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Re:Things I Wish I’d Known Before My Chronic Illness by existentialhalt on Wednesday February 20, 2019 @04:23AM (#19206724)
The word "placebo" has been used against me over and over. It is frequently used as a justification for ignoring chronically ill people. It suggests that we are incapable of feeling anything physically real in our bodies.

Totally agree that chronic illness is curable if you look outside the traditional healthcare system. But that book is hand-waivey mumbo jumbo.

Re:Things I Wish I’d Known Before My Chronic Illness by mnorton on Wednesday February 20, 2019 @09:48AM (#19208182)
> It suggests that we are incapable of feeling anything physically real in our bodies.

It makes me sad that this is the representation the word has to you. I think the book is an honest attempt to change exactly this type of impression about the term placebo.

Re:Things I Wish I’d Known Before My Chronic Illness by mnorton on Wednesday February 20, 2019 @09:44AM (#19208160)
the book is what you make it. most of the beginning of the book is actual cases of folks taking their health into their own hands, which I find empowering.

certainly dont condone throwing placebo around as a reason to ignore chronically ill people.

just think folks are not presented with this path of recourse by the traditional healthcare system. the placebo is treated as a dirty word and stigmatized. why not attempt harness it? who cares if you cant currently explain the mechanisms at work, the results are what matter.

Re:Things I Wish I’d Known Before My Chronic Illness by existentialhalt on Wednesday February 20, 2019 @10:28AM (#19208544)
I'll bookmark it and maybe look at it someday. But my illness is caused by mercury poisoning, and I'm responding dramatically to treatment, so not very interested in inexplicable theories at the moment.
Re:Things I Wish I’d Known Before My Chronic Illness by mnorton on Wednesday February 20, 2019 @11:58AM (#19209478)
well yeah. if you have an actual diagnosis such as that, a treatment protocol known to be effective makes perfect sense.