It's in part because of a lack of knowledge as to what it is; it's a disease without an obvious cause, nor an obvious cure. They can't cure it, but it seems that physiotherapy and mental health care seem to help... a bit? But honestly it comes across to me as them trying to make you no longer think of it as a disease, that is, to just accept it and take it as it comes. Which is shit imo.

The condition is also one for which there is no test; it's one that is diagnosed via exclusion.