Breach exposed more than one million DNA profiles on a major genealogy database

Re:Breach exposed more than one million DNA profiles on a ma... by sbassi on Thursday July 23, 2020 @05:42AM (#23925662)

Your data, your rules. I put my 23andme raw data in github (https://github.com/sbassi/MiGenomaSbassi) for the world to see and use without asking anybody in my family.

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Re:Breach exposed more than one million DNA profiles on a ma... by berkes on Thursday July 23, 2020 @06:17AM (#23925818)

I strongly disagree. I consider it comparable to something like financial administration. In which an "expense" or "exchange" has two sides. Me, paying you, you receiving the money.

It is not up to me to decide to just release such data. Because it encodes other people's data too. If I were to release my financial records because "it's my data", i'd be exposing a lot of people, organisations and companies who I had interaction with.

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Re:Breach exposed more than one million DNA profiles on a ma... by yreg on Thursday July 23, 2020 @06:26AM (#23925861)

But it is up to me to decide to release my financial records. All the parties I've dealt with have to expect the possibility (unless there is some signed agreement that prevents disclosing them).

With DNA I'm not so sure.

[ Parent | on HN ]

Re:Breach exposed more than one million DNA profiles on a ma... by berkes on Monday August 03, 2020 @11:14AM (#24038708)

I'm pretty sure that if <insert ecommerce platform here> were to leak all their financial transactions, that is considered a large data-breach and would be considered a privacy infringement.

I am aware that "an ecommerce platform" is something else than "your personal finance", but the principle is the same: X shouldn't release other people's financial transactions just because those were done with X.

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Re:Breach exposed more than one million DNA profiles on a ma... by yummypaint on Thursday July 23, 2020 @08:44AM (#23926716)

The federal Genetic Information Nondiscrimination Act does prohibit insurers from asking for or using your genetic information to make decisions about whether to sell you health insurance or how much to charge you. But those privacy protections don't apply to long-term-care policies, life insurance or disability insurance.

https://www.npr.org/sections/health-shots/2018/08/07/6360262...

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Re:Breach exposed more than one million DNA profiles on a ma... by mellosouls on Thursday July 23, 2020 @08:44AM (#23926722)

The point is, it's not just your data. It's shared with other people who may not want it being publicised to all and sundry.

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Re:Breach exposed more than one million DNA profiles on a ma... by isbvhodnvemrwvn on Thursday July 23, 2020 @09:14PM (#23934623)

That's ridiculous. Should I not use my surname because I identify my parents, my brothers and some of my cousins? I think bodily autonomy applies here.

[ Parent | on HN ]

Re:Breach exposed more than one million DNA profiles on a ma... by mellosouls on Friday July 24, 2020 @05:14AM (#23937401)

You are giving far more away with DNA information; it's not remotely the same.

The point is, at the very least it's a grey area, so to dismiss the counter points so airily as you have done on such a serious subject indicates - at best - a lack of reflection and respect for the rights of others.

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