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Re:Ask HN: As a caregiver how to achieve things by theGnuMe on Saturday January 21, 2023 @10:01AM (#34466838)
I would worry less about the money, things usually work out. You also need to identify all of your options. Does your partner now qualify for SSI, disability and/or Medicaid? If they do get Medicaid. Otherwise the Affordable Care Act will limit your/their financial exposure as well.

Next, you need to build a support system of friends and possibly family (if they can come over for a time to help).

https://www.usa.gov/disability-caregiver

Some states have better options than others, especially for caregiving. You want to look into personal care assistants. It can be very difficult to find people but

Re:Ask HN: As a caregiver how to achieve things by dumy55 on Saturday January 21, 2023 @12:57PM (#34468434)
My partner is not eligible for SSI, disability or Medicaid because of immigration status. I will check about Affordable Care Act, but currently we are on employer provided health insurance plan.

I will go through the link you have posed and check the state resources too. Have not heard of personal care assistants before, but will find out more.

Re:Ask HN: As a caregiver how to achieve things by theGnuMe on Saturday January 21, 2023 @05:51PM (#34471562)
You might ask your state's department of human services. If your partner is a legal immigrant they should qualify. Medicaid is a 50:50 federal and state partnership.

Another link for you: https://rarediseases.org/policy-issues/medicaid-eligibility/