News for hackers. Stuff that matters.
Re:Saving Lydia by bayesian_horse on Thursday July 25, 2019 @07:40AM (#20524498)
He may be talking about publishing genomic sequence data, and the data on the treatment he/they created. Maybe some tools to come up with such a treatment.
Re:Saving Lydia by ailideex on Thursday July 25, 2019 @07:53AM (#20524591)
He should be more specific. Conflating a treatment for some illness with a human infant seems needlessly careless use of language.
Re:Saving Lydia by bayesian_horse on Thursday July 25, 2019 @08:15AM (#20524702)
Never heard of clickbait?
Re:Saving Lydia by Keyframe on Thursday July 25, 2019 @07:59AM (#20524629)
Would that even be legally possible?
Re:Saving Lydia by bayesian_horse on Thursday July 25, 2019 @08:15AM (#20524700)
I don't know of significant legal obstacles to publishing your own genomic data, or that of your children.

And except for intellectual property issues, I don't see a problem with publishing treatment details, either.

There are some issues about providing medical advice without license, but that can be circumvented with a few disclaimers.

Re:Saving Lydia by jhbadger on Thursday July 25, 2019 @09:12AM (#20525058)
Many genomicists (such as Craig Venter and George Church) have already made their own genomes available to the public, so no issues there. And I doubt there would be any legal issues for making one's child's genome available either. Obviously there is the ethical issue because an infant can't give consent, but traditionally parents can give consent for medical issues.