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Re:A Town for People with Chronic Fatigue Syndrome by strikelaserclaw on Tuesday September 03, 2019 @04:44PM (#20870964)
damn, C.F.S is pretty messed up. The weirdest thing is how it seems to happen so suddenly.
Re:A Town for People with Chronic Fatigue Syndrome by fortran77 on Tuesday September 03, 2019 @05:17PM (#20871272)
Also, with any "syndrome" you get a range of people with the symptoms, some with different underlying causes (and some, no doubt, with psychological ones.)
[dead]
Re:A Town for People with Chronic Fatigue Syndrome by jMyles on Tuesday September 03, 2019 @05:50PM (#20871550)
> It's not a syndrome.

So we're clear - you're saying that the phenomenon referenced in this article, "chronic fatigue syndrome", is not a syndrome? I'm not sure that argument is even cognizable. A syndrome is just a set of correlated symptoms or effects. How can we even discuss this if we can't agree with this designation?

> There are very specific symptoms you need to have for it to be cfs.

Wait... so now you do recognize this syndrome?

> Did you even read the article?

Asking this question, particularly in the demeaning tone which you have adopted, is against the guidelines, which expressly discourage the precise wording you have chosen: https://news.ycombinator.com/newsguidelines.html

Re:A Town for People with Chronic Fatigue Syndrome by Eric_WVGG on Tuesday September 03, 2019 @09:09PM (#20873060)
"chronic fatigue syndrome" is what it was called before it was better understood.

It is unfortunate and a bit weird that the author referred to the condition with that phrase; doctors and patients are trying to deprecate the term, as it leads to the whole thing not being taken seriously.

The preferred term is "myalgic encephalitis." My girlfriend has it. Roughly put, it's an ongoing brain chronic brain inflammation that leaves her incapacitated for roughly 17 hours a day. She's not "sleepy" or "lazy," she has a fever in her brain and it can't be cured and it's a horrid situation.

Re:A Town for People with Chronic Fatigue Syndrome by fortran77 on Tuesday September 03, 2019 @05:35PM (#20871430)
Of course I read the article.

> Chronic fatigue syndrome (CFS) is a complicated disorder characterized by extreme fatigue that can't be explained by any underlying medical condition.

https://www.cdc.gov/me-cfs/about/index.html

and also from the cdc

> Symptoms of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) may appear similar to many other illnesses and there is no test to confirm ME/CFS. This makes ME/CFS difficult to diagnose. The illness can be unpredictable. Symptoms may come and go, or there may be changes in how bad they are over time.

Re:A Town for People with Chronic Fatigue Syndrome by vimy on Tuesday September 03, 2019 @05:49PM (#20871545)
Ban me? You would get mad and defensive too if you have been called a nutjob for the last 10 years while you know something is horribly wrong.

CFS =/= feeling tired.

"The most prominent symptom of chronic fatigue syndrome is an unexplained feeling of fatigue, which is not relieved by rest. This fatigue is severe enough to decrease a person's activity level at home, work or school by 50% or more. In addition, the diagnosis requires that patients should have at least four of the following symptoms that also are present for at least six months:

- Impaired concentration or short-term memory, severe enough to affect routine activities at home, work, school or social functions

- Sore throat

- Enlarged lymph nodes (swollen glands) in the neck or underarm area

- Muscle pain

- Pain in several joints, with no redness or swelling

- Headaches that are different in some way: a new type of headache pain, a new pattern of headaches or headaches that are more severe than before

- Sleep that doesn't refresh, or not feeling rested on waking

- An extreme reaction to exertion: feeling sick after exercise or strenuous activity, often not starting until the next day

People with chronic fatigue syndrome often have other symptoms that are not part of the official definition of the illness, such as nausea and difficulty tolerating alcoholic beverages or medicines that act on the brain. Many people also have allergies, such as hay fever (allergic rhinitis) or recurring sinus problems.

About half of people with chronic fatigue syndrome develop depression in the months and years after their illness starts. However, available evidence indicates that chronic fatigue syndrome is not a psychiatric illness. Rather, it appears to be a physical illness that leads to depression in some people."

https://www.health.harvard.edu/a_to_z/chronic-fatigue-syndro...

Edit: I want to apologize to fortran77. My temper got the better of me.

Re:A Town for People with Chronic Fatigue Syndrome by jMyles on Tuesday September 03, 2019 @05:56PM (#20871625)
> You would get mad and defensive too if you have been called a nutjob for the last 10 years while you know something is horribly wrong.

That sucks; I'm really sorry that you've been faced with that response. I think you'll find much more sympathy on HN than is the norm in mainstream health care systems.

But please don't take out your pain and frustration at other commenters. I don't think that fortran77 is exhibiting the kind of intolerance you've experienced, but instead, making reasonable and critical points about the underlying topic.

Re:A Town for People with Chronic Fatigue Syndrome by vimy on Tuesday September 03, 2019 @06:00PM (#20871663)
You are right, I was wrong.
Re:A Town for People with Chronic Fatigue Syndrome by jonas21 on Tuesday September 03, 2019 @06:53PM (#20872103)
On the other hand, @fortran77 asked @dang to ban @vimy, which seems like a pretty hostile thing to do.
Re:A Town for People with Chronic Fatigue Syndrome by jMyles on Tuesday September 03, 2019 @08:57PM (#20872985)
True. Way over the top, obviously.

But the "did you even read the article" thing has been the death of a lot of otherwise interesting threads lately. Heck, look at this one.

Re:A Town for People with Chronic Fatigue Syndrome by notus on Tuesday September 03, 2019 @07:04PM (#20872235)
No reason to apologize to someone who is trying to get you banned for calling them out for not reading the article when it is very obvious they didn't read the article.
Re:A Town for People with Chronic Fatigue Syndrome by JoeyJoJoJunior on Tuesday September 03, 2019 @07:01PM (#20872206)
Please check out Dr Schubiner: https://www.youtube.com/watch?v=0VyH1laOd2M