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Re:7/67 Children Receiving Skysona Gene Therapy Develop Bloo... by epicureanideal on Thursday October 10, 2024 @03:07AM (#41796338)
Although hopefully if the government is paying for that it’s helping the underlying technology become cheaper over time.
Re:7/67 Children Receiving Skysona Gene Therapy Develop Bloo... by myprotegeai on Thursday October 10, 2024 @03:40AM (#41796525)
Pharma love when governments are on the hook for their outlandish prices. It's why there's a revolving door between public and private...to smooth deals like these.
Re:7/67 Children Receiving Skysona Gene Therapy Develop Bloo... by fshbbdssbbgdd on Thursday October 10, 2024 @03:53AM (#41796591)
If the government wasn’t allowed to hire from private, it would be starved of talent. That would be a great scheme to hobble any agency you don’t like.
Re:7/67 Children Receiving Skysona Gene Therapy Develop Bloo... by myprotegeai on Thursday October 10, 2024 @04:52AM (#41796932)
It isn't as binary as you're making it. You can hire people who don't have conflicts of interest, or the perception of conflicts of interests.
Re:7/67 Children Receiving Skysona Gene Therapy Develop Bloo... by fshbbdssbbgdd on Thursday October 10, 2024 @03:52PM (#41802818)
You can cut it more finely but I think you still run into the same issue. The best candidates to run an agency that regulates a particular industry are going to highly overlap with the best candidates to be leaders in that industry, because they have knowledge and experience over how that industry works.

Sort of like how many top law students choose between clerking at federal court and joining big law, or do one after the other. And people who become judges often did both. If you ban people who worked in private practice from being a clerk or judge, you would have a lower quality judiciary.

Ultimately, I think you end up with the B team trying to regulate the A team.

Re:7/67 Children Receiving Skysona Gene Therapy Develop Bloo... by SturgeonsLaw on Thursday October 10, 2024 @05:31AM (#41797130)
The prices are less outlandish in single payer healthcare systems as the government's monopsony can force prices down
Re:7/67 Children Receiving Skysona Gene Therapy Develop Bloo... by myprotegeai on Thursday October 10, 2024 @06:15AM (#41797346)
You seem to be under the impression that the government works on your behalf to save you money.
Re:7/67 Children Receiving Skysona Gene Therapy Develop Bloo... by SturgeonsLaw on Thursday October 10, 2024 @09:24AM (#41798539)
It does. The Pharmaceutical Benefits Scheme here in Australia is a lever that the government pulls to negotiate lower drug prices

https://www.pc.gov.au/inquiries/completed/pharmaceutical-pri...

It also pays an additional $5B p.a. in drug subsidies.

Re:7/67 Children Receiving Skysona Gene Therapy Develop Bloo... by myprotegeai on Thursday October 10, 2024 @12:12PM (#41800332)
Can you describe the incentive structure that makes sure Australians require less drugs in general? That's the bigger picture. Getting a discount on something you shouldn't need in the first place is not a win.
Re:7/67 Children Receiving Skysona Gene Therapy Develop Bloo... by LarsDu88 on Thursday October 10, 2024 @01:29PM (#41801143)
Honestly, $3 million for a tailor made (needs to be customized for every patient individually) single shot cure that saves a person's life is pretty reasonable.

The median lifetime earnings for an American is about $1.7 million though. For a mother, a father, and the patient, it might be worth it.