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Re:U.S. autism data project sparks uproar over ethics, priva... by Tireings on Sunday April 27, 2025 @06:08AM (#43810747)
I agree generally but I hope we make as much real anonymous health data available for research.

Google is certified and runs the biggest medical database with (I believe without googling this) the biggest hospital operator in the USA.

I have a condition which is rare enough that it doesn't get enough funding and data is missing

Re:U.S. autism data project sparks uproar over ethics, priva... by croes on Sunday April 27, 2025 @06:31AM (#43810860)
Didn’t they already show that these data can’t really be anonymized if it should still be useful?
Re:U.S. autism data project sparks uproar over ethics, priva... by mschuster91 on Sunday April 27, 2025 @06:10AM (#43810757)
> Google is certified

That doesn't matter _at all_ when the government comes knocking at Google's door - in the best case, they have a subpoena that can at least be appealed afterwards, in the worst case it's DOGE teens backed by a bunch of heavily armed guys in camouflage.

Re:U.S. autism data project sparks uproar over ethics, priva... by ohgr on Sunday April 27, 2025 @06:14AM (#43810785)
Indeed. No data is safe or secure in such environments.

This has become an issue big enough that the US company I work for is actually removing data from US cloud providers to make it harder to get at. The European divisions have started data sovereignty projects because it's now a principal risk.

I'm out of the cloud as well.

Re:U.S. autism data project sparks uproar over ethics, priva... by A4ET8a8uTh0_v2 on Sunday April 27, 2025 @08:13AM (#43811377)
Ha. My company was advising having a burner phone when traveling to US in a company-wide meeting. There has been something of a shift.
Re:U.S. autism data project sparks uproar over ethics, priva... by ohgr on Sunday April 27, 2025 @10:53AM (#43812361)
Yeah similar. My company is US and have banned all travel to US. Said we can do stuff over Teams instead.
Re:U.S. autism data project sparks uproar over ethics, priva... by ohgr on Sunday April 27, 2025 @06:10AM (#43810758)
I would leave that in the hands of professionals though.

Which is evidentially not this lot. Not even remotely.