One example: sibling had become dangerously underweight due to difficulty eating/swallowing. There was eventually a barium swallow test. One of the nurses excitedly told sibling after the test revealed clear abnormalities something like "wow, I am sorry, there is something clearly wrong here." The previous attitude having revealed (even if not in so many words) that she believed sibling to be a faker wasting time.
I don't know if CFS was even the right label for the cluster of symptoms. Even in infancy there were many more problems with getting sick than the other kids in the household experienced. Infections and a cluster of other symptoms that ended up labeled CFS grew really severe in adolescence through mid 20s, then seemed to (mostly) go away as mysteriously as it had come. It was nearly a decade of misery that never had any clear diagnosis.
I've also seen a friend with lingering complications from third degree burns suffered 10+ years ago be treated pretty shabbily as she tries to keep her pain under control. Modern medicine in the US seems pretty darn good at treating acute problems with obvious causes and fixes. It seems to be pretty crappy at treating chronic issues, especially ones that don't have good diagnostic markers. If I ever end up in the hospital again I hope it's for a nice obvious problem like a broken leg.
When the symptoms show signs of improving, the doctors immediately conclude "Well, you're getting better now, so just continue as you are now and we'll consider this resolved." An acquaintance suggested I overwork myself before going to the hospital so I don't risk being dismissed by a temporary improvement in my symptoms.
I've had several sprains and a broken wrist that were resolved quickly and without complications.
This article and your comments resonated with me.
Several of the general / vague symptom conditions are similarly diagnosed.
Took 9 years, and 4 doctors till someone went, "Huh... Let's get you an MRI."
Still not 100% diagnosed, but its in the fibro family. Which has its own issues with doctors disbelieving its existence.
I struggle, looking at the medical world.
Psychology is a really young science. Yet, a lot of the unknowns get passed to it, rather than an admittal that "we don't know".
It might be fear, (getting sued), or arrogance (we know just about everything), or another reason.
The result is the same.
You have victims who don't have the knowledge required to advocate for themselves, and a tendency for the industry to place the entirety of the responsibility on them. [0].
Its hard. So hard.
Where to draw the line, of whose responsible, and what ethical considerations a researcher should take into account, is a hard task. One that I am certainly not capable of... But it needs greater thought.
[0] That is my experience, in my town, in my nation. Its anecdotal, and should be taken with a grain of salt.