I'm not sure I have any useful advice; I get the impression you're doing incredibly well for someone with no formal training. On the one hand you might benefit from someone with a more rigorous background helping you avoid known non-obvious risks, but on the other hand almost all such people are going to run screaming because your risk tolerance is way higher than theirs. Having a chronic condition for which the existing treatments are inadequate really sucks. I wish you luck and safety.

(For the "era of higher risk tolerance", the good old "Ignition!" by John D Clarke is a fun read from the era when the official US rocket fuels programme consisted of just lighting stuff on fire and seeing what happened)