I was blown off by doctors for years when I was seeking a diagnostics because I was a successful person, but make no mistake: I was suffering. I am a textbook case. The stigma around this disorder is pervasive and it’s extremely easy to reinforce that stigma.
Stimulant medication doesn’t give me superpowers, it improves symptoms. I still have all the problems that come with ADHD, just... less.
Google is failing me, but a study a few years ago indicated that stimulants do not have a meaningful impact on the output of those who do not have ADHD. People often think they do because of the euphoria effect, but the euphoria is actually a transient side effect.
Stimulants should be paired with therapy, to better understand the nature of the disorder and developer additional coping tool.
(I’ve been on stimulant medication to treat ADHD for about half a decade. I was diagnosed well into adulthood.)
Lead to a burnout-like state that started developing while basically being a stay-at-home dad for a year or so. It got worse, and now there are several years of my daughter growing up that I don't remember almost anything from.
[0]: https://adhd-institute.com/burden-of-adhd/comorbidities/
TL;DR: "we live in a society"
The best parallel I can think of is that getting effective medication for ADHD is like getting glasses. Suddenly a part of your life that doesn't work (and maybe has never worked) is suddenly functional. People tend to be pretty excited about their glasses when they first get them, too.
If someone describes Adderall like the magic drug that Bradley Cooper takes in the movie Limitless, they probably haven't been taking it very long. Tolerance quickly builds to those effects.
People who have been taking Adderall since childhood or for a decade of adult life tend to have more mixed reviews. That's not to say it doesn't have a place in treatment of life-impacting ADHD disorders, but it should be noted that it's not a miracle drug that automatically turns you into a motivated, organized person. Even patients who take stimulants must make an effort to build good time management habits and self-discipline. Those who rely too heavily on the motivating effects of stimulant drugs can end up worse off when they inevitably build tolerance to the euphoric effects and still haven't learned how to manage their ADHD.
I've also noticed a huge uptick in ADHD misinformation in the form of overly broad diagnostic criteria. If you see infographics that describe ADHD symptoms as common behaviors like "have trouble remembering names of new people" or "I sometimes forget to do all of my tasks" then it's likely junk science. Don't confuse normal human behaviors for ADHD. ADHD is something far more debilitating.
For one person I know that is actually how it was. From unemployed and living at home to phd studies in mathematics and publishing in prestigious journals.
Every adult I met that is "on" stimulants has echoed the sentiment that they don't understand why on earth anyone would take them recreationally. Ergo, they don't feel euphoria, because then it would certainly be obvious why.
If you get euphoria from those doses, well then what you suffer from is probably not typical ADHD.
The idea that ADHD medications do not cause euphoria in ADHD patients is a myth. It’s one of the reasons some practitioners are moving to titration schedules that start with low doses and move up over time.
I've never experienced euphoria from stimulants, and I've always felt like I've processed caffeine differently than neurotypical individuals. I've spoken with several people with ADHD who have the same experience. Perhaps it's more accurate to say that not everyone feels euphoria from stimulants and there's some correlation between ADHD and stimulant non-euphoria.
I do agree with the titration schedule being a good idea. With any potentially mood-altering substance it seems wise to start slow. It gives time to gradually understand its effects (some good, some less so), and after some experimentation, I decided that a low dose was best for me to provide just enough of the "glasses for the brain" effect without otherwise affecting my mental state.
Anecdotal, perhaps. But enough anecdotes to point to some signal in the noise.
It’s a common problem with new ADHD patients. They mistake the euphoria and motivation for the therapeutic effect, then complain that it isn’t “working” any more and ask for progressively higher doses. Some eventually start doctor shopping to find someone who will prescribe higher doses when their provider refuses.
Warning anecdotal but a close neuro doc friend sees 70+ Year olds who took their medication as prescribed still fine when adherence was high. But much more interested in your link if at all possible, I believe there’s maybe 8 million prescriptions outstanding in the USA so any large cohort would be helpful.
I sought behavioral therapy because the side effects became too much of a burden. I hold a job and remain productive, but I still struggle dealing with my adhd without medication. I'm not sure there's a point I'm trying to make here, just wanting to share some of my experience.
