News for hackers. Stuff that matters.

A comment on 23andMe to share customer gene data with GlaxoSmithKline for $300M. Parent comment

Re:23andMe to share customer gene data with GlaxoSmithKline ... by LunaSea on Wednesday December 18, 2019 @06:10PM (#21830437)
They clearly haven't since they didn't even bother asking their users.
[ Parent | on HN ]
Re:23andMe to share customer gene data with GlaxoSmithKline ... by shadowgovt on Wednesday December 18, 2019 @06:21PM (#21830522)
It would be hard for them to be more clear about it.

https://www.23andme.com/about/consent/

"Which of my personal information is used for research?"

"Your genetic data and any other personal information you enter into the website, except for your Registration Information (name, contact information, and credit card information), may be analyzed in the research."

It really seems people are complaining because 23andme didn't demand they sign a consent for something they had already explicitly signed a consent to. I, for one, assumed large third-party pharmaceutical companies would have access to the data when I volunteered it. Is there significant risk people misunderstood that? How?

[ Parent | on HN ]