CrowdMed: We've solved hundreds of the world's most difficult medical cases

Re:CrowdMed: We've solved hundreds of the world's most diffi... by ig1 on Tuesday February 24, 2015 @06:27PM (#9104267)

One thing I've thought would be useful for a while is a platform to allow people with unknown diseases to get matched up with others with the same symptoms.

While CrowdMed can help with rare diseases it's less useful in cases where a disease has never been diagnosed before.

In recent years we've seen a number of diseases/conditions essentially identified by patients discovering others sufferers (often through online campaigns) and the commonalities / genetic testing helping identify the cause. But these have largely relied on serendipity.

It would be great to have an online platform to allow people with unknown conditions to find each other.

(this is especially true with long-tail psychological issues where diagnose is often still very weak)

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Re:CrowdMed: We've solved hundreds of the world's most diffi... by jheyman on Tuesday February 24, 2015 @07:43PM (#9104593)

While CrowdMed's focus is helping patients find a "known" diagnosis that can help return them to health, it can also be used to match up patients with an "unknown" disease with fellow patients or practitioners who can help them. It's part medical forum, part social network, and part marketplace.

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Re:CrowdMed: We've solved hundreds of the world's most diffi... by amelius on Wednesday February 25, 2015 @06:21AM (#9106224)

See: http://www.patientslikeme.com/

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Re:CrowdMed: We've solved hundreds of the world's most diffi... by ig1 on Wednesday February 25, 2015 @06:25AM (#9106232)

PLM is much more focused around known conditions and benchmarking those patients with each other rather than discovery of new conditions.

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