Do No Harm petition: Don't give Big Tech access to our medical records

Re:Do No Harm petition: Don't give Big Tech access to our me... by CaptainZapp on Friday June 09, 2023 @12:47PM (#36260529)

Whenever I used medical services in the past and filled a form with a question if my data "could be used for research in anonymous form" I answered: Yeah, sure!

Thanks to the likes of Facebook, Google and their ilk starting to stick their filthy paws into the most private medical data some years ago my answer now is always a resounding HELL, NO!

I always feel bad about it, because it really shouldn't be that way, but thanks to the slimy shenanigans of the tech brothership I just don't see a viable alternative to that answer.

What bugs me is my urge to explain to the poor admin to who I'm handing the form the why this is out of the question.

[ Parent | on HN ]

Re:Do No Harm petition: Don't give Big Tech access to our me... by JohnFen on Friday June 09, 2023 @01:15PM (#36260912)

> Thanks to the likes of Facebook, Google and their ilk starting to stick their filthy paws into the most private medical data some years ago my answer now is always a resounding HELL, NO!

I made the exact same change in my behavior as well. I already felt that I was making a sacrifice by exposing my data to the likes of drug companies and such. Exposing my data to the likes of a FAANG-style company is simply a nonstarter.

[ Parent | on HN ]