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Re:The most important talk you'll share with friends and family by greenyoda on Friday September 19, 2014 @12:01AM (#8338941)
Unfortunately, Sam died in January 2014, shortly after giving this talk:

http://www.cnn.com/2014/01/11/us/progeria-sam-berns-dies/ind...

More on progeria: https://en.wikipedia.org/wiki/Progeria

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