deeply felt that her transition into death was going to be happy and peaceful. I never really experienced any grief as a result of that.
Re:Dinner with Proust: how Alzheimer’s caregivers are pulled... by kar5pt on Friday April 28, 2023 @10:59AM (#35742092)
I was told that in the early stages of dementia, it's good to challenge their unrealistic beliefs, but in the later stages its best to go along with them.

Middle and late stage dementia patients are basically in a constant state of confusion. The human mind can't handle being confused all the time, so it will make up stories that make their world make sense. Once they're at that stage, it's kinder to just let them live in that world, rather than pulling them back into confusion.

When my mom used to take my grandfather with dementia out to lunch, he would always insist that he'd been to that restaurant before, even if he hadn't. It was his way of convincing himself something was familiar, limiting that perpetual confusion.

Re:Dinner with Proust: how Alzheimer’s caregivers are pulled... by LocalH on Friday April 28, 2023 @11:09AM (#35742241)
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Re:Dinner with Proust: how Alzheimer’s caregivers are pulled... by kayodelycaon on Friday April 28, 2023 @11:10AM (#35742263)
Yeah. It's a sad disease. Psychosis combined with emotional disregulation is not fun. Fighting against it doesn't work very well because the other person isn't seeing what you're seeing.

From my own experience, I explain psychosis as someone trying to tell me a cloudless sky is pink. I've known the sky is blue my entire life. Everyone knows the sky is blue. Who is this bizarre person who thinks otherwise?

On top of that, humans tend to double down when challenged. Fighting it just doesn't work. Their memory is gone, so any progress you've made is undone very quickly. If you don't understand what is happening, you're going to lose your mind too.

Re:Dinner with Proust: how Alzheimer’s caregivers are pulled... by hungryforcodes on Friday April 28, 2023 @09:15AM (#35740906)
This a great story about why not to get married.
Re:Dinner with Proust: how Alzheimer’s caregivers are pulled... by wetmore on Friday April 28, 2023 @10:45AM (#35741896)
Why, because there is some chance that your spouse gets dementia? If the alternative is to be alone for the rest of your life, I'd take that chance.

To that point, from the article:

> The danger of isolation is well established. It tampers with the immune system and may be as detrimental to bodily health as lack of exercise and high blood pressure. One well-known study suggests that loneliness is comparable to smoking 15 cigarettes a day. We also know that loneliness raises the odds of depression and anxiety. Less well known is its effect on cognitive health: loneliness shortens attention span and interferes with judgment and self-control, the very attributes required to deal with a patient’s fixations and delusions.

Re:Dinner with Proust: how Alzheimer’s caregivers are pulled... by hungryforcodes on Friday April 28, 2023 @01:52PM (#35744735)
Are you kidding. I LOVE being alone. Guess what I am doing on Friday night. Can't figure it out? The answer is: whatever I want!

With some wife or girlfriend badgering me to spend time at home -- she decies what I do with my Friday night which friends i can see...No. I loose essential freedoms.

And then you are tied to that person your whole life.

Hardly seems like a winning deal.

Re:Dinner with Proust: how Alzheimer’s caregivers are pulled... by iodbh on Friday April 28, 2023 @02:52PM (#35745514)
It’s a strange thing to assume that an entire, loosely defined type of relationship is bound to end up in tragedy or abuse. Keep an open heart !
Re:Dinner with Proust: how Alzheimer’s caregivers are pulled... by hungryforcodes on Saturday April 29, 2023 @01:09AM (#35750224)
I would say it's the opposite of loosely defined. Marriage is one of the most rigid and structured relationship contracts that exists.

Dating people on Tinder are loosely defined relationships ships.