Re:AI Tool Found My Autoimmune Disease After $100k and 30 Ho...
by sarchertech on Monday February 10, 2025 @09:06AM
(#43000451)
It sucks being the individual in this process. The only real solution is to develop better models for understanding what's going on so that we can come up with objective criteria and testing.
To an external observer, there is no difference between someone who has a very low pain threshold and experiences normal body wear as extremely painful, and someone who has some mechanical condition causing pain.
> but endometriosis seems to be particularly bad.
I've known people who had endometriosis successfully treated after a long struggle to get someone to believe them.
And I've known someone who after a long struggle to convince someone to believe them, finally found someone. Then underwent extremely invasive and expensive surgery with no improvements.
It's an extremely difficult issue and it sucks for everyone involved.
I don't really know what the answer is. If AI systems are going to be used to deny people coverage (and they will be), why shouldn't patients have AI of their own? On the other hand, there's plenty of examples of AI giving out completely wrong advice, and it may be difficult for doctors to get them to accept that. Not to mention entire politicised subcultures are already built around medical misinformation.