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Re:Why doctors hate their computers (2018) by bboygravity on Monday August 04, 2025 @08:11AM (#44784760)
What we need is a universal standard way to store all of our personal data on our phone and share whatever is relevant at whatever company/government at the touch of a button.

Nor a secretary nor a doctor nor anybody should have to hand-type data that already exists digitally.

I'm so mind-blown that this doesn't exist yet that I feel maybe I should try and build it. I have tried building the next-best thing: OCR based form filling, but hard to get far as a solo FOSS'er.

Re:Why doctors hate their computers (2018) by shortrounddev2 on Monday August 04, 2025 @08:19AM (#44784810)
Problem: there are 19 competing standards

New problem: there are 20 competing standards

Re:Why doctors hate their computers (2018) by bboygravity on Monday August 04, 2025 @02:14PM (#44789538)
There are 0 standards for global sharing of all possible personal data. That I know of.
Re:Why doctors hate their computers (2018) by fsloth on Monday August 04, 2025 @08:39AM (#44784995)
" this doesn't exist yet"

We have a national health database in Finland called "OmaKanta" (which translates to MyDatabase or something like that). It's not perfect but at least I can trust it with most of my health records, and it's accessible to all doctors working in both public and private sector.

Re:Why doctors hate their computers (2018) by rolandog on Monday August 04, 2025 @11:26AM (#44787157)
I wonder if the Solid protocol might be helpful here? [0] I must confess I haven't toyed with it so far, but I am looking for an excuse to try it out.

[0]: https://solidproject.org/

Re:Why doctors hate their computers (2018) by bboygravity on Monday August 04, 2025 @02:17PM (#44789561)
Looks cool, but is more abstract/low-level than what I mean. Could maybe be used as a foundation for it though.
Re:Why doctors hate their computers (2018) by nradov on Monday August 04, 2025 @11:37AM (#44787314)
Many healthcare provider organizations have standard HL7 FHIR APIs that patients can use to download their own chart records. There are a variety of apps that you can use to call those APIs.
Re:Why doctors hate their computers (2018) by bboygravity on Monday August 04, 2025 @02:13PM (#44789530)
Im talking about a standard GLOBAL way of sharing that exact same data AND all other personal data.
Re:Why doctors hate their computers (2018) by nradov on Monday August 04, 2025 @02:58PM (#44790028)
FHIR is a global standard.