I’ve had two sleep studies. I have once been diagnosed with type 2 narcolepsy and then later as my sleep hygiene improved that was changed to idiopathic hypersomnia. I don’t have sleep apnea.

At any time I call basically fall asleep within 5 minutes and I’m always tired. Has anyone else dealt with this?

I tried modafinil but felt horrible for weeks as I hoped my body would adjust. I’ve also considered armodafinil, but I fear the same effects.

The doctor wants me to try xyrem but it scares me, doesn’t have a lot of studies on it, and it’s basically a nonstarter because I have young jerks and need to be able to wake up if needed.

So all of that to say, is dementia inevitable for me? My guess is that I just sleep terrible.

Any advice is welcome.