Unfortunately doctors are fallible humans, but also the infallible gatekeepers of pharmaceuticals and surgeries. Unfortunately I've become relatively knowledgeable about a condition I have myself, to the extent where I'll ofyen have much more subject knowledge than a given nonspecialist doctor. All the same they have to make on-the-spot decisions about me that will have serious consequences for both of us, in between twenty similar cases on either side.

As an aside, I'm very sorry for what you're going through. Empathy is easy when you've had something similar! I'll say that in my case removing a tooth that was impinging on a nerve did have substantial benfits that only became clear months down the line. I'm not saying that will happen for you, but a bit of irrational optimism seems to be an empirically useful policy.