Posts like those are what gave me the confidence to seek an ADHD diagnosis.
The idea that you think people with ADHD are just normal people who have trouble focusing are missing it by a mile. Caffine makes me sleepy.
Like it doesn't make you happy. That's silly. If the only issue with me doing menial tasks was that it made me unhappy I would be so much better off because at least I would be able to do the task.
Moreover, some of the comments are literally about starting drugs a week or a month ago. God forbid, the long term effects could be entirely different. I started struggling with my dependencies after about a year or so.
Yes and note that you know that. We're aware that long term things might change, so we point out that we're only a week in. Use your judgement from there, add as many pinches of salt as you like.
Additionally people new to a thing are WAY more likely to talk about it than others, because it is new and novel and interesting to discuss. See also: vegan, keto, crossfit, peloton, etc. Old timers tend to jump in when there's misinformation, but aside from that they stick to the sides.
But agree, can do all the above plus therapy and support / plan, and it’s not even comparable.
I feel it’s like eyeglasses and I’m being told “you can see it if you squint! It’s clear to me”. Well yeah, but would rather have eyeglasses
This post is just conspiracy thinking. You're far more likely to find people dissuading you from accepting an ADHD diagnosis in your life than people encouraging you. Even doctors don't really like to give a diagnosis of it unless you really clearly fit into a particular hyperactive bucket.
This is incorrect. If anything I'm more calm, definitely nowhere near what you describe. I'm happy, but just that. I've been happy before, I've been high as balls before. This is the former.
I'm (with my doc) finding the lowest dose that works. I'm sure if I took 4 or 5 of these in the one I'd be bouncing off the walls, but that's not the plan.
Just like someone lacking insulin needs an insulin shot, someone lacking in stimulation needs stimulant medication.
> Anecdotally, I've seen a huge uptick in posts of the format
Ya being in mostly-isolated lockdown for over a year fucks with you mentally, wherever your starting point is.
Anecdotally back it just takes one person in a community to figure it out and get a diagnosis for everyone else who exhibit similar behaviours to start thinking "wait that is a symptom too??" and get checked out. New relationship energy then fuels the desire to spread the word to anyone else who might be suffering.
But drink coffee and mix? Bad news bears.
Though drugs are only part of the solution for most people with ADHD, it's almost always what enables other kinds of intervention to be effective.
For me, medication doesn't work too well. I tolerate it just fine, but it just isn't as effective as for most people.
It has still changed my life completely. I can accrue life experience in a way that was impossible before, probably as I had basically no perception of time before medication.
Maybe my daughter put it best when she (on her own volition) got diagnosed at 17'ish: "It great to not have to feel like you are going to die tomorrow." With which she meant that when you perceive time passing, you can also perceive the future ahead.
It's not the only thing that changed, and not all change has been easy. But the diagnosis has still been one of the most important things in my life, even getting it as late as at 36 years.
Anecdote: I'm one of those who tried behavioral approaches for years before agreeing to try medication. I bounced back and forth between different types and doses and ended up on small, regular doses of adderall because I could have some control over when it tapers off. I'm disheartened by the smugness of commentary here from people who see nothing but stimulant abuse.
To give a solid example of why it can sometimes be seen as giving you superpowers, consider my experience: I have three degrees. I was in graduate school for...far too long. Anthropology isn't a quick in and out. I could wrap my head around anything, but sitting and writing multiple drafts of 50-100 page papers regularly was unimaginably difficult. I loved writing, and I wasn't sure why it was so challenging for me. Several years ago, I had the "opportunity" to write an NSF grant with (read: for) a pretty famous researcher. The downside is that when I was asked to write it, I was told the deadline was in four days. I spent some time setting up a perfect writing environment with no distractions, comfortable lighting, and everything I could think of, but when I was working, I could almost physically feel my brain constantly switching to some other track. It was deeply upsetting. The following year, I finally gave in to my doctor's medication recommendation. When I first sat down to read an article in a journal while medicated, the only thing I could hear in my head while reading was my own voice reading the words on the page. It actually brought me to tears because I realized that was probably what everyone else was able to experience normally. The glasses analogy everyone is using? Yeah, it's a bit like that, but imagine being in your 30s not even knowing that you can't see properly until someone put glasses on you. It changes your entire perception of the world and your place in it. It makes small things seem like superpowers. Like you finally have the ability to do all the things you're expected to do as a productive member of society. It's liberating. At the same time, all I can think about is how much more I might have been able to achieve if people had considered putting me in some sort of treatment as a kid rather than telling me that I wasn't working hard enough and making fun of other kids with ADHD.
