One eye opening fact I learned when my family was dealing with a complex medical diagnosis was how specialists have seemingly the entire population of peers on speed dial. If you can help them connect dots to other specialists, they likely have the ability to get in touch with them in near real time. I mean, it may not be 100% reliable, but my new MO is to assume all physicians have a batphone, and to ask them to use it if they need additional opinions & insights.