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A comment on WASF3 disrupts mitochondria and may mediate exercise intolerance in CFS. Parent comment

Re:WASF3 disrupts mitochondria and may mediate exercise into... by PaulKeeble on Wednesday August 16, 2023 @08:29AM (#37146049)
On ME/CFS they failed to fund any research for 70 years, on many occasions saying things that led to patients being abused and not believed by their families or doctors. This led to an attitude in the NIH that it wasn't worth funding research which persists still to this day. There has been no real funding for research out of the NIH since a brief spurt in the 1980s, even now what funding its allocated has mostly ended up on Cancer.

That is all a political failure that has led to no progress on the disease and widespread abuse of patients.

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Re:WASF3 disrupts mitochondria and may mediate exercise into... by acegopher on Wednesday August 16, 2023 @10:15AM (#37147346)
That's not really a failure of politicians, because politicians don't have medical expertise. They rely on the guidance of experts in the medical profession to steer funding. So it was a human failure perhaps, and as all allocation of limited resources has winners and losers. So blame the system, and human biases, but not the government specifically.
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Re:WASF3 disrupts mitochondria and may mediate exercise into... by azinman2 on Wednesday August 16, 2023 @10:39AM (#37147779)
Politicians don’t allocate funding into specific diseases. They allocate large blocks to places like the NIH, which then have scientists determine where to allocate funds.
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Re:WASF3 disrupts mitochondria and may mediate exercise into... by nradov on Wednesday August 16, 2023 @11:50AM (#37148947)
The NIH puts significant funding into CFS. You can attend their public webinars to find out more.

https://www.ninds.nih.gov/about-ninds/who-we-are/advisory-co...

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Re:WASF3 disrupts mitochondria and may mediate exercise into... by peterfirefly on Wednesday August 16, 2023 @12:55PM (#37149941)
Would it have worked to spend lots of money on this kind of research 50 years ago? Were our tools -- scanners, DNA/RNA chips, etc -- and our knowledge anywhere near good enough to make it likely it would have paid off?

To me it sounds like trying to do rocket research in the hope of reaching the moon back in 1900.

Doing it once the time is ripe is a completely different matter. I hope it is ripe now.

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Re:WASF3 disrupts mitochondria and may mediate exercise into... by anonuser123456 on Wednesday August 16, 2023 @02:31PM (#37151574)
> on many occasions saying things that led to patients being abused and not believed by their families or doctors.

Yes, but what part of “a gentleman’s hands are always clean” do you not understand?

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