> Anecdotally, I've seen a huge uptick in posts of the format "how an ADHD diagnosis changed my life"
You are seeing an uptick because admitting to being neuroatypical is now far more acceptable. Similar to how "there are so many more people claiming to be gay/trans/bi" on Reddit isn't suspicious either.
The meds changed my life because I have ADHD. My dad's heart medication changed his life (well, gave him a life) because he has congestive heart disease.
My GP became much more relaxed about my medication when I reported that my medications DIDN'T result in euphoria or bursts of energy as that is often the case with ADHD. I am simply much more focused.
The effects were underwhelming to say the least. I literally could procrastinate with more focus, but my thoughts were just as scattered and I noticed myself veering off topic faster than I'd normally do.
I guess I, like many others, would benefit from some coping mechanisms and therapy perhaps instead of or in addition to medication. I wish it were a miracle pill, but it only seems to be it for some.
For what it's worth, I started by trying ritalin and didn't like it. Like you, small doses of methylphenidate did the trick, but affected my mood too much. Once I learned some other coping strategies, I tried adderall again and find it to be extremely effective now. After you level up those other skills, talk to your neuro again if you feel the medication isn't actually helping.
If they were my reports I would have fired them.
People use all kinds of substances: caffeine, alcohol, nicotine, marijuana, modafinil, a myriad of sleeping pills, antidepressants, and painkillers. At different points in time some of them have been banned or regulated, at others available to everyone. As things stand some of them require a prescription from a doctor.
In the vast majority of cases there's little danger to at least trying out stimulants like Adderall or methylphenidate, or substances like modafinil. If people want to try them I think they should be free to do so. If they have to jump through some hoops I see no reason to frown upon it.
Their body, their choice.
It stops being "Their body, their choice." when tangible harm is being caused to people who actually need the medication to treat a neurodevelopmental disorder.
I'm talking as someone who was denied medical treatment for 7 years because the first specialist I saw assumed, based on my age, that I was trying to scam them for a prescription.
Those years were basically lost, and that wouldn't have happened if there wasn't so many people seeking phony diagnoses.
If not for the exact discussions you’re speaking about at work, I would likely have ended up unemployed.
If multiple doctors are of the opinion they won’t prescribe it I don’t think that justifies drug seeking behavior.
Your PCP is the tier-1 tech support of the medical world. They have basically zero specialized knowledge to evaluate different medications outside the brochure the sales rep gave them. There's a reason PCP's punt the responsibility for a diagnosis to a psychologist and then play the game of "spin the wheel of stimulants" to find something that both alleviates their symptoms and has tolerable side-effects. Having to go through the process all again for no reason other than weird politics or a doctor on a power-trip is the worst.
Ugh.
You get medical records sent and see multiple doctors until one is aware of your ailment. Strategizing on how to lie is unacceptable to me. Happy to agree to disagree on this one.
If one of my reports used work resources to collude for substance abuse I would do everything I can to fire them.
I literally wish every time I go to the doctor that stimulants didn't get non-ADHD people high so I wouldn't have to deal with this crap.
They actually used work resources to discuss medical treatments so firing them over this would likely be very illegal.
Where are you getting this? Who lied?
I assume that you've sought medical care and been criticized for it, and now spread that unfortunate rhetoric to others?
I wasn’t seeking “drug seeking”, I was seeking the only medical intervention that I’ve found that ameliorates a diagnosed condition.
You really equate that with someone looking to get high?
I apologize but I can’t get over the notion it’s drug seeking and/or doctor shopping.
I must assume that there was a reason for the doctor not wanting to prescribe you that medication. If state guidelines were the true root why was another doctor amenable?
Using performance enhancing drugs is a losing game. It makes it harder for those who wish to use their natural cognitive abilities.
