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A comment on Drugmakers Are Set to Pay 23andMe Millions to Access Consumer DNA. Parent comment

Re:Drugmakers Are Set to Pay 23andMe Millions to Access Cons... by jjallen on Tuesday October 31, 2023 @06:09AM (#38082493)
I mean sure we pay them and now they are "selling" our data to pharma companies... to research human health and learn more.

At some point does being against other people using your data work against you? If every human refused to allow their DNA to be used for research the entire species would be worse off.

The obsession with protecting our data is very strange to me.

[ Parent | on HN ]
Re:Drugmakers Are Set to Pay 23andMe Millions to Access Cons... by cornholio on Tuesday October 31, 2023 @06:25AM (#38082607)
They are selling the data for (allegedly) medical research now. Tomorrow, they will sell it for genetic discrimination against you. The point is: it's not your data anymore, and from your perspective it can only be used against you.

While I understand there are pro-social uses of this data, such as medical research and identifying criminals and their victims, those exceptions should be clearly delineated by law in a white list, with strong safeguards, with the default being DNA privacy.

[ Parent | on HN ]