Re:Police used a baby’s DNA to investigate its father for a ...
by V__ on Monday August 15, 2022 @03:49PM
(#32474474)
> Say for example you have leukemia later in life. A researcher wants to study what it is about your leukemia that makes it different from the rest of your blood.
That could still be done if the data/samples were anonymized and the ID were only given to the patient. For general research, anonymized would also work perfectly fine.
Re:Police used a baby’s DNA to investigate its father for a ...
by asdff on Monday August 15, 2022 @08:08PM
(#32477464)
It is anonymized when its used for research purposes, but you still would want to have some key to match it up to the patient should they have more information to add down the road. Say the patient took some drug for their leukemia and had remission, that is valuable metadata to include along with the raw sequence data in a database.
Re:Police used a baby’s DNA to investigate its father for a ...
by hoistbypetard on Monday August 15, 2022 @04:13PM
(#32474782)
After public evidence of usage like this, who would believe that ID was only given to the patient?
Now, if you had a blood sample from before the patient had leukemia, that would be invaluable data. You can yield high fidelity genetic material without much blood sample. Because of this, most states have laws saying this newborn screening material is available for various research purposes. The parent or the individual may also request their newborn sample, should new screening methods come out in the future that may not be on that panel when you were born for example.
https://www.cdph.ca.gov/Programs/CFH/DGDS/CDPH%20Document%20...