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Re:The cost of two weeks in an pediatric/infant ICU by iammisc on Thursday July 29, 2021 @10:31AM (#27997002)
And yet, while many american insurers cover expensive gene therapies, European autorhities simply pretend the drugs are unsafe and refuse to cover them.

This sort of thing goes both ways

Re:The cost of two weeks in an pediatric/infant ICU by Jenk on Thursday July 29, 2021 @10:36AM (#27997052)
Gene therapy is available on the NHS in the UK.

And the American system that is systematically bankrupting sick people for profit is a damn sight less perfect than the European authorities issues.

Yes, it goes both ways, but it goes much further one way over the other.

Re:The cost of two weeks in an pediatric/infant ICU by iammisc on Thursday July 29, 2021 @12:50PM (#27998535)
> Yes, it goes both ways, but it goes much further one way over the other.

That's fair.

For gene therapy, I was referring to Zolgensma, which was delayed substantially in Europe and forced many to seek treatment in America. The delay was mainly due to cost savings, and the delay was clinically meaningful (since treatment is time sensitive).

Re:The cost of two weeks in an pediatric/infant ICU by Jenk on Thursday July 29, 2021 @02:12PM (#27999583)
Re:The cost of two weeks in an pediatric/infant ICU by iammisc on Thursday July 29, 2021 @05:14PM (#28001593)
I acknowledged this:

> delayed substantially in Europe

In the meantime, between when FDA approved v NHS, children became debilitated.

Re:The cost of two weeks in an pediatric/infant ICU by Jenk on Friday July 30, 2021 @11:54AM (#28009323)
Fair dos. I haven't looked but is it possible there are some vice-versa examples?

Anyway. At least with the NHS you won't be expected to pay the millions per dose fees, via insurance or other means.