That's about where I was when I got there. I ended up with six dosages of hydromorphone and had a similar temperature, plus a blood pressure that had soared past 200-something. It was not a fun time.

I think I lucked out in that everything calmed down as soon as the infection was knocked on a bit. That and my doctor was understanding, but I had located an overseas source of Ursodiol if he wouldn't come through.

I've been getting periodic ultrasounds and also some enzyme level checks.

I agree: even the establishment is looking for either a quick fix or a lifetime prescription, but almost nothing between the two extremes. Either, I think, require as little physical time as you can get away with, it's the middle course that is tedious for them.