In time it forces everyone to dope up.
With all due respect, say less things like this.
You're wrong -the drugs treat a medical condition. Its not "doping" or "performance enhancing".
> It makes it harder for those who wish to use their natural cognitive abilities
Our society is full of people enhancing their natural abilities... with things like cars and escalators and calculators. Treating a medical condition is fixing a medical "flaw" but it is NOT some sort of get-ahead scheme.
This sort of diminutive language leaves people feeling bad about themselves instead of seeking adequate medical treatment.
I think you’re misunderstanding - I had an existing, active prescription for Vyvanse when I moved into the state. It took me months to find a doctor who would refill it for me. I had already been through years of counseling at that point.
> I must assume that there was a reason for the doctor not wanting to prescribe you that medication. If state guidelines were the true root why was another doctor amenable?
The state “looked more closely” at doctors who prescribe stimulants. Basically none of the doctors I spoke to in the beginning was willing to add another prescription to their practice because of this.
> Using performance enhancing drugs is a losing game. It makes it harder for those who wish to use their natural cognitive abilities.
How does this logic not apply to cardiac drugs? It “makes it harder for those who wish to use their natural cardiac abilities”?
Can't speak for others but my encounter with stimulant medications (under the care of a therapist, of course) provided none of those things. It only gave me severe insomnia, which left me worse off than before.
ADHD medication is heavily controlled. As an adult, it is very hard to get but yes, there are likely people who got it without really needing it.
The wording of this comment ("some" vs "many") makes it seem like the majority of people got it without needing it. This is almost certainly not true due to how strictly it is controlled.
This comment is extremely diminutive and places a lot of assumption in the prescription process of medication.
I experienced euphoria for a month or so when I first started treatment, but now it feels similar to a morning cup of coffee.
I took it again after college and can say that yes if you take a high enough dose it will make you slightly euphoric but I think it's different than the high of recreational drugs. If your mood is too heightened when you take it then probably you should cut back on your dosage.
What did give me euphoria and hypo-manic behaviors was Nuvigil at 250 mg after having been off it for 2 weeks. That was an inexperienced mistake on my part, but it was really fun.
I also have no idea why anyone would want to abuse something like Adderall. The levoamphetamine targets the bodies nervous system rather than the brain. On very low therapeutic doses it cause all kinds of peripheral physicals problems for me.
It is also good to keep in mind ADD/ADHD meds have one of the highest success rates in the pharmacological field of psychiatrics care. It's one of psychiatrics success stories and there is a mountain of evidence that supports it. It is sad that it is still stigmatized as just wanting to get high. I avoided treatment for years due to that. Not accepting the proven track record of stimulant based treatment for ADD/ADHD is doing a lot of harm to a lot of people. Is it over diagnosed sure, but that does not negate that it does work for people who suffer focus disorders.
They're also unintentionally hilarious now that they can't read the side effects at super speed, so 50% of the commercial is watching someone play with their dog while you learn that this allergy medicine is going to give you diarrhea and suicidal thoughts and maybe a heart attack.
They must work somehow because they're clearly dumping so much money in them.
Took the chintzy little quiz and I figured I might as well ask my doctor. A couple sleep studies and an MSLT test and what do you know?
I take a medication that's routinely advertised. When they advertised an updated formula for it, I did ask my doctor if we should consider it. Turns out, it's not covered by the insurance, so, not today. But if it were, we'd certainly be considering it. Doctors are pretty notorious for the "if it's not broke, don't fix it", and leaving things as they lay, rather than bombarding patients with "the latest options". So, it can help patients interested in the condition to talk about these sorts of things.
Also, when my doctor proposed the medication, it helped I already had some indirect familiarity with it.
I sympathize with the caricature of medical advertising, and even advertising in general. We all "hate" advertising, but we all rely on it. Everyone pauses at an ad that catches their eye in some way.
Anecdotally, I've seen a huge uptick in posts of the format "how an ADHD diagnosis changed my life" on Reddit, TikTok, HN, etc. Talk to your doctor about your issues and concerns but don't forget the incentives of pharma companies to push these drugs on as many people as possible.