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Re:A Town for People with Chronic Fatigue Syndrome by interpenetrate on Tuesday September 03, 2019 @06:03PM (#20871688)
>Peterson had considered the possibility of psychosomatic illness but felt it improbable, because many of the patients were otherwise well-adjusted, with no history of mental instability or trauma. “I’d seen almost all these people for three years when they were well,” he told me. Any psychological theory just “wasn’t right.”

in other words, he has no psychological theory. in reality conversion symptoms do not depend on "mental instability" or "trauma" in the popular sense. but of course why would you expect an m.d. to be trained in psychoanalysis?

anyone claiming that this is a settled problem and that CFS is an "organic illness" (because the CDC says so) should study the rise and fall of stomach ulcers.

Re:A Town for People with Chronic Fatigue Syndrome by revel on Tuesday September 03, 2019 @08:43PM (#20872893)
I personally believe that it's extremely unlikely that CFS has a silver bullet cure like stomach ulcers because CFS is an umbrella diagnosis for several distinct conditions manifesting with similar symptoms. The DSM condition is diagnosed through tests by exclusion rather than a single diagnostic test that shows up positive. More apt comparisons are, therefore, migraines or fibromyalgia than ulcers. Patients with CFS have a diverse range of symptoms and comorbidities. I have two relatives with CFS with radically different symptoms and health backgrounds. One has an autoimmune syndrome and has been through several sleep studies. He literally never experiences REM. For him, tiredness is a constant but sleep is never restful. This isn't a psychiatric condition; it's physical. It's also completely debilitating. For years he tried to power through it (he was a management consultant for years and destroyed his health trying to keep going) but this is not a condition that you can will away.

The other relative had a bad reaction to medication following a virus and never quite recovered. I will readily admit that her condition's roots could be autoimmune too, but she suffers from physical fatigue rather than tiredness. She has to be extremely careful not to overwork or overexercise, but her life is otherwise unimpaired. My relatives rather clearly don't suffer from the same condition but they're diagnosed the same way.

Having said all this I doubt I changed your mind, so let me make a slightly different point: what are the minimum and maximum amounts that you could sleep tonight? If you wanted to, could you sleep for 12 hours straight? How about sleeping for 12 hours for back-to-back days? I know that I can't! I'm literally physically incapable of it. I cannot sleep for more than 10 hours, even if I've accrued a massive sleep deficit (and usually it's more like about 5-7 hours). CFS is not laziness

Re:A Town for People with Chronic Fatigue Syndrome by interpenetrate on Tuesday September 03, 2019 @10:02PM (#20873319)
i'm not saying that CFS is "fake", or that ulcers, fibromyalgia, or migraines are "fake." to say that you can "will" these away is an infantilization of psychoanalysis. i would never classify CFS as "laziness." (although i will note that the DSM has historically had no problem about enforcing moral judgements like this in its taxonomy.) people take "psychosomatic" to be synonymous with "it's all in your head," when the point is that it is precisely not "all in your head."

i very much agree with you that part of this discussion is about the questionable validity and reproducibility of the official diagnostic categories. what i disagree with you about is that anything could be exclusively either physical or psychiatric. that's obviously false.

Re:A Town for People with Chronic Fatigue Syndrome by BlueTemplar on Wednesday September 04, 2019 @04:04AM (#20874982)
Yeah, for people that might have "forgotten" that - the head is part of the body !
Re:A Town for People with Chronic Fatigue Syndrome by revel on Wednesday September 04, 2019 @04:07AM (#20874994)
Two quick points of clarification: For a while fibro and empty nose syndrome were considered psychosomatic until physical causes were discovered. I totally agree with you that psychosomatic conditions are not “made up” or “all in your head,” I was trying to convey that the diagnostic criteria revolves around observable traits and behaviors rather than something concrete like a blood test.

My larger point, though, is that CFS is likely not a single disorder and instead is an umbrella diagnosis for several distinct conditions that aren’t well understood (yet).

I don’t actually think we’re in disagreement I think I just worded my post poorly

Re:A Town for People with Chronic Fatigue Syndrome by gowld on Tuesday September 03, 2019 @06:26PM (#20871888)
What happened to stomach ulcers ?
Re:A Town for People with Chronic Fatigue Syndrome by xsmasher on Tuesday September 03, 2019 @09:08PM (#20873050)
Stomach ulcers were thought to be caused by "stress," and increased acidity in the stomach caused by stress, and diet.

It wasn't until 1982 that the bacterial cause was found, and it took years for the medical community to abandon the "caused by stress" explanation and apply real treatment.

partly explained here: https://en.wikipedia.org/wiki/Helicobacter_pylori

Re:A Town for People with Chronic Fatigue Syndrome by tomhoward on Wednesday September 04, 2019 @08:21AM (#20876427)
I keep hearing this supposedly revelatory anecdote, as if caused by stress and bacterial infections are mutually exclusive factors.

It's well known that chronic stress weakens the immune system, and makes it easier for a bacterial infection to take hold.

So a more complete hypothesis is that stress can be the cause, whereas weakened immunity and consequent bacterial infection is the mechanism.

