I hope you find better answers.

I was fortunate to be diagnosed late in life with a relatively mild form of a serious genetic disorder. This meant I had my own mental models already for what was going on in my body before I got a label.

It allowed me to bring fresh eyes to the problem space and I've healed a lot when doctors say that cannot happen. The only real downside: The world is quick to act like I'm making that up and call me crazy.

I've had good results healing nerve damage where I had issues like numb spots in my feet, so I'm convinced a lot more is possible than is currently believed to be possible.