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Re:GlaxoSmithKline makes $300M investment in 23andMe, forms ... by nradov on Wednesday July 25, 2018 @02:07PM (#17611390)
In the USA the Genetic Information Nondiscrimination Act of 2008 explicitly prohibits discrimination on the basis of genetic information with respect to health insurance and employment. No one in politically powerful positions has seriously advocated for repealing the law. The insurance companies don't even dislike it because it creates a level playing field; since the market is competitive, even if they were allowed to price health insurance based on genetic risk factors it wouldn't necessarily allow them to earn higher profits.

https://www.eeoc.gov/laws/statutes/gina.cfm

Re:GlaxoSmithKline makes $300M investment in 23andMe, forms ... by reaperducer on Wednesday July 25, 2018 @06:23PM (#17613469)
the Genetic Information Nondiscrimination Act of 2008 explicitly prohibits discrimination on the basis of genetic information

There are laws against age, race, and other discrimination in employment. But it still happens, and in some industries in widespread.

Greed finds a way. Your point is moot.

Re:GlaxoSmithKline makes $300M investment in 23andMe, forms ... by sk5t on Wednesday July 25, 2018 @04:04PM (#17612318)
This is true for health insurance; not so for life insurance.
Re:GlaxoSmithKline makes $300M investment in 23andMe, forms ... by guntars on Wednesday July 25, 2018 @11:20PM (#17614845)
What’s wrong with a life insurance company getting a more accurate probability of me dying from some rare disease? Maybe my rates should be raised if there’s a higher risk of me kicking the bucket. This works both ways too - my DNA can reveal that I will likely live a long premium-paying life. Insurance companies make money by being accurate, not by under or overestimating the risks. If DNA helps them be more accurate, good, maybe you can receive some of that value from improved efficiency.
Re:GlaxoSmithKline makes $300M investment in 23andMe, forms ... by sk5t on Thursday July 26, 2018 @12:59AM (#17615159)
Well, shucks, why not apply the exact same argument to health insurance as well? Or even auto insurance?

While adverse selection is undeniably a tricky problem, the underlying raison d'etre is pooled risk, to help individuals and families mitigate catastrophic losses. Maybe you're all right with the prospect of future analyses condemning to uninsurability folks with rare combinations of alleles that turn out to be strongly deleterious. To me, this seems like breaking the regulated semi-statis between insurers and insureds, and like breaking the social contract more generally.

Re:GlaxoSmithKline makes $300M investment in 23andMe, forms ... by mcculley on Thursday July 26, 2018 @05:13AM (#17616095)
If you are referring to the situation in the United States, where health care is managed mostly by private health insurance, it is already a terrible social contract.

The whole system is going to have to adapt to more information on individuals being available.

Re:GlaxoSmithKline makes $300M investment in 23andMe, forms ... by jnurmine on Thursday July 26, 2018 @07:36AM (#17616615)
Perhaps the insurance company will not give you an insurance at all if you are deemed a high enough genetic risk. Perhaps, while the main disease works its way, you will not be covered for the side effects (like pneumonia) either, as you have no insurance.

This might or might not be an issue now (regardless of the place of residence), but laws can always be changed. And societies can always develop to be more totalitarist, even up to extremes, and it is not like the collected data just vanishes when things start to slide. (Case in point: IBM's Hollerith machines and population records)

I was very curious about 23andme and really wanted to try it. After some due diligence I concluded it is not worth it because of privacy and other implications going forward. It is not what they do today, since they don't hide the obvious sharing and datamining, so if one joins them it is through informed consent. My concern was rather what kind of systems and policies they enable eventually in the future, after the information gets sold/shared enough times to anyone who can pay enough. At this point there is no control anymore in how (and by whom) the data gets used.

Re:GlaxoSmithKline makes $300M investment in 23andMe, forms ... by mcculley on Thursday July 26, 2018 @08:26AM (#17616856)
How long do you think you will be able to keep your genome private?
Re:GlaxoSmithKline makes $300M investment in 23andMe, forms ... by jnurmine on Thursday July 26, 2018 @03:46PM (#17620341)
Given that it is immaterial property which belongs to me, I should be able to hold on to it as long as I want?
Re:GlaxoSmithKline makes $300M investment in 23andMe, forms ... by mcculley on Sunday July 29, 2018 @10:07AM (#17638191)
How do you avoid leaving physical copies of it when you go out in public? Do you think there will not be technology to easily collect it?
Re:GlaxoSmithKline makes $300M investment in 23andMe, forms ... by bumholio on Wednesday July 25, 2018 @04:34PM (#17612556)
> even if they were allowed to price health insurance based on genetic risk factors it wouldn't necessarily allow them to earn higher profits.

Cue adverse selection. They might not be allowed to collect genetic data, but nothing stops patients from doing their own sequencing, and shop for healthcare plans depending on their predispositions, thus drastically affecting healthcare profitability.

This is not a pervasive problem yet because the tests are pretty crappy and very few people bother, but on the long run, I bet your "level playing field" hypothesis will be debated.

Re:GlaxoSmithKline makes $300M investment in 23andMe, forms ... by c2h5oh on Wednesday July 25, 2018 @02:17PM (#17611477)
Would that act cover things like targeting health insurance ads based on genetic traits?

How about displaying recruitment ads to people with lactose tolerance gene, effectively excluding most of worlds non-white population?

Re:GlaxoSmithKline makes $300M investment in 23andMe, forms ... by hunter2_ on Wednesday July 25, 2018 @02:38PM (#17611684)
Not sure about other areas, but in my state "Genetic Information" is among the protected classes with which you may not discriminate regarding employment. Although it's allowed for housing, credit, etc. when race et al are not, which is quite peculiar.

https://www.nj.gov/oag/dcr/law.html

Re:GlaxoSmithKline makes $300M investment in 23andMe, forms ... by c2h5oh on Wednesday July 25, 2018 @05:03PM (#17612782)
Federal (GINA):

> It shall be an unlawful employment practice for an employer-- (1) to fail or refuse to hire, or to discharge, any employee, or otherwise to discriminate against any employee with respect to the compensation, terms, conditions, or privileges of employment of the employee, because of genetic information with respect to the employee;

No job advertising protection there

NJ (LAD):

> It shall be an unlawful employment practice, or, as the case may be, an unlawful discrimination: a.For an employer, because of [..], genetic information, [..] to refuse to hire or employ or to bar or to discharge or require to retire, unless justified by lawful considerations other than age, from employment such individual or to discriminate against such individual in compensation or in terms, conditions or privileges of employment;

Nope, nothing there either about recruitment ads..