Your post shows the tension between science/medicine and the people who suffer from chronic problems. I know someone who had/thought she had Lyme’s. She ran from doctor to doctor, got dozens of different drugs and was often treated with disbelief. This while a person who had been pretty active before had repeated periods when she barely could leave her home or do anything else. It’s no wonder that these people try everything possible if regular doctors can’t help. What else are they supposed to do? When I taught yoga I met people with fibromyalgia or chronic fatigue. They all had stories of doctors questioning the validity of their symptoms. It seems if a problem isn’t documented in textbooks they have a tendency to deny its existence.