Of course, anything else that causes the immune system to be weakened can also be a cause.

Re:A Town for People with Chronic Fatigue Syndrome by xsmasher on Wednesday September 04, 2019 @01:02PM (#20879136)
Stress was neither necessary nor sufficient to produce the ulcers; it may have been involved in some cases, but it was not the "cause."
Re:A Town for People with Chronic Fatigue Syndrome by tomhoward on Wednesday September 04, 2019 @10:23PM (#20883340)
But H. pylori was also not sufficient to produce the ulcers; most people in the world have it, but far fewer develop ulcers.

As user interpenetrate has articulated in more depth, the error is in the need to identify a single, simple "cause".

Re:A Town for People with Chronic Fatigue Syndrome by UnFleshedOne on Wednesday September 04, 2019 @12:37PM (#20878858)
I don't think that's much more useful than saying a flu is caused by stress, is it?
Re:A Town for People with Chronic Fatigue Syndrome by tomhoward on Wednesday September 04, 2019 @10:30PM (#20883371)
It's not useful to try and explain an illness by a singular cause, when multiple factors are extant and important.

Susceptibility to flu is influenced by immune system fortitude; that's uncontroversial. That stress is one factor (among several) that can weaken the immune system in an otherwise healthy person, is surely useful to consider when making life choices.

Re:A Town for People with Chronic Fatigue Syndrome by kirsebaer on Wednesday September 04, 2019 @08:08AM (#20876318)
Most people with this bacteria do not develop ulcers. Psychological stress does seem to increase development of ulcers -- it's a contributing factor. https://www.ncbi.nlm.nih.gov/pubmed/25111233

I notice in myself that I often get a sore throat after being stressed and not sleeping enough.

Re:A Town for People with Chronic Fatigue Syndrome by interpenetrate on Tuesday September 03, 2019 @07:00PM (#20872197)
stomach ulcers were an epidemic problem in the western world in the 1970s and have since virtually vanished. in 1982, a bacteria named helicobacter pylori was discovered and was said to cause IBS, cancer, stomach ulcers, and so on. nevermind that two-thirds of the world's population have this bacteria present in their gut (most showing no symptoms). a medication targeting the bacteria was discovered and then the incidence rate for stomach ulcers plummeted dramatically. not the cure rate, the incidence rate: people stopped contracting stomach ulcers in the first place. somehow, the illness no longer served its purpose (!). this is a confounding proposition so most are quick to come up with alternative explanations (maybe pry internet_user, resident M.D.). indeed the medical industries will offer you some explanations if you can't come up with any on your own that explain away any possible psychosocial etiology.
Re:A Town for People with Chronic Fatigue Syndrome by erentz on Tuesday September 03, 2019 @07:23PM (#20872381)
So you're saying: 1. People thought they had stomach ulcers. 2. Then we learned a lot more about what stomach ulcers actually are and how to treat them. 3. With that improved knowledge it turned out a lot of those people didn't actually have stomach ulcers. 4. So naturally the incidence rate of stomach ulcers goes down, because people are no longer misdiagnosed as having stomach ulcers. 5. ... 6. Somehow jump to conclusion that all those who thought they had stomach ulcers were making it up and it was a psychosocial illness, for which no evidence is provided.

It seems like people had symptoms that were mistaken for stomach ulcers in the popular knowledge of the time. The incidence rate going down for stomach ulcers after learning more about stomach ulcers tells us nothing about what happened to those people. We don't know what they were really suffering from, what they might now-a-days be diagnosed with, etc. And we aren't told anything here about what other environmental factors may have led to a decline.

Re:A Town for People with Chronic Fatigue Syndrome by interpenetrate on Tuesday September 03, 2019 @07:35PM (#20872489)
stomach ulcers of course exist. these things are really messy and are a source of internal bleeding. no one was "making it up" (?).

the question is one about etiology. the history suggests that the popular etiology (bacteria and probably also NSAIDs linearly cause stomach ulcers) is entirely insufficient. the questions you're asking ("we don't know what they were really suffering from") are important, but to most people these questions don't matter anymore. there is practically no medical research being done on these questions today. why bother? the "psychosomatic school" is the only school who takes the issue seriously anymore. their work is worth considering, that's my point.

Re:A Town for People with Chronic Fatigue Syndrome by h0l0cube on Tuesday September 03, 2019 @08:39PM (#20872871)
My cousin has being diagnosed formally with MCS and co-morbid CFS, both illnesses with some controversy. I've spent time with them, and learnt that the "psychosomatic school" has always been the prevailing school of thought on the subject, and this presents many hurdles to their every day life, and potential treatment.

The possibility that there's at least a component of the illnesses that aren't psychosomatic is worth considering, but such a school of thought has always been on the fringes, and serious funding to examine actual causation has always been a challenge for illness communities that have offhandedly been thrown straight into the looney bin.

