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Re:What Happened to Lee by s5300 on Wednesday April 15, 2020 @05:49PM (#22883493)
If you have zero external support system and literally no money/income... it's an absolute shitshow, and that's about all I can tell you.

Dr. Ian Carroll is arguably the best resource in the world. Starting here is probably a good choice.

https://profiles.stanford.edu/ian-carroll

https://www.mdedge.com/neurology/migraineresourcecenter/arti...

https://youtu.be/QyvWxobqKrc

https://youtu.be/g5lsFIDzazc

No idea why I currently can't find a non walled version of the first link. It's important - and general googling would be "when to suspect a CSF Leak Ian Carroll"

Secondary to Dr. Carroll

Dr. Wouter Schievink at Cedars-Sinai also has good information... He's actually the pioneer of research IIRC.

Saved a dude from a diagnosis of dementia and spending the rest of his deluded days in a nursing home.

https://www.nytimes.com/2017/11/02/magazine/why-was-their-br...

IIRC - in the end, based on decades of patient history, he just opened this guy up as a last resort and nearly missed - but did find the leak. Near full recovery.

It seems to be that there are some very high risk groups, like those with connective tissue disorders - specifically, Ehlers Danlos. Also, from Carroll's findings, a lot of people diagnosed with POTS are often misdiagnosed and truly have some small CSF Leak. Ehlers Danlos and POTS often go hand in hand as well...

Re:What Happened to Lee by garganzol on Wednesday April 15, 2020 @06:08PM (#22883682)
Great references. Anonymous browser page works well when trying to get a non-walled access to "when to suspect a CSF Leak Ian Carroll":

https://www.mdedge.com/neurology/migraineresourcecenter/arti...