True, but this is one of the cases where I don't mind clickbait as much. Getting attention should be the goal.

I do mind it. If your cause is meaningful enough, you don't need to resort to click baity titles.

So, how would you suggest it be titled or framed?

It's a new approach. There's a serious language issue here in that truly new things don't really have proper words or phrases for them yet. They need to be invented.

That's usually done by initially borrowing on existing concepts that are as similar in some way as possible.

This problem space also seems particularly thorny. Even people who have genetic disorders -- or who have a child with a genetic disorder -- may not understand some basics about how genetics works.

You people discussing semantics and even "clickbait" in this context truly make me sad.