Re:A Town for People with Chronic Fatigue Syndrome by interpenetrate on Tuesday September 03, 2019 @09:04PM (#20873022)
yes the most successful analytic practice would be the one that could successfully traverse the boundaries we've constructed between mind and body. the idea is that h. pylori, for example, has a role to play (one way or another) in the reproduction of stomach ulcers, but the bacteria is not linearly causal. rather, it is situated in a complex dialectic web that modern medicine (and the "psychosomatic school" for that matter) are mostly unequipped to analyze. this is reflected in the gross failure of the diagnostic taxonomy produced by the medical/psychiatric industry whose validity should be (but is rarely) continuously questioned.

for what it's worth the "psychosomatic school" i'm most familiar with criticizes harshly the "psychosomatic school" that i believe you're familiar with. indeed there are many ineffective and harmful centers for the treatment of "chronic illnesses." it's really shameful

Re:A Town for People with Chronic Fatigue Syndrome by sjg007 on Tuesday September 03, 2019 @07:27PM (#20872425)
The researchers drank a tube of it and got ulcers. Pretty conclusive.
Re:A Town for People with Chronic Fatigue Syndrome by tomhoward on Wednesday September 04, 2019 @08:59AM (#20876732)
As user interpenetrate wrote, two-thirds of the world's population have the bacteria, and most don't get ulcers or other symptoms.

A more complete telling of the story may be that researchers ingested a volume of the bacteria that was more than their immune system could easily contain, and got ulcers.

Given that stress is well known to be a cause of immune system impairment, this could still be an upstream cause of the bacterial outbreak that then leads to ulcer formation.

Re:A Town for People with Chronic Fatigue Syndrome by sjg007 on Wednesday September 04, 2019 @09:04AM (#20876783)
Yes so we agree that H. pylori is the cause.
Re:A Town for People with Chronic Fatigue Syndrome by tomhoward on Wednesday September 04, 2019 @09:11AM (#20876830)
A part of the cause.

In ordinary conditions (i.e., not drinking a vial of bacteria), immune impairment is a necessary condition (or cause) of the H. pylori outbreak.

And stress is one possible upstream cause of that.

Re:A Town for People with Chronic Fatigue Syndrome by H_Pylori on Wednesday September 04, 2019 @09:30AM (#20876992)
That could be said for every infectious illness. So does every infectious illness have a psychosomatic component too.
Re:A Town for People with Chronic Fatigue Syndrome by tomhoward on Wednesday September 04, 2019 @09:40AM (#20877080)
Some infections will be virulent even for people even with optimally functioning immune systems, if it's the kind of infection that acts faster than anyone's immune system's ability to respond, or if it's a new strain that no human's immune system can defend against.

But that aside, the virulence of an infection will always be greater against those who have weaker immune systems. This is why we always see the elderly and those with pre-existing serious illnesses more likely to be struck down or killed by infections.

Stress is just another factor that can lead to impaired immunity and result in an infection becoming virulent.

Re:A Town for People with Chronic Fatigue Syndrome by interpenetrate on Wednesday September 04, 2019 @05:09PM (#20881436)
lmfao nice account

it's an important point to make, that clearly there is an "organic" component and a "psychic" component to every ailment (or human experience for that matter). as anyone who has recovered from a primarily psychosomatic chronic illness can attest, you're eventually faced again with the contradiction between organic and psychic when you get your first head cold or whatever. this is a question of internal vs. external, dialectical vs. mechanical.

if someone murders me, we could assume this is a mechanical act. the immediate death obviously wasn't some sort of psychosomatic construction. no matter how mentally prepared i was for the moment the bullet pierced my forehead, a fundamental biological law asserted itself and there was nothing i could do about it.

but here we have no problem jumping straight to asking the question "what was the murderer's motive?" perhaps i was in the middle of robbing a bank. why was i robbing the bank? naturally these answers help construct the etiology of the death (and extend into other etiologies!). the question is: where do we draw the lines between moments? the radical answer is that we shouldn't. we should be willing at any moment to consider the many possible ways in which the various forces interact. bring the mechanical into the dialectic, so to speak.

in this light, is "stress" a useful etiological category? i don't think so, or at least i think its utility is much weaker than the pharmaceutical industry would hope.

freud had a client named elizabeth von r whose leg pain of two years was suddenly cured after working through its origin: her father, on his death bed, would rest his head on her legs as von r cared for him. was von r's leg pain caused by "stress?" hardly more than it was caused by "living." both of these proposed causes are obviously cop-outs.

edit: the point then is not to find the singular cause or plural causes. the point is to abstract the forces to analyze their underlying laws of motion and then to creatively synthesize them to predict and change the future. that's what science is. this is not the level of operation of our medical or psychiatric industries or their researchers.

Re:A Town for People with Chronic Fatigue Syndrome by staticautomatic on Tuesday September 03, 2019 @06:43PM (#20872022)
There is a strong association between certain psychological disorders and gastrointestinal problems.
Re:A Town for People with Chronic Fatigue Syndrome by internet_user on Tuesday September 03, 2019 @06:59PM (#20872180)
H.Pylori was discovered, and we realized it could be treated with a combo of two-three antibiotics + acid suppressants + ancillary drugs.

Totally psychosomatic.

Re:A Town for People with Chronic Fatigue Syndrome by sjg007 on Tuesday September 03, 2019 @07:08PM (#20872270)
H. Pylori