Re:23andMe confirms hackers stole ancestry data on 6.9M users
by maxerickson on Tuesday December 05, 2023 @07:31AM
(#38529970)
They are frank about also selling the data for research, it is not underhanded. It's even opt in...
For example, they talk about it on this page, which is linked from the about menu (so available with pretty small effort): https://www.23andme.com/research/
I expect lots of people also like that they get updates when information about new markers becomes available.
Re:23andMe confirms hackers stole ancestry data on 6.9M users
by sonicanatidae on Tuesday December 05, 2023 @11:25AM
(#38532952)
I trust them to opt me out, not at all. It's safer to just assume your data is being used, regardless, because it's free money to them. If/when they get caught selling data marked as Opted Out, they'll get a pittance fine, paid with other people's money and bonuses for making numbers that quarter.
You're welcome to trust them, but no I.
Re:23andMe confirms hackers stole ancestry data on 6.9M users
by joshuahedlund on Tuesday December 05, 2023 @08:09AM
(#38530238)
> They could have done the analysis and sent you a printed sheet.
Could they tho? The ancestry analysis itself is based on the data of other users in other parts of the world?
Re:23andMe confirms hackers stole ancestry data on 6.9M users
by stef25 on Tuesday December 05, 2023 @07:03AM
(#38529806)
> Disallow collection of personal information
It's all about the money, always. So not gonna happen.
Re:23andMe confirms hackers stole ancestry data on 6.9M users
by mewpmewp2 on Tuesday December 05, 2023 @06:08AM
(#38529439)
What about people who would want to donate their data to further the research?
Re:23andMe confirms hackers stole ancestry data on 6.9M users
by seszett on Tuesday December 05, 2023 @06:40AM
(#38529658)
They can enrol in studies at actual (non-profit so they don't benefit from selling data, probably public funded) research institutes.
23andMe could still have operated legally under this scheme. They could have done the analysis and sent you a printed sheet. But no, they had to store everything to be able to double dip by selling the data to pharma companies and whoever else would pay for it.
If you can't turn a profit without underhandedly selling your users' data. You deserve to fail.