Re:Saving Lydia
by rohanseth on Thursday July 25, 2019 @08:14PM
(#20531164)
I'm really sorry to hear about your son. I'm Lydia's father (the author of the medium post). What you shared is my biggest concern about going forward with Lydia's treatment. We are confident that the treatment will help her brain development, but to your point, there's a chance that will hurt her quality of life. We just don't know. How do you make a decision like that?
I think about this a lot and don't have good answers. All I can say is that I have 3 goals for my daughter - and she doesn't need to be a 100% normal child to achieve any of those goals.
1) I hope my child is not in pain
2) I hope my child feels loved
3) I hope my child can find beauty in the world.
Re:Saving Lydia
by max2 on Saturday July 27, 2019 @11:56AM
(#20542584)
If I may make a suggestion (not sure if English is your second language or not). Consider using 'typical' instead of 'normal'. It took me awhile to get used to that but my daughter is better off this way.
I think about this a lot and don't have good answers. All I can say is that I have 3 goals for my daughter - and she doesn't need to be a 100% normal child to achieve any of those goals. 1) I hope my child is not in pain 2) I hope my child feels loved 3) I hope my child can find beauty in the world.