It’s probably the most under-diagnosed condition in general. It’s also autosomal dominant. Can present as psychosomatic - gaslighting from doctors is typical.
It’s a shame more people don’t know about it because there are ways to effectively treat it - it’s an area where patient communities are far ahead of the medical community. So this could be a failure on two fronts, a failure of insurance but even if they had unlimited coverage there still would have been a failure in treatment.
I wonder why that is?
You have no idea how bad it can get.
No, surely it's made up. Nevermind: how foolish was I...
Chronic pain really takes you somewhere else mentally. Now that I am, for the time being, on the other side of it, it has also made me extremely empathetic to people who suffer through it.
It really sounds like he has hEDS. Hypermobile Ehlers Danlos (hEDS) can cause Small Fiber Neuropathy and back pain, as well as poor healing from surgery. It’s also more common in engineering type people, higher IQ, ADHD, anxiety disorder etc
It’s probably the most under-diagnosed condition in general. It’s also autosomal dominant. Can present as psychosomatic - gaslighting from doctors is typical.
It’s a shame more people don’t know about it because there are ways to effectively treat it - it’s an area where patient communities are far ahead of the medical community. So this could be a failure on two fronts, a failure of insurance but even if they had unlimited coverage there still would have been a failure in treatment.
What an interesting coincidence that he developed a medical condition that wakes him with screaming as well.