Re:Life-changing cystic fibrosis treatment wins US$3M Breakt...
by dclowd9901 on Sunday September 17, 2023 @01:42AM
(#37541876)
My brother 12 years ago could have been you, as I read your comment. A double lung transplant and myriad complications later, and he passed on from this world.
Reading your experience makes me so happy that people with CF are finally seeing a light of hope in their experiences. You do all the walks, donate the money, remind people this disease exists and it’s so destructive but it always kind of felt like science wasn’t throwing a lot of energy into CF, so I’m so glad to see this development. I’m so happy for you. I wish my brother could have had that chance, but I imagine, given his incredibly generous nature, he’d be just as happy for all the CF survivors today who now have a fighting chance.
Re:Life-changing cystic fibrosis treatment wins US$3M Breakt...
by bdcravens on Sunday September 17, 2023 @11:39AM
(#37546219)
The CFF has actually done a good job of taking the lead. They approach it in a very startup-like manner. Trikafta is one of the results of that effort.
Reading your experience makes me so happy that people with CF are finally seeing a light of hope in their experiences. You do all the walks, donate the money, remind people this disease exists and it’s so destructive but it always kind of felt like science wasn’t throwing a lot of energy into CF, so I’m so glad to see this development. I’m so happy for you. I wish my brother could have had that chance, but I imagine, given his incredibly generous nature, he’d be just as happy for all the CF survivors today who now have a fighting chance.