Re:The Unreasonable Math of Type 1 Diabetes
by Mezzie on Thursday February 17, 2022 @08:05PM
(#30381001)
> I'm literally crying while writing this post, because it's so exhausting and it never ends.
If it helps (?), I also broke down crying reading this, because I have MS and it is so true to my experience. I've never been able to communicate well how exhausting the constant mental load is, and I imagine it's even worse for people with T1 diabetes since blood glucose can get out of whack a lot more quickly than my immune system can make more holes in my nervous system.
You nailed it on the head exactly with the constant balancing.
"Okay, so I didn't sleep for crap last night due to symptoms. Do I have some caffeine and spend the rest of the day in pain due to the increased muscle spasticity? Maybe if I have 3 cups of coffee instead of 1 and also take some of my muscle spasticity medication, I'll be able to stay awake but not be in too much pain. Except if I dip into what are supposed to be nighttime pain meds too often, I might run out of Tizanidine. When will my insurance refill? How much will it cost out of pocket when I have a bad pain month?"
And then I get stressed out about the MS, and we're supposed to avoid stress, so then I stress about my stress. Fantastic.
Re:The Unreasonable Math of Type 1 Diabetes
by mst on Friday February 18, 2022 @01:51PM
(#30389575)
Oof. Even without any physical issues if I get stressed about stuff in a way that makes it hard to concentrate I usually then manage to do the 'stress about my stress' thing on top of that and damn but that's no fun at all.
If it helps (?), I also broke down crying reading this, because I have MS and it is so true to my experience. I've never been able to communicate well how exhausting the constant mental load is, and I imagine it's even worse for people with T1 diabetes since blood glucose can get out of whack a lot more quickly than my immune system can make more holes in my nervous system.
You nailed it on the head exactly with the constant balancing.
"Okay, so I didn't sleep for crap last night due to symptoms. Do I have some caffeine and spend the rest of the day in pain due to the increased muscle spasticity? Maybe if I have 3 cups of coffee instead of 1 and also take some of my muscle spasticity medication, I'll be able to stay awake but not be in too much pain. Except if I dip into what are supposed to be nighttime pain meds too often, I might run out of Tizanidine. When will my insurance refill? How much will it cost out of pocket when I have a bad pain month?"
And then I get stressed out about the MS, and we're supposed to avoid stress, so then I stress about my stress. Fantastic.
And all until the day we die.